Announcement

Collapse
No announcement yet.

Woo-hoo! 1st night with Elavil

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Woo-hoo! 1st night with Elavil

    After a disappointing first consultation with a urologist who only wants to treat IC with a hydro, I did manage to convince him to give me a prescription for Elavil.

    He gave me 25 mgs (I only wanted 10). I slept for seven straight hours last night--first time in six months. Wow!

    I took it at 7:00 pm and was out like a light at 9 pm. However, I got up at 6 am with minimal grogginess.

    I have an appointment with another urologist in early November, and will have just enough Elavil to last until then. I'm crossing fingers and toes that it will help with daytime frequency too.
    March 2011-Symptoms began
    May 2011-Tentative diagnosis by OB/GYN
    October 2011-Confirmed diagnosis -- IC/PFD

    Current treatments:
    Elmiron- 300 mg (Began 12/11)
    Hydroxyzine- 50-75 mg (Began 7/11)
    Tizabidine- 2mg 3xTID, if needed (Began 12/11)
    IC Diet-Began 5/11
    Pelvic Floor Therapy-Began 12/11

    Current Supplements:
    Cystoprotek
    Magnesium
    Fish Oil
    Biotin

  • #2
    Yay! I'm so happy to hear that. The first night I took Elavil, I slept like a baby, and it helped IMMENSELY for daytime problems as well. It was a life saver for me. I hope it works that well for you too! Hang in there.

    Comment


    • #3
      I'm really happy to hear this because I was just prescribed it.

      Comment


      • #4
        Thanks, Rubes.

        I got up once last night, but that definitely doable.

        May I ask how long it took for you to see benefits with daytime frequency?
        March 2011-Symptoms began
        May 2011-Tentative diagnosis by OB/GYN
        October 2011-Confirmed diagnosis -- IC/PFD

        Current treatments:
        Elmiron- 300 mg (Began 12/11)
        Hydroxyzine- 50-75 mg (Began 7/11)
        Tizabidine- 2mg 3xTID, if needed (Began 12/11)
        IC Diet-Began 5/11
        Pelvic Floor Therapy-Began 12/11

        Current Supplements:
        Cystoprotek
        Magnesium
        Fish Oil
        Biotin

        Comment


        • #5
          I'm starting Elavil tonight, too. I haven't slept through the night in 5 months and I am really hoping this helps! I've seen 2 Uro's so far, and neither wanted to do more than Vesicare (didn't work at all) or Cystex, which I decided not to take because I don't want to be on any more antibacterial/biotic stuff.
          Wish me luck tonight!

          Comment


          • #6
            Hi there,

            Elavil has definitely helped me sleep better. I'm on day 8, and have been sleeping really well. I still get up twice a night, but I fall right back to sleep.

            I am starting to experience some side effects and I have not seen a decrease in my frequency (my primary symptom) yet, but I'm going to hang in there for a month and see how it goes.

            Pleasant dreams!
            March 2011-Symptoms began
            May 2011-Tentative diagnosis by OB/GYN
            October 2011-Confirmed diagnosis -- IC/PFD

            Current treatments:
            Elmiron- 300 mg (Began 12/11)
            Hydroxyzine- 50-75 mg (Began 7/11)
            Tizabidine- 2mg 3xTID, if needed (Began 12/11)
            IC Diet-Began 5/11
            Pelvic Floor Therapy-Began 12/11

            Current Supplements:
            Cystoprotek
            Magnesium
            Fish Oil
            Biotin

            Comment


            • #7
              Thanks, I slept well last night. I only got up once, but frequency hasn't been my issue, it's been pain. I've been a bit groggy today, but I'm not sure if it's the Elavil or the fact that the night before last, I didn't get even an hour of sleep.

              What type of side effects are you having? I know everyone will have different reactions, but I hope it continues working for you and your side effects lessen.

              Comment


              • #8
                From what I've gathered from the board discussions, I think pain is the often first symptom that one gets noticeable relief from with Elavil.

                My side effects have primarily been forgetfulness. (This morning I forgot to shampoo my hair in the shower..) Also, Monday night I woke up with what felt like a golf ball lodged at the base of my throat--very strange feeling. It stayed with me all day, but the sensation is gone now.

                And, I've not been very hungry--but that's one side effect I won't complain about.
                March 2011-Symptoms began
                May 2011-Tentative diagnosis by OB/GYN
                October 2011-Confirmed diagnosis -- IC/PFD

                Current treatments:
                Elmiron- 300 mg (Began 12/11)
                Hydroxyzine- 50-75 mg (Began 7/11)
                Tizabidine- 2mg 3xTID, if needed (Began 12/11)
                IC Diet-Began 5/11
                Pelvic Floor Therapy-Began 12/11

                Current Supplements:
                Cystoprotek
                Magnesium
                Fish Oil
                Biotin

                Comment


                • #9
                  I forgot to mention the most noticeable side effect (see what I mean about forgetfulness! ) ---constipation. So, you may want to have something on hand to deal with that unfortunate possibility.
                  March 2011-Symptoms began
                  May 2011-Tentative diagnosis by OB/GYN
                  October 2011-Confirmed diagnosis -- IC/PFD

                  Current treatments:
                  Elmiron- 300 mg (Began 12/11)
                  Hydroxyzine- 50-75 mg (Began 7/11)
                  Tizabidine- 2mg 3xTID, if needed (Began 12/11)
                  IC Diet-Began 5/11
                  Pelvic Floor Therapy-Began 12/11

                  Current Supplements:
                  Cystoprotek
                  Magnesium
                  Fish Oil
                  Biotin

                  Comment


                  • #10
                    Sorry! I just saw this again... I noticed relief during the daytime pretty quickly. My worst symptoms were a burning feeling in my bladder, and the pressure, like my bladder was really full when it wasn't. I felt like a new woman immediately - like the first night, and during the daytime as well the first time I was on elavil. That was 2 years ago. I just recently restarted it and it took a few days to feel better - but I also started with a lower dose, and eventually just gave in and went back to 25 mg. I will say, this time, it didn't get rid of the burning feeling all the way, but prosed ds helped with that. Only problem with that for me is that it takes a full day of taking it regularly (every 6 hrs) to notice it working.

                    Comment


                    • #11
                      Just wanted to give an update on my 1st week with Elavil. I've been sleeping much better, I actually slept through the night for the past 2 nights! So amazing! The first night, I started to have pain, like my bladder was full and I thought in my head "ugh! It must be only 2am or so." It was actually 5:30, I was psyched. I made it to 5am this morning.
                      I'm still have dry mouth and get dizzy sometimes, but not too bad.
                      I've been sticking REALLY close to the diet and am hoping this good feeling lasts!

                      Comment

                      Working...
                      X