I just wanted to post that Cymbalta helped me. I don't see many people posting that. I was on it for two years. I started out really low (opened the 20 mg capsule and removed most of those pellet things so that I only took a few to start with, and slowly built up) and got up to 30 mg. It was almost like I didn't have IC at all. The first thing I noticed (on Day 3) was that my bladder seemed more relaxed and I could void better. It just got better and better after that. The burning went away, and my vulvodynia was even under control. I think 40 mg would have been ideal because I still had breakthrough flares sometimes, but they were short-lived and not severe. I had to go off of it due to bad daily headaches from it after a year and a half. It also started making me feel kind of wound up, anxious, and depressed. It actually helped my depression in the beginning, though.
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Cymbalta helps me with my fibro and my IC too. I take 60mg twice daily, I started at 30 mgs but that leveled off. I have a history of migraines but haven't had any problems with those, thankfully. Sometimes cymbalta can cause retention and that might be why more of us don't take it. For me, it did cause a slight bit of retention in the beginning but thankfully that went away. I'm sorry that you aren't able to take it anymore. Have you thought of trying neurontin? It helps me in the same way that the cymbalta does minus the anti depressant. It might be worth looking into trying, hopefully it will help you.
SandraLink to the patient information, everything from What is IC? to Disability
http://www.ic-network.com/patientlinks.html
American Urological Association Clinical Guideline
Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
http://www.auanet.org/content/guidel...ent_ic-bps.pdf
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I have been taking Elmiron for years and just recently started up again with the Neuronton and Cymbalta- right now I am taking 30mg -suppose to be taking 60 now but sometimes I think that doctors don't take into consideration the patients weight so I am holding off of it for awhile longer. I know it is now working only after abut 2 weeks as I have started to sleep in now and when I do go to the bathroom for the most part I don't have any pain and when I do usually my heating pad helps with that.
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I also take Cymbalta and I know it is helping my IC. My spine doc put me on it to help me with musculoskeletal pain and it has helped my back and my IC at the same time!
Best Wishes,
Aleet7DX'd with IC 5/08
other Dx's~SVT: had Catheter
Catheter Ablation Aug 19,2010
Migraines, PFD, Hypertension,
Prolapsed Pelvic
Organs and Degenerative Disc
Disease, Kidney stones, Insomnia
Two bulging discs w/tears and osteo
arthritis in multiple joints in the spine
Current Meds:Elmiron 400 mg per day
Benicar Hct 40-25mg for Hypertension
Norvasc 2.5
Vicoden as needed for pain
Cymbalta 30 mg
Prelief
CystaQ
Prosed
Lidoderm Patch
Psalm 121
I will lift up my eyes to the hills from whence comes my help? My help comes from the Lord, Who made heaven and earth.
"Be Kinder than necessary because everyone you meet is fighting some kind of battle"
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