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I have had around five to six weeks of Transcutaneous Electrical Nerve Stimulation. At least I think it is the same thing from what I have read. My Ur doctor didn't call it this they call it Pelvic Muscle Therapy. I haven't seen any improvement. Can anyone else out there tell me about there experience with this type of treatment. How fast did you begin to see improvement?
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I wish i new you might want to ask your uro on this i personnally am on DMSO treatment.
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Thank you Linda. I am currently getting the Rescue treatments. These have not done anything for me either. This treatment seemed to make things worse. I had I believe six of these treatments done and have decided to wait a little while. I am having some test tomorrow ( my paperwork is in my car on what it is called) where they fill my bladder to see how much it will hold and how much I can empty. They are also doing another Cystoscopy. The last one showed an ulcer and then a week later when I had one under Anesthesia with a different doctor he couldn't find it. So I am really hoping that this shows something.Comment
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Ic
I wish you well keep me posted.
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Motheroffour, how are you doing now and did the T.E.N.S. help any? I had my first PT visit yesterday and she, too, recommended this. Haven't started on it yet, though. She said it could be very helpful with overactive bladder, frequency, as well as pain. I don't have a lot of pain other than burning on and off; my main symptom is feeling like I have to go all the time.Pam
Diagnosed with:
IC September 2009 (symptoms are frequency all the time and some burning)
Graves' Disease June 2006 (thyroid issue)
Sleep Apnea February 2007
IBS-C so long ago I can't remember
HBP
Total hysterectomy 2015 (pre-cancer)
Meds/Treatments:
CPAP Machine (for sleep apnea)
Uribel
Metoprolol ER
Synthroid
Linzess and Magnesium for IBS-C
Love my furbaby, Turtle! Comment
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I have a TENS unit that I originally got for shoulder pain. I have also used it for IC pain at times and it's effective to a certain degree --- some find it a life-saver. Do you have a TENS unit that you use most of the time or is it something that's just used during PT?
DonnaStay safe
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Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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I had my TENS treatment at the office once a week for four weeks. I was also having Rescue treatments twice a week at the same time. I really don't think that I have IC. So I don't want anyone to think that these treatments will not work for them. I mainly have pain and burning 24/7 in my urethra. I completed what they wanted me to do with the TENS treatments, but I did stop the Rescue treatmenst after the fourth one. The Rescue treatments made me very uncomfortable. When I mentioned that I had an awful burning after words for a few days they said they have never heard of that and wanted me to proceed. I also got an infection after the last one so I finally decided that I had had enough and stopped them myself.Comment
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I did TENS therapy treatment for several weeks in PT. It didn't help, but when we started PTNS, that did help. It is similar to TENS, but it uses a needle that goes in your ankle in order to stimulate the tibial nerve that goes up to your bladder. That helped me a lot. I think TENS does work for some people, but not all. But with both TENS and PTNS it takes several sessions before any improvement can be seen.Update! Feeling much better these days and no longer on any meds!
Pelvic pain began July 2008. Urinary frequency began in November of 2008. IC Doctor says I'm one of the worst frequency patients he has had.
Things that helped me the most: IC Diet, Elavil (30mg), Elmiron since June '09 (500mg/day).
Previously tried and quit: one series of six instillations, Neurontin, Ditropan, Oxytrol, electric stimulation to the pelvic floor, Desert Harvest Aloe, Cystoprotek and Flomax, Hydroxyzine (50mg), Alesse Birth control (this helped my period flares when my symptoms used to be bad), PTNS (I think this helped).
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I have never heard of PTN's, are those done by a doctor? I have another doctor appointment next week and I am going to come in with as much information as I can.Comment
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