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  • 2 day countdown till surgery for removal

    Well so far so good. After having to postpone the first one from being sick I have been parnoid this time around.

    I will be having my complete removal surgery on Thursday. I have to be there at 6:00 am. Where I am having it down everyone has to be there at the same time and then they start calling in. So say you get there at 6:00 but your surgery it not until 2:00 pm you still have to be there at 6:00. On the Thursday I was suppose to have it I got a call at 6:20 am asking where I was. So that meant I was one of the first ones in. It will be my luck on Thursday that I wont be so lucky.

    I am hoping all goes well and I dont have alot of pain. I remember when I had the second revision I had a ton of pain where he removed the old leads. I know mine are in deeper than normal because I dont get good response like most people, so I am worried about it this go around. But at least I will be prepared this time.

    Just because I am a failure when it comes to this, does not mean I dont want anyone to try it. For alot on here it has been nothing but a success. And I have had a ton of problems with both of mine, I want to be of help to those trying the trial, those going for the perm. procedure and those that have had failures. I know for me it has been a let down, because my IC is so bad that I was so in hope this would work for me. So much that even after the first fiasco I tried it again, and still had problems. For me it was not meant to be. But for those like Jen, topcop and others going through it right now, I am so HAPPY for them. I hope they have continued success.

    As soon as I am able I will let all know who wants how the outcome was.

    Blessing to all that have had or getting the InterStim.
    God grant me the serinity to withstand the days ahead!!!

    My myspace link...
    www.myspace.com/patricia_luvs_matt


    Patricia

    In Memory of My Father (Lawerence) 1/25/2007

    Procedures:
    Interstim Sept 2001
    1st InterStim Removal May 2005
    2nd Interstim Implanted May 2005
    2nd InterStim Removed March 2007
    Hysterectomy 1999
    Tubes Tied 1997
    C-Section 1996


    Me and my kids


    Taylor (my daughter) Me and my daughter My son Cody and Taylor

  • #2
    we got you covered on the good vibes and prayers.. Godd luck and keep us posted
    'The will of God will never take you where the Grace of God will not protect you.'

    Comment


    • #3
      I hope that your surgery goes well. I will keep you in my thoughts and prayers. Hugs, Amy

      Comment


      • #4
        Thanks Tig...You and Leslie have always been so good to me, even though I had a failure with mine. I think it goes to show others that we can all get along with each other and offer support to one another...Thanks again
        God grant me the serinity to withstand the days ahead!!!

        My myspace link...
        www.myspace.com/patricia_luvs_matt


        Patricia

        In Memory of My Father (Lawerence) 1/25/2007

        Procedures:
        Interstim Sept 2001
        1st InterStim Removal May 2005
        2nd Interstim Implanted May 2005
        2nd InterStim Removed March 2007
        Hysterectomy 1999
        Tubes Tied 1997
        C-Section 1996


        Me and my kids


        Taylor (my daughter) Me and my daughter My son Cody and Taylor

        Comment


        • #5
          Thanks Amy...They mean alot right now.
          God grant me the serinity to withstand the days ahead!!!

          My myspace link...
          www.myspace.com/patricia_luvs_matt


          Patricia

          In Memory of My Father (Lawerence) 1/25/2007

          Procedures:
          Interstim Sept 2001
          1st InterStim Removal May 2005
          2nd Interstim Implanted May 2005
          2nd InterStim Removed March 2007
          Hysterectomy 1999
          Tubes Tied 1997
          C-Section 1996


          Me and my kids


          Taylor (my daughter) Me and my daughter My son Cody and Taylor

          Comment


          • #6
            *Thumbs Up* Patricia
            Sharon

            Shopping??? Did someone mention shopping? I'll get my hat... ;-)

            Where I can be found most days.



            Link to the ICN Patient Handbook:
            http://www.ic-network.com/handbook/

            Link to the IC Diet:
            http://www.ic-network.com/diet/


            IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment


            • #7
              I'll be thinking of you. And I hope you are one of the first ones called to surgery. Anticipation is usually the worst part of any procedure.

              Warm healing thoughts,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                Patricia, I hope all goes well for you. You will be in my thought and prayers. I am truly sorry that this thing did not work out for you. Just want you to know that I'm praying too.

                Sending hugs, Trishann

                Comment


                • #9
                  I hope your surgery goes off without a hitch and you're back on your feet in no time at all
                  ****
                  Jen

                  *Diagnosed with severe IC in 2004
                  *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                  *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                  *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                  **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  Comment


                  • #10
                    Will be praying for you
                    Miss Bessie

                    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                    Comment


                    • #11
                      Hi Patricia;

                      I as well am sending you all the best and hope that you will have a fast and speedy recovery from your surgery.
                      I could not wish anyone more all the best as of what you have been thought Patricia..
                      Sending lots of and will be thinking of you Patricia.

                      Warm hugs; Debbie
                      Thinking positive has got me through to another day!!

                      Comment


                      • #12
                        Said in my Southern Accent "Ya'll are the greatest" Thanks so much for the well wishes.
                        God grant me the serinity to withstand the days ahead!!!

                        My myspace link...
                        www.myspace.com/patricia_luvs_matt


                        Patricia

                        In Memory of My Father (Lawerence) 1/25/2007

                        Procedures:
                        Interstim Sept 2001
                        1st InterStim Removal May 2005
                        2nd Interstim Implanted May 2005
                        2nd InterStim Removed March 2007
                        Hysterectomy 1999
                        Tubes Tied 1997
                        C-Section 1996


                        Me and my kids


                        Taylor (my daughter) Me and my daughter My son Cody and Taylor

                        Comment


                        • #13
                          UGH!!!!!!!!!!

                          My removal got postpone. He was not able to get it scheduled on time. It has been one thing after the other. I will be so glad to get this over with. I hope I made the right dec. to postpone removal when I was so sick.
                          God grant me the serinity to withstand the days ahead!!!

                          My myspace link...
                          www.myspace.com/patricia_luvs_matt


                          Patricia

                          In Memory of My Father (Lawerence) 1/25/2007

                          Procedures:
                          Interstim Sept 2001
                          1st InterStim Removal May 2005
                          2nd Interstim Implanted May 2005
                          2nd InterStim Removed March 2007
                          Hysterectomy 1999
                          Tubes Tied 1997
                          C-Section 1996


                          Me and my kids


                          Taylor (my daughter) Me and my daughter My son Cody and Taylor

                          Comment


                          • #14
                            I can't believe that.....you poor thing. I know the anticipation you had and then to have it cancelled.......I am sorry.
                            Miss Bessie

                            Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                            Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                            Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                            Comment


                            • #15
                              Thanks. My mom says it was meant to be like this. For some reason, I am not to have it removed yet.
                              God grant me the serinity to withstand the days ahead!!!

                              My myspace link...
                              www.myspace.com/patricia_luvs_matt


                              Patricia

                              In Memory of My Father (Lawerence) 1/25/2007

                              Procedures:
                              Interstim Sept 2001
                              1st InterStim Removal May 2005
                              2nd Interstim Implanted May 2005
                              2nd InterStim Removed March 2007
                              Hysterectomy 1999
                              Tubes Tied 1997
                              C-Section 1996


                              Me and my kids


                              Taylor (my daughter) Me and my daughter My son Cody and Taylor

                              Comment

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