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Anyone else had this experience?

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  • Anyone else had this experience?

    I have had IC for twenty-five years, diagnosed just since 1997. I am very depressed right now, and have had the past experience of not being able to take anti-depressants. They make the IC much worse, and I have tried almost all of them out there. I know I need to do something about the awful depression, but I don't know what to do. I have an understanding dr., but she doesn't know what to try. Has anyone else had this experience with anti-depressants? I feel really alone... Thanks.


  • #2
    I am so sorry you are so sad. I can sympathize with your feelings. I wish I could give more advice than support. Have you tried actual Therapy like a shrink. If you get a good one they can sometimes be helful. Its a different perscpetive not emtionally invested in the situation and can sometimes provide clarity when you are feeling foggy and like I guess a good one is hard to find but someone here might know someone in your area. That is how I got the name of my URO/GYN. It can't hurt to try if you are at your bottom. Hope you feel better soon Message me anytime for support.
    Mia Sowell
    Fort Worth, TX
    2 Kids
    Ethan (3)
    April (17)
    Husband Eric (Very Supportive)
    Clinically Dxed 04-16-07
    Symptoms Since 2004

    Elmoron 400mg 2x Day
    Atarax 50mg 1x Day
    Xanex .50mg 8 hrs As needed
    Vicodin 5/500mg 4-6 hrs As needed
    Xanaflex 4mg 1x Day
    Urelief Plus 6 hrs as needed for Bladder spasms
    Prelief as directed


    • #3
      Have you tried Cymbalta? They have just found new research where it helps with depression.. It was invented to help with nerve pain but seems to help depression to.. I know it has helped me..

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

      Link to Patient Handbook:

      Diet Reference Sheet:

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


      • #4
        I am so sorry that you can't take anti-depressants. I also have this problem too. Sometimes it is so hard dealing with all the problems that goes along with IC.

        I have learned that if I can get a good night sleep that I feel so much better and able to tactle the low times. But when I don't get enough sleep it is so hard to conqueror anytime.

        I don't know if you can sleep well or not, but if not, there are things you can do.
        Someone made a list before, if you like I will try to find it if I can. You still will have your days but it does help. Maybe your doctor can help with it too.

        Sending hugs, Trishann


        • #5
          If you are interested go to the top of the page in the blue section, CLICK "Search" then type in "sleep hygeine routine", this will give you the information about getting a good night sleep.

          The only thing that I would not do is to get on the computer right before you are getting ready for bed. Something about your eyes being on the computer before bedtime will sometimes mess you up.

          Hope you start feeling better and your spirit will be lifted up.
          Sending hugs, Trishann


          • #6

            look into ATARAX
            its anti-anxiety & helps w/ IC
            i have been on it 2 has helped my anxiety greatly

            my bladder is ok too..but i attribute that to CYSTOPROTEK
            but maybe its both combined
            Quit ELMIRON due to hair loss
            Cystoprotek ROCKS!

            find me on FACEBOOK -
            search my email [email protected]

            Current Meds:
            AM Cystoprotek & ATARAX 50mg
            Dinner CYSTOPROTEK
            PM Elavil 25mg


            • #7
              so sorry you are feeling down. I am glad you are to be able to talk to us, as we understand. I take wellbutrin xl, have you tried that one yet?
              Please keep posting, it will help you greatly.
              'The will of God will never take you where the Grace of God will not protect you.'


              • #8
                Just thinking about you and hoping you were able to get help so you can start feeling better soon. I know sometimes it is so aggravating to try to fine out what will help us. Sometimes that help comes from doctors or sometimes even from people. Hope you keep searching for what you need until you are satisfy.

                Sending hugs, Trishann


                • #9
                  Sometimes it takes many tries to find an antidepressant that works well and is also tolerated. There are lots of them out there.

                  Warm encouraging hugs,
                  Stay safe

                  Elmiron Eye Disease Information Center -
                  Elmiron Eye Disease Fact Sheet (Downloadable) -

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help:


                  Diet list:

                  AUA Guidelines:

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  Anyone who says something is foolproof hasn't met a determined fool


                  • #10
                    Cymbalta is a good suggestion. It works on depression and nerve pain. My doctor took me off because I couldn't pee. I kept insisting it was the IC, but she wouldn't listen. Sure enough she was right. Not long after I was removed, I could pee a little easier. I'm not trying to discourage you, just make you aware of one side effect. It does work for pain and I would give it a try.

                    I suffer from depression, also. No one understands how debilitating it can become. My husband is always angry because he just doesn't get it. He's even suggested he doesn't want to be with me anymore. He says I'm not happy, he's not happy, and the kids aren't happy. I tell him that my depression is seperate from my marriage. But, I guess it affects everyone else.

                    It's so important to try to control the symptoms if you can find something.

                    If you want to talk message me.


                    • #11
                      I took prozac and birth control pills and it helped.
                      That has been a while ago.
                      past meds:
                      elmiron 100mg 3 x a day
                      cystoprotek 6 a day
                      elavil 10 mg
                      Femcon fe
                      non-shellfish vegetarian glucosamine HCL
                      750mg once a day


                      • #12
                        I also can't take antidepresants, not becasue of IC but because of my eyes are so sentive to medications. Right now I'm on a very small dosis of Elavil, started with 5 mg, uped to 15 mg and 20 mg. It gives me eye pain (bad) so I'm decresing it again to 5mg to figure if this is the cause of my eye pain I'll have to come out of it for a few days. I take it mainly for V V and I'll probbably have to start using Elavil cream (compunded) which is more expensive but it doesn't have the side effects...

                        before Elavil I as thinking to take a SSRI antdepresant to take care of the sadness that I've been dragging for over a yr, but I chose Elavil. If I come out of it, I'll give a SSRI antidepresant a try...not sure.

                        On the other hand, There are a few things that help me feel better:
                        Work (believe it or not, b/c it keeps me busy)
                        French Language Class
                        Music, reading and painting.
                        Boyfried, Friends & my dog.

                        I recently joined a Yoga class : Kundalini Yoga, it is the most spiritual of the yogas and it focusses on healing and breathing. It is said to help with depresion and restore the balance. The excercises can be a bit challenging for ICers but in yoga you can go at your own pace. I just went to 2 classes I felt so good after the class. I'm reading the book by Gurmukh, The 8 Human Talents, about Kundalini Yoga (less than $20) Please check it out.
                        Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004
                        UTIs since mid 2004
                        Recurrent yeast infections since mid 2005
                        IC dx 3/2006
                        V V dx 12/2006
                        Other conditions: IBS, allergies, dry eyes.

                        Current IC medications:
                        Elavil (since 12/06) 10 mg;
                        Cysta Q (since 5/07)
                        Rephresh acid jel every 3 days
                        D-mannose, fish oil, Calcium Citrate, Multivitamins & garlic pills (sometimes)
                        Probiotics Femdophilus or other brands
                        Gy-Na-Tren for yeast infections (started using it as needed since 2010)
                        Other Rx:Omeprazole 20mg; benadryl as needed, Restasis

                        Past Meds and why I stopped them:
                        Elmiron: March to September 2006: headaches
                        Lyrica:2 weeks in 2006: headaches
                        Cystoprotek: from Jan to April 2007: nausea

                        Femcon Fe (2/07 to 10/07):caused spotting/bleeding
                        BCP:Loestrin (since Ocotber 2007) to stop spotting for 2 months. V V worse. Stopped the pill in Nov 07.

                        "Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it"