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For those of you who went off Elavil, did the weight fall off also or are you struggling to get it off?
Sammi
Sammi
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Sammi
Meds: Melatonin 3mg @ bedtime if needed. Estrogen 1.5 mg troche and 0.1 mg Estrace cream.
Diagnosis: IC, PFD (both in remission) -
Sammi,
How do you take Elavil as needed? I thought it takes about 2 weeks for it to start working?bunnykinb
6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.
tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning
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Elavil PRN
Yes, to get the full and constant benefit of Elavil you have to take it for about two weeks. If you take it PRN, as I do, it still acts like a muscle relaxant, and pain killer, but probably not as efficient as if I kept a level built up in my system.
Hugs,
Sammi
Sammi
Meds: Melatonin 3mg @ bedtime if needed. Estrogen 1.5 mg troche and 0.1 mg Estrace cream.
Diagnosis: IC, PFD (both in remission)Comment
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I stopped taking Elavil for 4 days and my burning came back full stream. I just took 1/4 tablet so as not to get so hungry, but 1/4 of 10 mg is not sufficient. I raised it to 5mg but still no help. Tonight, I'll try the prescription of 10 mg. I stopped it because I was tired of being so hungry.
In 4 days, I dropped 3 pounds. Since restarting and because of my burning, I haven't gained any weight but I noticed my butt still feels bigger.bunnykinb
6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.
tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning
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I use to take Elavil about 3 years ago and I gained 30 pounds, but as soon as I stopped it I lost 45 pounds... BUT within 9 months I was having full blown IC symtoms, and was dg shortly afterwords..I am back on Elavil and plan to stay on it... I have gained about 20 pounds and yes it upsets me..
But I will have to find othe ways to loose the weight, because I just cant handle the problems I have without taking it...Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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Hi everyone,
Can someone tell me if Elavil (Amitriptyline) the pill causes weight gain or is because a side effect which makes you eat more so you gain weight? Is there another pain medication anyone takes that doesn't have weight gain side effects? Sorry I am new to all of this and not sure what I need, I don't want to take Amitriptyline because I hear you gain weight but not sure why one gains weight with it. I have Amitriptyline now......but would rather find an alternative that doesn't cause weight gain........any suggestions would be greatly appreciated!! Thanks. ShelbyComment
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Dr Moldwin's book on Interstitial Cystitis says that Elavil causes weight gain due to increased appetite especially for sweets, but that it may slow the metabolism as well.
When I was on 10 mg for a year, I did not gain a pound. But when I went up to 20mg, I gained 35 lbs in 5 months. I got overconfident when I didn't gain on the 10mg & didn't watch myself closely enough on the 20mg. I have lost 12 of the 35 lbs and weight loss at this point is a fight. I used to be able to quickly drop a few pounds just by reducing desserts, but this is not working that way now.
I don't know how much of it is also though that I am much much more sedentary now due to the IC flares & my body fat is up to 40%, so of course it's hard to burn calories. It's hard to know if my metabolism has slowed since I got IC because of meds, lack of exercise, or just being 4 years older.
But it's no fun.
I do depend on the Elavil to manage my IC, so it has to stay. I just have to find some way to manage this weight thing while on it.
I would suggest to anyone who is considering starting Elavil, to keep a food diary for a week or so before starting, to have an idea of your normal portion sizes. And then after starting with the Elavil, monitor how much you are eating & weigh yourself at least once a week. Be careful. It's probably easier not to gain it than it is to lose the weight once it's on...
Hope it works out well for you,Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
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Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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