No announcement yet.

I'm Home!!!

  • Time
  • Show
Clear All
new posts

  • I'm Home!!!

    Hi Everyone,

    Well I am feeling a bit better today often then having to drive back to Toronto to have my pacemaker turn on and it is working great too ..
    Cindy I have my new remote, it is just that he did not have time to turn the pacemaker on yesterday after surgery...
    I have the same setting and everything is running good ...
    I only gone twice to pee since it has been on so it is working , hurrayyyyyyyyyyyyyy!!!

    My throat is so sore today from the tube and I could hardy talk so he was making fun of me about that ...
    Also the two interns that were in the surgery with me came to see me and we laughing about what it is like having my whole butt checks area showing , they just said that they were use to it and could not compare any of them to others..........yea I bet ,

    So I am in pain so can't sit long ,just glad that I am up and running again !!!

    Thinking positive has got me through to another day!!

  • #2
    back. So happy to hear that everything went well.

    They don't compare butts...Right *she says sarcastically*.

    Shopping??? Did someone mention shopping? I'll get my hat... ;-)

    Where I can be found most days.

    Link to the ICN Patient Handbook:

    Link to the IC Diet:

    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      I'm glad to hear everything went well Debbie. I hope you heal quickly!

      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus


      • #4
        back--side LOL I am so glad your doing great. Get some rest. you know the drill your an ole pro at this.


        • #5
          :woohoo: That's great news. Where in Toronto did you go .if I had known i would have taken the time to visit you.
          Hugs Sandra
          "Never Give Up."

          To view pictures of my creative interests and Maine Coon kittens click here:

          My Photobucket Link:


          • #6
            Hi Sandra;

            I had my surgery done at Toronto Western Hospital , that is the only place in Toronto that does the InterStim Implant .

            Well I am just resting today and not doing much at all, still in lots of pain but just love that I can drink all that I want and not have to pee all the time ...
            That is so a wonderful blessing ...

            Also Leslie, yes I guess I am the an ole pro at this, having this over eight years , I could not live with out it and I don't mind having the surgery as of the wonderful success I have had with the InterStim ...even if this is my third surgery at that ....

            Thinking positive has got me through to another day!!


            • #7
              I'm glad you're back!

              Stay safe

              Elmiron Eye Disease Information Center -
              Elmiron Eye Disease Fact Sheet (Downloadable) -

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help:


              Diet list:

              AUA Guidelines:

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              Anyone who says something is foolproof hasn't met a determined fool


              • #8
                welcome back, glad you are up and buzzing again
                how do you like your new remote? I go in on the 6th for the other 3 programs. I was supposed to go yesterday, but, I wasn't feeling well and neither was jake. I didn't want to and rush them so I could just get out and go hme.
                'The will of God will never take you where the Grace of God will not protect you.'


                • #9
                  I'm so glad your ok! I'm home now too. My pacemaker works even better than the trial. I hardly feel it anymore(the stimulation) I'm quite sore, but I think I will leave work early today! I am so glad we all got through this in one piece. It is such a miracle!:woohoo:

                  IC diagnosed officially via cysto/urodynamics 1/26/07

                  Grade II Endometriosis diagnosed via lap 12/11/07

                  "Fall down seven times, Stand up eight."

                  "Life is a tragedy for those who feel and a comedy for those who think."

                  Current Treatments:
                  Interstim Since 5/25/07!
                  Birth Control


                  • #10
                    I am glad you are back and I hope you continue to get better each day.

                    Take care, Trishann


                    • #11
                      Debbie I am glad you are home and doing well. I know about the throat thing. Mine hurt real bad for about 3 days afterwards....I hope it continues well
                      God grant me the serinity to withstand the days ahead!!!

                      My myspace link...


                      In Memory of My Father (Lawerence) 1/25/2007

                      Interstim Sept 2001
                      1st InterStim Removal May 2005
                      2nd Interstim Implanted May 2005
                      2nd InterStim Removed March 2007
                      Hysterectomy 1999
                      Tubes Tied 1997
                      C-Section 1996

                      Me and my kids

                      Taylor (my daughter) Me and my daughter My son Cody and Taylor


                      • #12
                        Debbie I'm so happy you're home and everything is working great for you! Hope the pain passes quickly. What kind of pain management did they prescribe for you?


                        • #13

                          I hope you feel better soon.
                          Take care xxx
                          I have had IC and PBS for 20+ years.
                          Tried every medication I can think off.
                          Had a Clam Cystoplasty with Mitrofanoff in November 2006.
                          Had a Total Cystectomy, with a neobladder, Urethradectomy and Mitrofanoff review, also had a peristomal hernia repaired.
                          4th october 2007.

                          Check out my profile on
                          if you want to know more about me.


                          • #14
                            Hi tacy99;

                            He put me on Ratio-Lenoletec #3 codeine 30 mg, other words Tylenol with codeine which I am one not to take pain meds , I only used it if I really need them as I can tolerate the pain really good ...
                            I am also on Cephalexin 500 mg
                            Thinking positive has got me through to another day!!


                            • #15
                              Hi Debbie,

                              I'm so happy for you. Sounds so cool that you just kind of picked up from where you left off before the battery went. Like you, I've said it before but going through the surgery was well worth it. A few weeks of pain is no sweat compared to the daily bladder issues before. I wondered if they put you on the antibiotic- i see he did. I think your pain threshold is better than mine. i had been on tylenol #2 i think but they didn't help at all. Indomethacin was the magic pill for me but i didn't get groggy on it like the tylenol #2.

                              You know what is crazy, I'm looking forward to the surgery more than the period of time when my neurostimulator battery dies and I'm waiting for a new one.

                              Keep taking care of yourself. Deb, i don't know about you but to my knowledge, there were no interns who did the surgery- i never saw another doc except the anesthesiologist (there was an emergency so my surgery was delayed like 7hrs or so). Dr. H took some great care in the stitching. Early on, i got some compliments on my scar- they asked me if i had a plastic surgeon. As far as i know, it was just Dr. H but he made sure that i still had a sexy bum.