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Chickening out of trial

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  • patricia1
    replied
    Anytime you have to deal with a decision as such with the InterStim, it can be hard choosing what you want done. There have been many stories on here, good and bad, that can totally scare the pants off anyone. But you have to look at all of it good and bad to make your choice and if in your heart it is telling you to wait, then wait. The InterStim is certainly not going anywhere anytime soon, and maybe later on you will feel more comfortable doing it then. Being pushed(which you may not be) into something that is making you physc. ill is not good on anyone....I hope that what you choose will put you heart and mind at ease

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  • tigger_gal
    replied
    I too say go you rwith you gut. Interstim is not designed for pain. I did get some pain relief, and did not realize that it did help till it was shut off. I think you are making a wise choice by canceling.

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  • Sarojini
    replied
    I think, if you have this many reservations about the procedure, you should go ahead and cancel. There is no sense making yourself physically ill over this -- listen to your body.

    Also, I can tell you that while my frequency and urgency has been reduced to almost normal most days, I still require pain management. The pain has been reduced some because I'm not constantly feeling the urge and because I'm not constantly irritating my bladder more by sitting and straining, but it has not gone away by any means.

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  • vm
    replied
    It would be such a hard decision to make, especially since you read all kinds of different things about it. I think you have to follow your gut - it will be out there if you ever change your mind.

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  • suebee2
    replied
    Anniepie, I cancelled my trial a total of three times. I did't feel my URO gave me enough info to be comfortable with a decision. After I connected with this ICN site, with questions and comments on both side of the fence, did I finally accepted to try it. I spoke with a friend who has had the interstim for 5 years, and is happy with it. My URO referred her to me, and surprise it was a fellow Town Clerk. She needed it for pain and leaking. She is satisfied it is doing the job. It's been only one week since I have had the interstim II implanted, and so far so good. Don't make your decision until you feel comfortable with it. The interstim rep said some women with pain are helped but at this time they can't promise it. Sue

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  • humpieumpumkin
    replied
    I think you are making a wise decision since your IC is mostly pain. I'm currenlty in the decision making process of the inter stim. I have about 50%pain 50% urinary dysfunction. I wonder if I should also consider the pain issue? Well anyways, go with your gut, and everything will be ok. I'm truly sorry you are suffering so bad.
    Erika

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  • ICNDonna
    replied
    Sometimes we just have to follow our gut feelings. Have you thought about seeing a different urologist for a second opinion --- and to see if there are perhaps treatment options you haven't tried yet?

    Warm hugs,
    Donna

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  • anniepie1976
    started a topic Chickening out of trial

    Chickening out of trial

    Has anyone gone through this? I feel like after everything I have read about this that the fears of getting this done (making me pretty sick I've been throwing up and all) is worse than the idea of just putting up with the pain and frequency. Pain is my worse symptom anyways and this doesn't even help this (even though the Dr told me it does and that makes me nervous too like he doesn't know what he's doing). I have an 18 month old at home and I fear something going wrong with this and effecting my being able to care for him. I don't have much help. I am calling them to cancel my trial coming up because my gut seems to be telling me not to do this. Is there anyone else out there who has gone through these feelings about the neurostim? I mean I have all tyhese fears people in my life will be like well, the pain can't be that bad, etc, etc. It really isn't the case. I have been feeling sicker physically because of the idea of it. I am also under a lot of stress in my personal life right now and just have a bad feeling about this whole thing! I hope to hear from someone who understands these feelings I am having. I am just looking at this spinal surgery lightly. ~Ann
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