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Confused about Stage I interstim?

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  • Confused about Stage I interstim?

    I had the stage I interstim implant on March 21st. Do you always get good results right away or can it take awhile? I have noticed a slight improvement, but nothing that is lifechanging. They have chaged the setting a few times. They said my nerves are very sensitive and inflamed. I need to make a decision about stage II. Does stage II sometimes work better than stage I. I also feel that I could be having a flare up at this time. I feel that I am emptying my bladder better, but I still have the feeling of urgency very often. I would appreciate any information.

  • #2
    It can definitely take a while to see a difference. I saw one on the very first day, but many others said it took a week or more. However, if you've changed your settings a number of times just with the trial, and you still haven't seen much improvement, it's possible this therapy is not for you. Do not let your doctor talk you into having the permanent implant if you do not feel things are going well with the trial, because your results with the permanent implant will be very much like what you are feeling now with the trial generator.

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      When I got mine, and others I have talked to have had results right away. The external box is the same as the ipg generator they will implant. If you are not having any success with it, it would not make any since for you to have the implant.
      'The will of God will never take you where the Grace of God will not protect you.'


      • #4
        Gonna have to agree here. I felt mine right away, in fact when I woke up from surgery for the first time in years did not have that "gotta go" feeling. Also if you are not getting good results with the trial, the perm. implant will not work either. Please do not let the doctor talk you into going ahead with the perm. implantation, because you still will not have any results.
        God grant me the serinity to withstand the days ahead!!!

        My myspace link...


        In Memory of My Father (Lawerence) 1/25/2007

        Interstim Sept 2001
        1st InterStim Removal May 2005
        2nd Interstim Implanted May 2005
        2nd InterStim Removed March 2007
        Hysterectomy 1999
        Tubes Tied 1997
        C-Section 1996

        Me and my kids

        Taylor (my daughter) Me and my daughter My son Cody and Taylor