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  • #1

    Do you THink a Uro would prescribe

    Elavil or Nortyptlilne for frequency and some pressure?. I don't really have much bladder pain. But, what seems to be UTI (which are negitive) come and go.

    I'm wondering if I should ask uro for these?? I'm currently on enablex, which only seems to help me at night time because I only get up once.

    Thanks.

    Tags: None
  • #2
    I was given Elavil to help my urgency/frequency. I had a problem with it and couldn't take it... so I can't tell you if it helped. Ultram has helped my urge feeling the most. It's still there and frustrating, but not quite as bad.
    [SIZE="1"][B]Be well, Alyssa :hi:[/B]

    [

    Comment

    • #3
      ditropan

      Ditropan helps me w/ frequency & urgency. I was skeptical as it is usually prescribed for overactive bladder but it did help me. Along with all the other junk I take, lol!
      Lee Ann
      Current Rx Meds:
      Atarax, Ditropan, Elmiron
      Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
      Hooray for babies!
      Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
      Didn't work for me:
      Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
      IC (Mod-Severe) since 1996

      UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).


      My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...

      Comment

      • #4
        Elavil worked wonders for me, but made me gain to much weight so the doctor took me off of it..
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


        Link to Patient Handbook:
        http://www.ic-network.com/handbook/

        Diet Reference Sheet:
        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment

        • #5
          I cant imagine why your URO wouldnt prescribe you one of these meds. Both, from my understanding, are fairly safe medications that prove helpful with managing IC symptoms.
          I personally have had success with Elavil.

          Take care
          Diana
          (\__/)
          (o.O )
          (> < ) This is Bunny. He's on his way to world domination.

          Comment

          • #6
            elavil

            Elavil did nothing for me except cause a 35 pound weight gain on my little 5 ft 2 body. And I have never even had a weight problem in my life. Losing the weight took me about 8 months. Ugh!!
            Lee Ann
            Current Rx Meds:
            Atarax, Ditropan, Elmiron
            Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
            Hooray for babies!
            Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
            Didn't work for me:
            Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
            IC (Mod-Severe) since 1996

            UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).


            My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...

            Comment

            • #7
              Help With Pain

              Hi all,

              I was doing really well until I went off amytripthylene 2 weeks ago. I gained 20lbs (5'2) and was sluggish all the time. My energy level came back but now in a BAD flare. I still take elmiron, Zertek for allergies, and ambian for sleep. Can anyone suggest something that stops the spasms without the weight gain? I need help today. I am scared of getting back to the way I was in January when I was first diagnosed!

              Mary
              Diagnosed Jan 07

              Stopped Elmiron due to hair loss @ 4 months

              Stopped Amitriptyline 25mg [email protected] months wt gain
              IC Diet
              Take 2 tablets cytroprotek daily WORKS GREAT!!!

              "I can't adjust the wind but I can adjust the sails"

              Mary

              Comment

              • #8
                Elavil helps many people with different kinds of pain. My husband takes a low dose (10 mg.) nightly for arthritis pain. I, on the other hand, cannot take it. I was on it for only a few days before my blood pressure shot up to dangerous levels so I had to stop it.

                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                 [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment

                • #9
                  Urine Change

                  My urine color has changed to yellow as Mountain Dew and I have had nothing but water since yesterday. My back and pelvic area are so sore. And I am super sensitive in vulvia area. It feels it has a heartbeat of its own!

                  I need some form of releif. I have left a voicemail for office nurse but I bet I get no reponse for a day or so. : (
                  Diagnosed Jan 07

                  Stopped Elmiron due to hair loss @ 4 months

                  Stopped Amitriptyline 25mg [email protected] months wt gain
                  IC Diet
                  Take 2 tablets cytroprotek daily WORKS GREAT!!!

                  "I can't adjust the wind but I can adjust the sails"

                  Mary

                  Comment

                  • #10
                    elavil rocks

                    but try CYSTOPROTEK
                    its available in the ICN shop.

                    its amazing w/ frequency

                    I, like you, have frequency...not much pain
                    Quit ELMIRON due to hair loss
                    Cystoprotek ROCKS!

                    find me on FACEBOOK -
                    search my email [email protected]

                    Current Meds:
                    AM Cystoprotek & ATARAX 50mg
                    Dinner CYSTOPROTEK
                    PM Elavil 25mg

                    Comment

                    • #11
                      Mary, I don't have anything that stops the "urge" feeling, but Ultram seems to dull it. I am now on Lexapro for depression (due to all this) and that seems to help a tad. I couldn't take Elavil due to a GI problem (it stopped all motility which was very painful). Lexapro or Paxil were the next drugs my doctor had in mind for me. Now, we're all different, but if you are depressed, see about getting something and maybe it will help. Paxil is know for its weight gain, but Lexapro is not as likely (some may). Again, Ultram helps me the most, but I'm afraid to become tolerant. I take it before bed because that is the only thing that helps me sleep. I am also on Atarax. While it doesn't seem to help my bladder, but my allergies are dramatically improved on it.

                      Good luck! Just talk with your doctor about trying meds. You may be limited due to other health situations, but these seem to dull my signals. I am hoping for something to stop it completely.
                      [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                      [

                      Comment

                      • #12
                        Originally posted by laker46580 View Post
                        Hi all,

                        I was doing really well until I went off amytripthylene 2 weeks ago. I gained 20lbs (5'2) and was sluggish all the time. My energy level came back but now in a BAD flare. I still take elmiron, Zertek for allergies, and ambian for sleep. Can anyone suggest something that stops the spasms without the weight gain? I need help today. I am scared of getting back to the way I was in January when I was first diagnosed!

                        Mary
                        have you tried atarax yet? it seems to be dulling some of of the pain. i also went off elevil because of weight gain and now my pain is coming back so i went on nortryptiline. it can also cause weight gain but seems to be less likely to do so. i have the option of going up on the nort but i dont want to gain weight, so im stopping at 30mg. but i kind of know i need more than that. i'm also starting cystoprotek to see if that gives me a boost.
                        diagnosed IC Jan 2007 (though i feel i've had it mildly for years)
                        frequent UTIs
                        No frequency, just urgency and pain!


                        tramadol 50mg twice a day. this stuff works good for nerve pain!!!! (update, i'm down to mostly one pill a day now!)

                        Physical Therapy. if you have pelvic nerve pain or muscle pain, its worth a try. it helped me with the constant burning.

                        TENS may help a little

                        Cystoprotek might be helping as well. i'm getting better as time goes on and this could be why.

                        fish oil, herbal teas, skullcap (might try passionflower for nerves) I'm not very diet sensitive.

                        Went OFF elavil and nortryptiline (worked wonders, but didnt like the weight gain)

                        Comment

                        • #13
                          Originally posted by laker46580 View Post
                          Hi all,

                          I was doing really well until I went off amytripthylene 2 weeks ago. I gained 20lbs (5'2) and was sluggish all the time. My energy level came back but now in a BAD flare. I still take elmiron, Zertek for allergies, and ambian for sleep. Can anyone suggest something that stops the spasms without the weight gain? I need help today. I am scared of getting back to the way I was in January when I was first diagnosed!

                          Mary
                          Mary, My doctor gave me something called urospaz. I took 2 doses but couldn't tolerate it (stomach problem). It is supposed to help spasms. Other than that... Atarax? Heating pads/cold compresses? Anticholinergics like Ditropan or Detrol or Vesicare...

                          I wish I could help you! Sorry that you feel so bad!
                          [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                          [

                          Comment

                          • #14
                            Elavil and Nortriptyline are my saving grace, couldn't live without them for the pain and spasms of the bladder!!

                            Comment

                            • #15
                              Elavil has changed my life , it only took about 2 weeks to work and I feel like a new person. About the weight gain it doesn't happend to everybody I'm loosing weitht on it. Good luck
                              :Loren

                              Current Meds
                              Elmiron 300mg tid
                              Elavil 25mg at hs
                              Atarax 50mg bid
                              Tramacet as needed
                              Vitamin D 2000 iu bid
                              Gabapentin 300mg tid
                              Uracyst instillatons one a month

                              Comment

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