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My dr. is wanting me to restrict my fluid intake to less than 64 oz. per day. I'm wondering those of you with frequency and the Stim or not, how much do you drink and how many times to you void? Thanks
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I drink six to eight cups per day, usually a little over six. I usually urinate eight to ten times a day. When I'm flaring, it's much more often.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
Some days I only drink 1 cup of liquid. Others maybe 4 cups. I don't know how many times I void anymore. Stopped keeping trackComment
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Mary, you really need to increase your fluid intake. Concentrated urine is far more painful than diluted urine.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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I drink eight glasses of water a day..
With the stim is all depends, some of us are different again, I urinate maybe 4 to five time a day ...
DebbieThinking positive has got me through to another day!!Comment
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I drink probably 64 ounces a day. With Topamax and that amount of water, I urinate between 2-3 times a day, in a flare, upwards of 10+.Comment
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I drink about 5 cups of fluid a day, void 8-10x a day.
I'd like to drink more, but if I do, I'm in the bathroom all day long, which doesn't work for me as a teacher. I try to time the fluids to work well with the schedule, like small sips throughout the day & more when the students have gone home. And of course, I try not to drink too much before bed or I'll get no sleep. Grr.
Sigh, who'd have ever thought that one of the reasons teachers love summer vacation so much is being able to pee whenever they need to....Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
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Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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Kadi, I totally understand the teacher bit. I'm a private music teacher now in my home studio and am thankful every day I'm not in the school system. I would of had to quit my job.
Moonheart, does Topamax reduce daily voids? I'm not familiar with that med.
Since I have an indwelling catheter and even before that frequent infections I am supposed to drink a lot. I also find it so helpful in maintaining a recent weight loss. Damned if you do, damned if you don't.Comment
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I'm finding that it does. It also has taken away all bladder pain. Except for infrequent flares. Then I have more frequent voiding and bladder pain no matter what I eat or drink. It's also caused me to lose in the vicinity of 50+ pounds in 5-6 weeks. Which is helping the IC as well. There are several here that are trying it and several threads tracking their progress. You may want to check them out.
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WOw - more power to any of you able to drink 64oz cups a day. I drink anywhere from 30-40oz, and was in the bathroom 20-24x/day. Just got the final Interstim implant, and I'm down to about 10 - will go for a re-program in a week and hopefully will go even lower. Incision is pretty painful, but if it works...for those who questioned the scar, it's only one incision, and then a few tiny "vampire bites", as I call them, where they inserted the leads.Comment
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i drink anywhere from 64-100oz day but trying to do a bit less. i only weigh 81lbs so i'm techincally supposed to only drink about 40-50oz (1/2 your body weight).
as for how many times i'm voiding lately...? let me count...20+. at LEAST 20, sometimes 30-40.
i need to find a new urogyn...(Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).
Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).
I'd like to be on House, MD as a medical mystery.
Married to Craig, a saint amongst men...who puts up with me and my eccentricities...
Connor & Mommy by the tree:
Connor with Santa...so happy!
I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!
Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...
I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!
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fLUID INTAKE
I drink about 32 to 40 ounces a day. Unlike what some other people experience, I find that if my urine is clear that I have a lot more problems with pain and spasms. It shows we are all different.Comment
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