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  • Where do you live - Interstim

    I'm just curious to find out where everyone lives who has had Interstim implanted. I live in the Raleigh/Durham area. It might be helpful in helping others find a reputable interstim doctor if we all share where we live.
    Feel Free to Private Message me or E-mail me at
    [email protected]


    Altough I have had IC symptoms in the past my main issue is urinary retention - I am DESPERATE for an answer. I have to self-cath every time I go to the bathroom and have been since 2000. I feel helpless. Any advice would be appreciated.

    --------------------------------
    Interstim Trial on 12/21/07 - Didn't work so no InterStim for me

    Tried:

    Worked - Ditropan 15mg (and helps you sleep!) Off it now though

    Didn't Work - Vesicare, Enablex, Detrol

    Macrobid 50mg/day for to ward off infections
    Self-Cath (can't go on my own!) for retention
    Birth Control - Nothing- Quit Yasmin (It's a Diuretic!)


  • #2
    I am in michigan and my doctor is one of the top 10 in the united states of ic specialist.
    'The will of God will never take you where the Grace of God will not protect you.'

    Comment


    • #3
      I live in Ontario, Canada and my doctor is the only one that does this procedure in Ontario..
      Thinking positive has got me through to another day!!

      Comment


      • #4
        I live in Peoria Heights, Illinois...
        Interstitial Cystitis(Interstim Therapy)
        IBS
        Fibromyalgia
        Pseudotumor cerebri
        Type 2 Diabetes

        Comment


        • #5
          I live in Iowa

          Comment


          • #6
            I live in Massachusetts.

            Comment


            • #7
              Maine!!!!

              Erika
              IC diagnosed officially via cysto/urodynamics 1/26/07

              Grade II Endometriosis diagnosed via lap 12/11/07

              "Fall down seven times, Stand up eight."

              "Life is a tragedy for those who feel and a comedy for those who think."

              Current Treatments:
              Interstim Since 5/25/07!
              Birth Control

              Comment


              • #8
                I find support group leaders and their members are great providers of this sort of information. Go to both the ICN and ICA lists, then call all of the groups in your state and ask this same question. Thought it might help you with your research. These groups are great and want to help others with IC.

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                Originally posted by Shana1234 View Post
                I'm just curious to find out where everyone lives who has had Interstim implanted. I live in the Raleigh/Durham area. It might be helpful in helping others find a reputable interstim doctor if we all share where we live.

                Comment


                • #9
                  Winston-Salem, North Carolina (but my doc is in Greensboro)
                  ****
                  Jen

                  *Diagnosed with severe IC in 2004
                  *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                  *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                  *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                  **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  Comment


                  • #10
                    West Virginia

                    Comment


                    • #11
                      sue bee from upstate NY, near the east end of Lake Ontario. My URO is from Syracuse. My implant was on 3/27/07. It has been very successful. After 15 years of heavy leaking, Bladder repair also, this is wonderful to be so dry.

                      Comment


                      • #12
                        Fayetteville NC, but my doc is in Greensboro, NC

                        Comment


                        • #13
                          Greensboro

                          Is your dr. in Greensboro named Bob Evans? My Uro in Raleigh said he is an IC specialist.
                          Feel Free to Private Message me or E-mail me at
                          [email protected]


                          Altough I have had IC symptoms in the past my main issue is urinary retention - I am DESPERATE for an answer. I have to self-cath every time I go to the bathroom and have been since 2000. I feel helpless. Any advice would be appreciated.

                          --------------------------------
                          Interstim Trial on 12/21/07 - Didn't work so no InterStim for me

                          Tried:

                          Worked - Ditropan 15mg (and helps you sleep!) Off it now though

                          Didn't Work - Vesicare, Enablex, Detrol

                          Macrobid 50mg/day for to ward off infections
                          Self-Cath (can't go on my own!) for retention
                          Birth Control - Nothing- Quit Yasmin (It's a Diuretic!)

                          Comment


                          • #14
                            Yes, I see Robert Evans in Greensboro. He is a very well-known IC specialist; he treats patients from all over the country.
                            ****
                            Jen

                            *Diagnosed with severe IC in 2004
                            *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                            *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                            *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                            **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                            Comment


                            • #15
                              I, too, see Bob. He is great! Couldn't ask for a more competent practioner.

                              Comment

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