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  • Interstim

    Hello! Happy Saturday!
    Does anyone know the success rate of interstim for pain? My uro said there's a 1 in 3 success rate with it but I think that could have been for helping with frequency. Any input is helpful. I am getting my trial one input in Nov. (so long to wait boo )cI can only see 2 posted treads on this. It's tough for me to navigate the site on my phone (just me not a problem with the site) but I can't access a computer right now.

  • #2
    Re: Interstim

    Everything I have read indicates that the interstim helps with frequency, but not necessarily with pain. You still have some time to research and I think that would be a good idea. Interstim is not usually considered for IC until other treatment options have been tried and failed. I suggest you read the AUA Guidelines For Treatment at the link in my signature below. You may get some ideas for other things you can try.

    Sending warm hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      Re: Interstim

      I have heard 70% for people with frequency. To me that sounds pretty high, but I also know there are a lot of people who have issues with the surgery and device and latter file with FDA. Kind of scary!
      ----
      Diagnosed Nov 14 via hydro with cysto
      --
      Tried and Didn't work:
      -Hydrodistension
      -Oxybutinin, Troviaz, Vesicare, Cyrotec, Trumadol, cimedidine, myrbetriq, sancuria, imetidine
      -Tried DMSO instill twice and could not hold it for more than 15 min. Put me in 10/10 pain for days.
      -Tried Elmiron
      -Pelvic floor therapy for 2 months Returned this month
      -Interstim Advanced Trial, Pudendal Interstim Trial
      -Gabapentin cream for VV
      - Botox in the pelvic floor & Bladder, Pudendal Nerve Block

      Tried and did work:
      elavil for pain only 25mg a night
      Trying: psychological therapy, doxepin 25mg at night
      Diagnosed:
      PFD, Vulvar vestibulitis, IC

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