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I've been using a TENS from my physical therapist and it helps me a lot. She gave me info on a Zimmer MedizinSystems unit that's only $49.50 plus the cost of electrodes. It'd be cheaper than the units they rent or sell there since my insurance doesn't cover all the cost. She said some other patients have liked these and I'm hoping someone out there has experience with this company. Thanks...Sue
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3/06 IC symptoms began immediately after endometrial ablation procedure called NovaSure
5/07 IC diagnosed by cystoscopy with hydrodistention finally after 14 months of doctor's appointments and pain
Medications: Elmiron since 8/07, Atarax, Synthroid & Cytomel for low thyroid, Lisinopril for high blood pressure, Xanax for anxiety as needed, Vitamin D 50,000 units once a week
Supplements: MSM/glucosamine, Quercetin, Desert Harvest Aloe Vera, Flora Biotic 16, Magnesium, Citracal, B-complex
What's worked: IC diet, physical therapy for pelvic floor dysfunction, TENS, rescue instillations and acupuncture -
How does it help you?
Thanks! -
I don't know much about this device. Maybe some of the other members on here will know about it.
KaraComplex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.Comment
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How TENS helps me
Since I've been faithfully following the IC diet my frequency/urgency isn't much of a problem now but I have burning vaginal and rectal pain. It varies in intensity from day to day but is always there. The TENS has cut down on the pain level considerably. When I feel the electrical sensations it feels like my muscles are relaxing and letting the pain go away. I'm not sure how it works but it does work for me. I have pelvic floor dysfunction and have been lucky to find an excellent physical therapist to work with.3/06 IC symptoms began immediately after endometrial ablation procedure called NovaSure
5/07 IC diagnosed by cystoscopy with hydrodistention finally after 14 months of doctor's appointments and pain
Medications: Elmiron since 8/07, Atarax, Synthroid & Cytomel for low thyroid, Lisinopril for high blood pressure, Xanax for anxiety as needed, Vitamin D 50,000 units once a week
Supplements: MSM/glucosamine, Quercetin, Desert Harvest Aloe Vera, Flora Biotic 16, Magnesium, Citracal, B-complex
What's worked: IC diet, physical therapy for pelvic floor dysfunction, TENS, rescue instillations and acupunctureComment
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i've been having horrible burning pain that my normal meds are no longer helping. i WANT to try a TENS so bad!diagnosed IC Jan 2007 (though i feel i've had it mildly for years)
frequent UTIs
No frequency, just urgency and pain!
tramadol 50mg twice a day. this stuff works good for nerve pain!!!! (update, i'm down to mostly one pill a day now!)
Physical Therapy. if you have pelvic nerve pain or muscle pain, its worth a try. it helped me with the constant burning.
TENS may help a little
Cystoprotek might be helping as well. i'm getting better as time goes on and this could be why.
fish oil, herbal teas, skullcap (might try passionflower for nerves) I'm not very diet sensitive.
Went OFF elavil and nortryptiline (worked wonders, but didnt like the weight gain)Comment
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I got a TENS from TENSproducts
After doing some research I decided on a TENS 7000 from TENSproducts in Colorado. It cost $62.95 and that included shipping. I'm very happy with it. It sure helps my pain. Anyone with TENS questions, feel free to contact me...Sue3/06 IC symptoms began immediately after endometrial ablation procedure called NovaSure
5/07 IC diagnosed by cystoscopy with hydrodistention finally after 14 months of doctor's appointments and pain
Medications: Elmiron since 8/07, Atarax, Synthroid & Cytomel for low thyroid, Lisinopril for high blood pressure, Xanax for anxiety as needed, Vitamin D 50,000 units once a week
Supplements: MSM/glucosamine, Quercetin, Desert Harvest Aloe Vera, Flora Biotic 16, Magnesium, Citracal, B-complex
What's worked: IC diet, physical therapy for pelvic floor dysfunction, TENS, rescue instillations and acupunctureComment
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