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  • Anxious!

    Tomorrow at 8 a.m. I'm having stage one repeated. The Dr. will take out the current trial lead and put new stuff on the other side. I really want this to work! Peeing problems and pain interfere with every aspect of my life. I can't stand the site of seeing my family and friends dissappointed with another failed treatment.

    The Dr. didn't sound real hopeful, but thought it was worth a try on the other side. I was awake until almost 5 a.m. (last night, this morning) I'm going to call my Dr. today and ask for an Ambien. I'll have to take it early as we'll need to be up before 5 a.m. tomorrow. I guess that I'll get a lot of sleep tomorrow. Last time the surgery was about 2 hrs. and then it took me over 3 hrs. to wake up enough to move to recovery 2. My poor husband hates sitting around then for so long. Poor guy. Through this I've seen how much he really loves and cares about me. And when I'm better, I'm going to have sex with him as often as he wants :-)

  • #2
    Hey Tacy

    Good luck tomorrow. I know exactly how you feel. I am anxious too. Trying everything I can to keep my mind off, but here I am. This is the best medicine, talking to others that have been through it. I don't think I will be sleeping much tonight either. Again, good luck tomorrow. I'll be thinking of ya. We'll swap stories soon. I wish you the best.



    • #3
      HI! Just saw your post......good luck with the surgery! I hope all goes well this time.........Best wishes! Roxie

      Double Spinal Cord Stimulator surgery 8/09
      Unsuccessful MiniArc sling surgery 12/07
      Dx'd Hypothyroid
      Dx'd Chronic Axonal Neuropathy & Myopathy
      June 2007
      Dx'd IC May 2006 (after suffering for 25+ yrs!)
      First Cysto 1979
      First Hydro 1981 (Many treatments since then!)
      Collagin"Durasphere" injections for urethra
      Gall bladder surgery Aug. 2004
      Gastric Bypass Dec. 2004
      Dx'd: Barrett's Esphogus July 2004
      Dx'd: Vaginal Atrophy 2005
      Bladder surgery 2000
      Dx'd: IBS 2000
      Hysterectomy (fibroids) 1999
      Laminectomy 1989
      Dx'd: Degerative Disk Disorder 1989

      For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
      I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra's amazing stuff!!:woohoo:


      • #4
        I'll be thinking about you tomorrow --- and hoping all goes well.

        Warm hugs,
        Stay safe

        Elmiron Eye Disease Information Center -
        Elmiron Eye Disease Fact Sheet (Downloadable) -

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help:


        Diet list:

        AUA Guidelines:

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Anyone who says something is foolproof hasn't met a determined fool


        • #5
          Good luck! Be sure to let us know how it goes.

          Diagnosed August 2001

          Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

          Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

          I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.


          “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

          “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy