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  • Elavil is on this new list of medications.

    that may cause cognitive impairment.


    http://www.eurekalert.org/pub_releas...-cdl062411.php

  • #2
    so prosed/ds, hyoscamine too

    These are in the class of drugs anti-cholinergic, too. Why I only take when in a flare. I do feel like my mind can't retain anything. Like spelling these words I've seen a zillion time. I still look them up. What are we to do?
    I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.

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    • #3
      ALL medications, including herbs, aspirin, tylenol --- and any other medications you can name --- have the potential for side effects. That's why it's frequently repeated by medical professionals that we need to weigh the advantage against the potential side effects of any medication.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        When I first got IC, I was voiding 60x a day, in excruciating pain, unable to sleep more than 20 minutes at a time for weeks and weeks on end. I was so grateful the first night I took Elavil. I cried when I realized I'd slept for a total of four hours and I hadn't slept that long at once since I got IC several months before.

        I can't imagine what years of that kind of sleep deprivation could have done to me- I was totally unable to function at that point. I guess when I weigh it out - an unbearable quality of life indefinitely with no cure for IC in sight - or taking this medication for now that reduces my symptoms so dramatically - it's not a hard choice for me.

        When IC has a cure or some better medication that controls my symptoms, I won't need the Elavil. Meanwhile, I'm grateful for the life I have today, which includes continued full-time work in the career of my choice, church attendance, freedom in what clothes I can wear, travel, exercise - none of which were possible before I started taking Elavil.

        I'd hate to see someone so afraid of a potential side effect of a medication that helps so many patients with IC, that they have years of immediate suffering without it.
        Kadi

        -------------------------------------------------------------
        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        ------------------------------------------------------


        New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
        Source - Pinterest
        "


        Current treatments:
        -IC diet
        -Elavil 50mg at night
        -Continuous use birth control pills (4-5 periods/year)
        -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
        -Pyridium if needed,
        -Pain medicine at bedtime daily, as needed during the day several times per week
        -Antibiotic when doing an instillation to prevent UTI
        -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
        -Dye Free Benadryl 50 mg at bedtime
        -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
        -Managing stress= VERY important!
        -Fur therapy: Hugging the cat!

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