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Does the interstim help with pain?

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  • Does the interstim help with pain?

    Hi Gals,
    I have read about quite a few people on here getting the interstim. I was just wondering if it helps with IC pain or is it more so to help with the frequency issues of IC? Thanks.
    Jen

  • #2
    no it is not for pain, just frequency and urgency. some do get the added benifit, but, you have to go into this knowing it will not help any bladder pain.
    below are some interstim links, please take the time to read them.
    'The will of God will never take you where the Grace of God will not protect you.'

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    • #3
      Jen, what it did for me was helped with my urgency/freq enough that my pain decreased so much. I still take pain meds daily but not nearly like I did before my implant. I went from every 10 to 15 minutes to fairly normal during the day. I still get up about every 2 hours at night, but the implant did help with that feeling that I needed to go which as alot of us know when you can't empty you go into a flare. Only every once in a while do I have a problem with retention.

      Prior to my surgery in 2002, I was off work more than I was there. I was taking pain meds like they were M&Ms and I didn't go anywhere since I was always wanting to be in a ball in my bed wrapped in my heating pad. Life isn't perfect, but it's certainly worth living now. I can even go to the movies from time to time.

      T83

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      • #4
        The InterStim is not approved for pain control. It is approved for treatment of urinary frequency/urgency or retention only.

        Some, like Tracey, end up with pain relief, but you must know that many people do NOT get any pain relief. I am still taking pain medication after my InterStim implant; my doctor also explained beforehand that I would get relief from the frequency and urgency, but that I would still have pain afterwards. If you have a doctor who says your pain will go away completely, RUN.
        ****
        Jen

        *Diagnosed with severe IC in 2004
        *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
        *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
        *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

        **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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        • #5
          Yes, like Jen said if your doctor says that it WILL help with pain run! Jen and I used to have the same wonderful doctor. When the doctor first started talking to me about the implant, she gave me the numbers for patients that had the surgery that had success and not success. I also watched the video she had at the time and read so much literature. My aunt also went to Dr. Wiygul, due to another bladder problem. She hoped that Dr. Wiygul would let her try the implant, but she mainly has pain and Dr. Wiygul wouldn't do the surgery. I definitely went into the surgery with my eyes wide open.

          My mother had the impression that my pain would go away and couldn't understand for a while why I was still on pain meds until she went with me to one of my appointments.

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          • #6
            Hi Jen :

            Well I am one of the lucky one that has had no pain since I had the InterStim Implant, now almost eight year pain free ..
            I do not take any medication what so ever since I had the InterStim ..
            I was told up front from my doctor that is was not for pain relief at all .
            There are many of us as well with no pain I really think it has to do what your main problem is and that is why we are helped with our pain ..

            Debbie
            Thinking positive has got me through to another day!!

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            • #7
              I know some doctors out there today are using the InterStim for pain control, especially if this is their IC patients main concern. Like others said it is not used for pain control but for urgency/freq. I am not gonna say FDA because it is not FDA approved for IC yet either. That being said some patients have had pain relief from it. I think it all depends on the type of pain you are having. For some with pain from the urgency and freq it can help with that. But for out and out bladder relief and pelvic pain it will not help. I have never had pain relief with either units I have had.
              God grant me the serinity to withstand the days ahead!!!

              My myspace link...
              www.myspace.com/patricia_luvs_matt


              Patricia

              In Memory of My Father (Lawerence) 1/25/2007

              Procedures:
              Interstim Sept 2001
              1st InterStim Removal May 2005
              2nd Interstim Implanted May 2005
              2nd InterStim Removed March 2007
              Hysterectomy 1999
              Tubes Tied 1997
              C-Section 1996


              Me and my kids


              Taylor (my daughter) Me and my daughter My son Cody and Taylor

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