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Tomorrow is my day!

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  • Tomorrow is my day!

    My surgery is at 8 a.m. and they said to be there at 6. It's a 90 min. drive so that sucks, but, I don't have to wait all day and I've had really restless sleep the last few nights.

    Last night because of my rolling around I got my catheter tubing all wrapped around me. As I was unraveling it came apart. I put my finger on the catheter quick and didn't have more than a drop spill out. However, I apparently didn't get it re-connected well and 2 hrs. later I awoke to being soaked in a wet nightgown, mattress and sheets etc. UGH. That made doing the Stim seem even more appealing.

    I've had a catheter in full-time for so long. They are going to leave my supra-pubic in the first week and remove it for the next week of the trial.

    I'm so excited because I want to have a normal life again and so terrified it won't work and I don't have any other options than full-time catheterization.

    Well in less than 24 hrs. I'll know something.

    I really appreciate all the information on this site.

  • #2
    Can't wait to here from you


    • #3
      I hope all goes well and you have great success. (((hugs)))
      'The will of God will never take you where the Grace of God will not protect you.'


      • #4
        Just want to wish you good luck tomorrow! I hope things go well for you and it brings you alot of relief!


        • #5
          Hi there wanted to let you know I have you in my thoughts and prayers today.
          I hope all goes well and you get relief with the stim.
          'The will of God will never take you where the Grace of God will not protect you.'


          • #6
            It's in!! I'm disapppointed that today my Dr. decided I should leave the catheter connected for 24 hrs. Feels like somebody said Sorry Xmas is tomorrow now.

            I was also really disappointed the Medtronic rep. didn't show. So my Dr. went over the unit and questions between surgeries and I was barely awake. He's supposed to call me tomorrow.

            I've also read several times that you don't have to feel the unit. But I can really feel mine and the dr. said I always will?? I have a lot of buzzing/vibration feeling on my labia from 12-4 o'clock, and when I turn the unti up my lower left leg buzzes.

            Can't sit any longer. thanks for the kind wishes.


            • #7
              I am glad the surgery went ok.. I hope it works for you..

              ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

              Link to Patient Handbook:

              Diet Reference Sheet:

              Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

              Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

              Meds I have Tried:
              Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
              Lexapro< Bad reaction to this med!
              Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

              Dx With IC in Nov 2006 with Hydro/Cysto
              Hydro/Cysto Caused Bladder to Rupture.

              Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

              ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


              • #8
                turn it down untill you do not feel it.. it can be .01 and work for you.. you dod not need to feel it for it to work.. more is not better.
                'The will of God will never take you where the Grace of God will not protect you.'