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  • Elavil and weight gain

    I have been taking 10 mg. of Elavil for about 2 years now and it has helped me so much but I can't stand the weight that I have put on. I have gained 25 to 30 lbs in this time. I am not over weight for my height 5'10" and 165 but I am so miserable that I can't stand it . I don't eat anymore than I did when I started taking the Elavil but I just keep gaining weight. My husband told me he thinks I am fine , that he just wants me well and if a few pounds goes with it, not to worry. But to tell the truth it is bothering me. Please let me know if you have found something that will help take the weight off because I have quite taking the Elavil for about 2 weeks now and I am noticing a few problems. I also have been on Atarax for 3+ years. I have taken Elmiron when I was first Dx'd for about 1 1/2 years and then came off it. I also worry about taking Atarax long term because everything says to only take it for 4 months????

  • #2
    I noticed the weight gain too. I gained 20lbs in 4mos!!!! Like you, I'm not severly overweight, pretty much average, but it bothers me so bad. I've cut back on calories and been working out more, but so far in the past 6wks I haven't lost a single pound!!! It's really frustrating, but I don't know what else to do, the Elavil has really made me feel so much better. I'll be going off of it though in the next month or two cause my husband and I are going to try to have a baby. Hoping I'll lose a few pounds before I get pregnant.

    Comment


    • #3
      Thanks Meme for the reply I have cut way back and walking daily, I am going to try and stay off it and see if I do alright. I noticed from your pictures you were on a cruise. Where did you go and what cruise line? I know you had fun, we went on one in Oct '06 to Cozumel on Royal Carriabean and we had a blast. Hoping you have a pain free day.


      Charlotte

      Comment


      • #4
        Before my IC diagnose I was taking Elavil for migraines and I gained around 40pounds on this medicine. And I was totally miserable. For me I weighed the option weight gain or migraines and the vain self in me one. I stopped it. Thankfully I dont have the mirgraines like I was, but for me it took a while to get it off. I have lost around 30 pounds of it. But for me it seemed harder to lose this weight than even baby weight. One thing I know that helped me out was water...
        God grant me the serinity to withstand the days ahead!!!

        My myspace link...
        www.myspace.com/patricia_luvs_matt


        Patricia

        In Memory of My Father (Lawerence) 1/25/2007

        Procedures:
        Interstim Sept 2001
        1st InterStim Removal May 2005
        2nd Interstim Implanted May 2005
        2nd InterStim Removed March 2007
        Hysterectomy 1999
        Tubes Tied 1997
        C-Section 1996


        Me and my kids


        Taylor (my daughter) Me and my daughter My son Cody and Taylor

        Comment


        • #5
          Hi Patricia, I am glad to know someone has actually lost some weight :woohoo: after elavil, good for you. I have been off for about two weeks now. I thought yesterday that I might have to go back on it because I had some burning but I drank some baking soda and water and it helped. I have felt normal for a while now and the burning is trying my patience.....but I will get through this I hope. I really think the elavil was making me tired and all also, so I hope that gets better. I hope you are having a pain free day.

          Comment


          • #6
            HI Charlot,
            I gained about 10 pounds after around 4 months on Elavil (20mgs) Not as much as others, I know but it did bother me. And I am lucky like you to have a hubby that loves me even though I am 20 pounds heavier than when we met (he says I was "too Skinny" back then) My pain is so bad that any exercise beyond relaxation exercises and very simple basic yoga is too much. I recently switched from Elavil to Nortriptyline b/c the Elavil was making me so tired reguardless of what I tried. I no longer have the overwhelming hunger pains and sugar cravings at night and have lost 5 pounds now in just over a month off of the Elavil. It helps with the pain just as well, I only get up a few times at night instead of over 6 without and I am no longer ready for a nap at 11:00 a.m. Sometimes by 4:00 p.m., but that is so much better!
            Hope you continue to find ways to feel better about yourself! You deserve it!
            Rachel
            DX's:
            IC; PFD; possible Fibromyalgia; IBS;

            Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

            I've Tried:
            three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
            Currently using:
            Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
            Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
            I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

            Comment


            • #7
              HI! I've gained weight on Elavil too and it really sucks! My dr. told me early on that Elavil, taken in low doses, causes weight gain. What a crappy exchange....less IC pain for weight gain! I had gastric bypass 3 years ago and lost almost 100 pounds......and now I'm gaining. Life is not fair! Roxie

              Double Spinal Cord Stimulator surgery 8/09
              Unsuccessful MiniArc sling surgery 12/07
              Dx'd Hypothyroid
              Dx'd Chronic Axonal Neuropathy & Myopathy
              June 2007
              Dx'd IC May 2006 (after suffering for 25+ yrs!)
              First Cysto 1979
              First Hydro 1981 (Many treatments since then!)
              Collagin"Durasphere" injections for urethra
              Gall bladder surgery Aug. 2004
              Gastric Bypass Dec. 2004
              Dx'd: Barrett's Esphogus July 2004
              Dx'd: Vaginal Atrophy 2005
              Bladder surgery 2000
              Dx'd: IBS 2000
              Hysterectomy (fibroids) 1999
              Laminectomy 1989
              Dx'd: Degerative Disk Disorder 1989

              For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
              I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

              Comment


              • #8
                Thanks girls for the post. I don't mean to sound vain about the weight I am more worried about my health and the weight, like cholestreol and stuff. I had a rough night last night I got up several times to go to the bathroom and with the elavil I could sleep through the night. Roxy what is the aleo stuff you are taking and where do you get it? I am looking for any natural relief that I can get. Hope you all have a pain free and good day. Any advice from anyone on what to do instead of the elavil would be appreciated.

                Comment


                • #9
                  HI! We just ordered our Freeze dried Aloe Vera this morning. We got it from the Desert Harvest website.....it's cheaper on their main website than here on the IC site store.....sad to say.
                  I haven't found anything that works better than Elavil. It really calmed down my bladder when it was spasming big time and causing frequency.
                  Good luck to you! Roxie

                  Double Spinal Cord Stimulator surgery 8/09
                  Unsuccessful MiniArc sling surgery 12/07
                  Dx'd Hypothyroid
                  Dx'd Chronic Axonal Neuropathy & Myopathy
                  June 2007
                  Dx'd IC May 2006 (after suffering for 25+ yrs!)
                  First Cysto 1979
                  First Hydro 1981 (Many treatments since then!)
                  Collagin"Durasphere" injections for urethra
                  Gall bladder surgery Aug. 2004
                  Gastric Bypass Dec. 2004
                  Dx'd: Barrett's Esphogus July 2004
                  Dx'd: Vaginal Atrophy 2005
                  Bladder surgery 2000
                  Dx'd: IBS 2000
                  Hysterectomy (fibroids) 1999
                  Laminectomy 1989
                  Dx'd: Degerative Disk Disorder 1989

                  For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                  I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                  Comment


                  • #10
                    Substitute

                    Sometimes they will substitute Klonopin for Elavil. Klonopin I dont think causes the weight gain, and the dose is usually low 0.5 but it supposed to help a lot with nerve pain like elavil. They also RX higher doses for restless legs and some types of migraines and seizures. One of main side effects is sleepy, which if taken at night isnt that big a deal.
                    Sammi

                    Sammi

                    Meds: Melatonin 3mg @ bedtime if needed. Estrogen 1.5 mg troche and 0.1 mg Estrace cream.
                    Diagnosis: IC, PFD (both in remission)

                    Comment


                    • #11
                      I've been taking Elavil for a couple of months now, and it's helping my IC pain and my vulvodynia, but I'm also gaining weight, and I've wondered if it is the drug itself or if all of you have found yourself eating more? I'm trying to watch what I eat, and I wonder if I'm just wasting my time and I'd gain weight anyway

                      Comment


                      • #12
                        Charlot its been hard loosing it, but dont feel vain about the weight. I thought about this myself along time whether or not I was vain for not wanting to gain anymore weight or migrianes. But I was miserable when I was on it and like you it made me tired to. Some say after a time that you get use to it and this goes away. I am fixing to try Cymbalta to see if it will help with my pain.

                        Pingpong, I did not find myself eating more, per say but I did find I craved sweets more and ate more of them, which I am not a big sweet person.
                        God grant me the serinity to withstand the days ahead!!!

                        My myspace link...
                        www.myspace.com/patricia_luvs_matt


                        Patricia

                        In Memory of My Father (Lawerence) 1/25/2007

                        Procedures:
                        Interstim Sept 2001
                        1st InterStim Removal May 2005
                        2nd Interstim Implanted May 2005
                        2nd InterStim Removed March 2007
                        Hysterectomy 1999
                        Tubes Tied 1997
                        C-Section 1996


                        Me and my kids


                        Taylor (my daughter) Me and my daughter My son Cody and Taylor

                        Comment


                        • #13
                          Elavil chemistry

                          I stumbled apon a website yesterday dealing with the chemistry of Elavil and how it changes the manner in which leptin works. That is probably the reason the weight piles on, and the sweet cravings develop. I wish I had bookmarked the site, but alas, I didnt.
                          There are other drugs out there that work on the nerves to calm them that dont cause weight gain. Even the new drug for RLS is said to help with other types of muscle spasms such as bladder, and PFD. At the present time there are no studies to back this off label use, just reports occasionally from people to their doctors. It does not hurt to try something else and see how it goes.
                          One poster said 0.5 mg of Klonopin really helped her.
                          Sammi

                          Sammi

                          Meds: Melatonin 3mg @ bedtime if needed. Estrogen 1.5 mg troche and 0.1 mg Estrace cream.
                          Diagnosis: IC, PFD (both in remission)

                          Comment


                          • #14
                            HI! That's very interesting about the Leptin/Elavil connection. I do have sweet cravings.......which is difficult for me since I had gastic bypass 3 yrs ago. I think I'll ask my IC specialists if he knows any other drug I can try instead of Elavil. Thanks for the info! Roxie

                            Double Spinal Cord Stimulator surgery 8/09
                            Unsuccessful MiniArc sling surgery 12/07
                            Dx'd Hypothyroid
                            Dx'd Chronic Axonal Neuropathy & Myopathy
                            June 2007
                            Dx'd IC May 2006 (after suffering for 25+ yrs!)
                            First Cysto 1979
                            First Hydro 1981 (Many treatments since then!)
                            Collagin"Durasphere" injections for urethra
                            Gall bladder surgery Aug. 2004
                            Gastric Bypass Dec. 2004
                            Dx'd: Barrett's Esphogus July 2004
                            Dx'd: Vaginal Atrophy 2005
                            Bladder surgery 2000
                            Dx'd: IBS 2000
                            Hysterectomy (fibroids) 1999
                            Laminectomy 1989
                            Dx'd: Degerative Disk Disorder 1989

                            For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                            I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                            Comment


                            • #15
                              I began Elavil 10 mg on 11/30/06. Although, I haven't gained any weight, I feel that I am soooooooo and I mean sooooooooooo hungry all the time even after eating. I am on the slim side and would like to stay that way. I was in constant pain for 4 months straight with burning until I started taking Elavil. For the first 3 weeks, I felt totally nauseated and wondered how people could gain weight. Then, the hunger pangs came in late December. I feel hungry even after eating. I mainly crave sweets. In fact, I put out a post on this topic.

                              Recently in the past week, I cut my Elavil in half and then every other day, I don't feel as hungry, but my burning has come back slightly.
                              bunnykinb

                              6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.

                              tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning

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