Announcement

Collapse
No announcement yet.

Interstim Diary--Tired and Tender

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Sarojini
    replied
    I also think you should contact your doctor if you are experiencing fever. Deep tissue infections, as Claudia has said, may not be apparent on the outside (no redness or oozing) but can cause lots of pain, fever, and a general feeling of being unwell.

    You should definitely discuss this with your doc ASAP... if this IS a deep tissue infection, and it worsens, you can get very sick and could lose your implant (then if you wanted, you would have to have everything redone)

    Leave a comment:


  • topcop229
    replied
    So sorry that you are experiencing so much pain. The fever definitely concerns me, as you could have infection inside that might not show any signs like redness or swelling on the outside.

    The soreness around your hip/ back could be the formation of scar tissue and a thing called capsular contracture. Any time a foreign object is placed in the body, your body forms a capsule of scar tissue around the object. The scar tissue can (for no known reason, I think) contract and shrink around the foreign object, causing pain and possibly an irregular look of the skin around the object.

    This is a long shot, though, and I wouldn't worry about it right off the bat, but I did want to mention it to you in case you find out for sure that you DON'T have an infection but are still in pain.

    I'm probably more nervous and cautious than most, but I would likely contact the doctor again to make sure he thinks everything is okay. Good luck and I do hope you are feeling better soon.

    Leave a comment:


  • donnes007
    replied
    Ok, it has been one week on Friday that I have had my permenant implant and I am in alot of pain. I dont have any excessive redness or oozing but I am in so much pain! My behind hurts and it is becomming sore around my hip and waist. Now keep in mind I have the original implant- the big one. I know I am not this much of a weenie. I have a very low grade, occasional fever- usually wakes me up, my doc said normal on Thursday but it seems worse. Someone offer some guidance...

    Leave a comment:


  • topcop229
    replied
    donnes,
    Glad that your permanent surgery went off without a hitch. I am sorry you aren't feeling so well and really sorry your doc doesn't believe in pain meds after surgery! I wonder how he would feel if it was him having the surgery??? I just don't understand why a doctor wouldn't want you to be as comfortable as possible?

    Well, keep resting, hopefully your bladder will "awaken" soon for you!

    Leave a comment:


  • Kara29
    replied
    Thinking of You!

    Jen,

    I still think of You daily! I've been a bit busy going between my Home in CNY and my parents in Western NY. I wanted to let you know that even though I haven't been able to to type much, that I am still thinking of you!

    Sending along some more healing thoughts....Ghengus and Justin have asked me to make sure that Mr. Paddington is taking good care of you as you heal.

    When you return to work. You could get one of those gardening kneeling cushions and cut out a U shape so that there is no pressure on your Interstim incision. I'm not sure how much sitting you have to do.

    Kara

    Leave a comment:


  • donnes007
    replied
    well its my 1st night with my permenant implant and it really hurts. My doc gave me no pain meds- he doesnt beleive in it- so Im going off of left overs from other surgerys. i was wondering if anyone knew of a pain clinic hehre that would prescribe- Lafayette, LA. i really need muscle relaxers more than anything to allow pain pills to work.Just got out of surgery a few hours ago but its like my bladder didnt wake up or something because it takes me awile to start pottying. i dont have to push like i used too but i dont know??? This really hurts, but i guess itll be worth it. just i was just becoming able to sit on my butt from stage 1 (feb.15) and heres stage 2 (feb, 23). they had to do this so quick cause of allergies to latex, tegaderm, and pretty much anything they bandaged me with.

    Leave a comment:


  • Sarojini
    replied
    LOL ... I was reading a Glamour

    Thanks for the concern, all I'm going to have to make sure to get rest this weekend. I promise I won't go out doing random things! 'Course, going to your timeshare sounds like a pretty good plan, Barb

    Katheryn, yes, Dr. Evans got my leads perfect... he normally does both sides of the nerve (left and right) in case one works better, but he hit my left side so dead on the money he didn't even bother to do my right Claudia's right, I never had to turn the trial generator over 1 (it goes up to 10), and my permanent implant is on 1.1 at the moment. You've got a great doc should you decide to have the implant.

    Leave a comment:


  • topcop229
    replied
    Hi Katheryn! I was diagnosed with IC about a year and a half ago, and I was diagnosed with severe PFD at the same time. However, I have been suffering from IC and PFD symptoms for about 16 years now. I also have endometriosis, which was diagnosed in 1998, and I had a hysterectomy in 1998 at the age of 23 due to the severity of the endo. Had several laps after that to remove more endo, my fallopian tubes, then one ovary. I also went through various hormone treatments, like that birth control shot and then Lupron after my hysterectomy. I was diagnosed with fibromyalgia officially in January, but I've been suffering from those symptoms for about two to three years.

    I started seeing Dr. Evans just over a year ago, and I LOVE him!!! He really understands IC and its related diseases, and he works SO hard to try and make his patients comfortable and come up with the right treatment for each individual person.

    Whether to try interstim is a tough decision. You just have to weigh the risks and the possible benefits as well as determine that you have pretty much exhausted most of the less invasive options. But, if it works for you, it will all be worth it!

    Leave a comment:


  • KathrynPInk
    replied
    Thanks Claudia.
    You are very encouraging to me about interstim. I will end up making a decision within a few months. ( i'm hoping I stay on my healing trend for a while.) How long have you been dealing with IC? I appreciate your thoughtful words!
    love, Katheryn

    Love,
    Katheryn

    Leave a comment:


  • topcop229
    replied
    LOL, Barb, I am reading US Weekly right now! Your bag of tricks sounds pretty darn good...what time should I expect you? And where's the timeshare, so I know what to pack? LOL!

    Seriously, thanks for the laughs. It's so difficult sometimes to keep resting, even though you know that's the right thing to do.

    Leave a comment:


  • Babs RN
    replied
    All right Jen and Claudia, do I need to get on the next plane to North Carolina to kick you two non compliant patients into shape?(Just kidding BTW, but feel like you two need some laughs)I will bring my tie you two down in the house kit. Supernanny brings her big bag of whipping kids into behaving, I have my you need to rest and hey might as well have a bud that is a nurse bag. In it contains: chick flicks(funny and tear jerkers to include: When Harry Met Sally, Jerry Maquire, Steel Magnolias, Thelma and Louise, and to remember our past Sixteen Candles, The Breakfast Club, and Ferris Bueller's Day Off), chick propaganda magazines to include Cosmo, Glamour, Marie Claire, Us Weekly, OK, People, and weekly rags like Star, In Touch, and Life and Style. I am taking both sets of keys to your vehicles(and Sandy if you're feeling bad, I will kidnap you and take your keys too)and we are all moving to my time share. Just wait for me and the megaphone outside your houses. Hee-hee.

    Leave a comment:


  • topcop229
    replied
    Katheryn,
    Good luck in making your decision about the interstim. You definitely have the right doc, that's for sure! I know he landed Jen's leads absolutely perfectly, and he did the exact same with mine! I have such a great connection that I barely have to turn the stim dial to a one, and I think Jen was the same way with the trial.

    Leave a comment:


  • KathrynPInk
    replied
    Hi Jen,
    Yes, it sounds like you have over done things, and I would bet it is difficult to make yourself rest enough. It's so easy to say, "well. I will just be gone a few minutes", and not realize how taxing driving and running even one errand can be to one who has just had surgery.

    I am glad your husband is so involved in caring for you. Good for him!

    I am very interested in your progress, so please keep us informed as you get stronger and stronger. I am thinking that if I have anything else done, it will be the same procedure as you had done, as provided by our man Dr. E.

    Take care girl, and thanks again for your sharing and helping me feel hopeful, even as you recuperate.
    Love, Katheryn

    Leave a comment:


  • Sarojini
    replied
    Yep, see... there you go. It seems just normal things can cause a ton of pain after these surgeries. I'm with you, I'm resting all weekend!! My father-in-law is coming tomorrow and staying overnight, but my husband can deal with him

    Leave a comment:


  • topcop229
    replied
    I'm going to nominate myself for the "take your own advice" award of the day. After I posted the above telling Jen to take it easy after surgery, I was really bored. I decided to straighten my hair. I washed it yesterday in the sink and just let it air dry...which means it looked like this ball of half wavy, half straight weird mess. Well, after that, I thought, "you know, I need some stamps. The grocery store is just a minute away (literally, it takes 60 seconds to get there, if that)." So, I suited up and headed over there.

    I grabbed a little basket, thinking, "well, I think we need some canned veggies, too. I'll grab some real quick." Anyway, $20 and a little basket full of stuff later, I am back home and in pain!!! My whole lower back is super sore and my right hip is hurting again. I just took a lorcet, hopefully that will help. I am definitely going to rest ALL weekend!

    Leave a comment:

Working...
X