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Did elavil help you?

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  • Did elavil help you?

    Hi everyone,

    I have been taking elavil for 6 weeks now (up to 30 mg/day now).

    For those of you that had success with elavil, how long did it take before you had improvements and at what dose? (not sure anymore if you can post dosages or not).

    For those of you that elavil didn't work for, how long did you give it a try before you stopped it?

    I wish it was working better. My frequency, urgency, pressure and pain are still bad enough where I need pain meds more often than not.


  • #2
    Hi Nicole, Pre-Neurontin, I needed 75mg. Elavil for pain & freq. This dose caused side affects and luckily was able to reduce to 25mgs when I started Neurontin.


    • #3
      I took it about 3 months and it just made me mean.. it did not help me sleep or any pain.. hope iit works for you
      'The will of God will never take you where the Grace of God will not protect you.'


      • #4
        Elavil is the only thing that worked for me and I tried it all. I took 50 mgs for 3 months and it was like a miracle. That was 4 years ago--I am now down to 10 mg. It made me real tired in the beginning and I almost stopped taking it but glad I didnt. It made me mean too Brat but then I always am (ha).


        • #5
          Hi Nicole,
          The elavil @ 25mg didn't help me at all. I kept up with it for 2 1/2 months. After alot of sleep and 20 extra pounds with the stuff, I stopped taking it. I just couldn't tell a difference.
          Maybe if I had asked the uro to up the dosage it might've worked. Who knows. Now I'm trying to lose the extra weight so I'm afraid of the side effects again.
          I hope it kicks in for you and you get to feeling better!!! grouphug
          Tons of support,

          IC angel helping families in need for the holidays. [email protected]


          • #6
            Hi Nicole, I have been on Elavil for about a year and a half now, and it has helped me a lot, I take 25 mgm a day, just before I go to bed, and so far so good. I have gained weight, but I also eat more than I should, I know that, and I am slacking on the exercise side. I honestly cannot remember how long it took to work for me, as I was tried on so many different things that did not work. Elmiron does not work for me, tried Lexapro and that did not work, I cannot take Percoset or Vioxx, or Vicoden, makes me terrible sick, so we ended up with Efferxor XR, Elavil and Ambien, like I said so far so good, its been just under two years.Hope you find the right meds tohelp you out, take care and hugs Iris. hi grouphug
            Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.


            • #7
              Hi there,
              Elavil 10mg & Ditropan 5mg together- I take them an hour before bedtime & can sleep for 7-8 hours with only one to two awakenings to use the restroom. Before these meds - I was lucky if I could sleep an entire hour.

              It's partial success. I still feel like I have to pee all the time during the day (usually try to ignore it, because peeing doesn't make more than a 5 minute difference), still can't wear pants, have a very restricted diet, put a folded scarf under my seatbelt in the car and am very upset about all of it.

              But, I am grateful for the sleep these two meds gave me -I was so sick before them, I couldn't work. I'm currently uncomfortable all the time, but functional.

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
              Source - Pinterest

              Current treatments:
              -IC diet
              -Elavil 50mg at night
              -Continuous use birth control pills (4-5 periods/year)
              -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
              -Pyridium if needed,
              -Pain medicine at bedtime daily, as needed during the day several times per week
              -Antibiotic when doing an instillation to prevent UTI
              -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
              -Dye Free Benadryl 50 mg at bedtime
              -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
              -Managing stress= VERY important!
              -Fur therapy: Hugging the cat!


              • #8
                Thanks for your feedback everybody!

                I thought it was interesting that some of you thought the elavil made you "mean". I have felt more irritable lately, but thought it was more related to feeling crappy. But maybe elavil is contributing factor.

                It seems my frustratin tolerance is really low right now. I'm hoping that will improve as I start to feel better.

                I am also planning my wedding, so I am super stressed.

                Thanks again and I welcome more posts!!



                • #9
                  Hi Nicole,

                  You and I have talked about this some backchannel, but yes, Elavil helped me so much! I'm taking 25mg at bedtime and I rarely ever get up at night now. The bladder/vulvar pain I was experiencing is gone unless if I'm in a bad flare, which doesn't happen unless if I've eaten/drank something I shouldn't have or overdid it in the romance department (too much of a good thing, I suppose...) lmao

                  Elavil didn't make me mean -- just groggy in the morning (sometimes still does if I take it too late and then don't get enough sleep.)

                  "You must be the change you want to see in the world." - Mahatma Gandhi

                  "The most important medicine is tender love and care" - Mother Teresa

                  Proud mother of Ahleia, born on April 9, 2007

                  Diagnosed with:
                  IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!

                  Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35

                  Health treatments/practices:
                  Kripalu yoga, Chiropractic, Massage therapy and Reiki


                  • #10
                    Hi Nicole,
                    Elavil has helped me alot. I've been taking it now for about 3 years. I did notice a little weight gain, but not much. I get up alot less at nite now.


                    • #11
                      Hi! Well color me a newbie at Elavil, I've only been taking it for 3 days! I am very sensitive to meds..and was told to take 10 mg at night. I was a complete zombie during the day, even at this low dose! So I cut back to 5 mg for now, until I build up a better tolerance for it. I bought a nifty little pill cutter at Walgreen's, it works great! Of course, you should always advise your doctor if you are changing your dosage, which I did. I did not want to stop taking it though..because it's helped me alot already! I am so shocked! I just had a colonoscopy on Thursday, and started it that same night. Normally, I would be in a major flare right now, from drinking all the Co-Lyte (prep for procedure) plus stress from last week. I feel some twinges and pressure but the pain is much better..and my vaginal pain is almost gone! I hope things stay this way..I can deal with some sleepiness during the day, and I have not had any appetite increase so far. In fact, my appetite has been much lower these past 3 days. I guess only time will tell. Oh, and I hope it does not make me mean...part of the reason I went on it, is because I was becoming a big fat troll from my pain! I was depressed and angry from hurting so much. Just wanted to share my experience so far....take care!
                      "She stood in the storm, and when the wind did not blow her way, she adjusted her sails." -Unkown

                      IBS/Endometriosis/Prolasped Uterus/CFS, ME/Fibromyalgia/Refractory IC/Celiac Disease/Autonomic Nervous System Dysfunction (Immune System issues) B12, Vit D deficiencies

                      Many surgeries over the years, mainly: Total hysterectomy/Gallbladder & Thyroid removed

                      Treatments: Tried all except Interstim, Botox injections and bladder removal. I've never been in remission.

                      Daily-Prednisone steroid down to 3mg long-term, Demerol 50mg, Diazepam 2mg
                      As needed-Home TENS unit, AZO Standard, Marshmallow Root Capsules, D Mannose powder, Prelief. STRICT IC DIET or I'm bed ridden. I'm under the care of a Pain Management Clinic.

                      Was on SS Disability for IC 2004-2006. Back to work 10 years. Annnnd-My bod gave out. Back on Disability as of Aug 2016. WE NEED A CURE!!