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Elavil--when did it start working for you?

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  • Elavil--when did it start working for you?

    Hi all,

    Well, the Elavil is still helping me sleep like a rock, which is good. But, I still get up on average twice a night. That's certainly a livable amount of times; however, I've seen no noticeable improvement in my daytime frequency.

    In fact, I've had a rough three days. I'm not sure whether to contribute that to the ragweed that's in bloom or the constipation I've been suffering from since starting Elavil.

    I've been taking 25 mgs for 2.5 weeks or so.

    How long did it take to help you?

    Thanks again.
    March 2011-Symptoms began
    May 2011-Tentative diagnosis by OB/GYN
    October 2011-Confirmed diagnosis -- IC/PFD

    Current treatments:
    Elmiron- 300 mg (Began 12/11)
    Hydroxyzine- 50-75 mg (Began 7/11)
    Tizabidine- 2mg 3xTID, if needed (Began 12/11)
    IC Diet-Began 5/11
    Pelvic Floor Therapy-Began 12/11

    Current Supplements:
    Cystoprotek
    Magnesium
    Fish Oil
    Biotin

  • #2
    It only took the meds about 3 weeks to start working, however I've had a few rough night but I think that's because I ate spicy foods.
    IC diagnosis 3 weeks ago.
    Vesicare 10 mg once daily
    IBS and Gerd-Zegerid
    IC diet
    Elmiron 100 mg three daily
    Hydroxyzine 25 mg at night
    Amitriptyline 10mg at night
    Diovan 60/12.5 daily
    Topral 50 mg daily
    Zoloft 100 mg at night
    Klonopin .5 twice daily

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    • #3
      It started helping after about a week & felt better after reaching 20mg. I still will have flares, but not a severe or as long.

      Comment


      • #4
        once you get the dose right, it can take upwards of 2 months for some people, my doc said it needs to be 'built up' in your system, which can take a little bit but you should notice changes fairly quickly in general

        Comment


        • #5
          It took me a month to reduce nighttime frequency from 3x to 0x my daytime frequency didn't go down any. Now I am back off it I am at 1x per night.

          This was with 25mgs
          Last edited by Claire_A; 10-02-2011, 08:02 PM. Reason: More info
          TMJ Dysfunction 2009
          Vulvodynia and/or PFD 2010
          IC, based on symptoms alone 2010.
          PCOS March 2012

          8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

          Currently using: IC Diet...pain meds as needed
          Medications / treatment tried and discounted:
          Fluconazole 150mg 1 per week for 6 months (yeast)
          Endep 25mg - 4months
          Lyrica 75mg - 2 months - FLARE
          Oxytrol patch - I think this caused retention.
          Countless creams, lotions and potions.
          Cystoprotek - no change in symptoms
          PT - for 1 year
          Various herbs and supplements

          Comment


          • #6
            Wow, after reading all these responses, I think I am pretty lucky. I've been on 25 mg Elavil for 2 weeks. I really only have pain and not frequency problems, so maybe that is why it has worked quickly for me. The first night I only got up once (I usually only got up once or twice anyways), but the 1 time was much longer than usual (around 3:30 am). For the past two weeks, I'd say 10 out of 14 days I've slept through the night.
            I've noticed that it started helping the pain after about 4 or 5 days. I've had a couple of short flairs, definitely due to eating dinner out and mistakingly having something bad. The flairs are definitely shorter and less intense than before.
            I will say that it's not making me as drowsy at night anymore, so if I'm a little uncomfortable, it does take me a little longer to sleep.

            Comment


            • #7
              Does it help with frequency/urgency
              Nancy - newly remarried Sept 2011! Have 5 kids ages 7-22.

              Had a UTI in Oct 2009
              IC symptoms started immediately: strong urgency, little bit of burning, fullness in the bladder, urethera spasms

              Had three scopes of my bladder and one hydrodystention-this did not help at all. Found classic bleeding during the hydro. Later told almost everyones bladder bleed the test Also had a urodynamics test-normal. Did anyone have it done more than once? My newest urogynocologist does not believe

              Diagnosed fibromyalgia/lyme disease in 1999
              Acid reflux since 1998

              Have tried the following therapies:
              pelvic floor PT-relaxed the muscles but did nothing for the urgency feeling.
              Ativan-helps some
              Vicodin-some relief.
              ditropan-only caused fluid retention
              toviaz-same as abovee
              detrol-no relief
              hydroxyzine-get some relief but not for urgency
              valium-helps relax the muscles
              flexeril-same as the valium
              B&O suppositories-they help a little
              started estrogen cream
              starting effexor soon

              Had an interstim placed in 2010. Do not really notice any changes with the urgency feeling. I turned it off 6 mos ago.

              current meds and treatment:
              nexium
              ativan
              valium suppositories
              hydroxyzine
              IC diet
              methenamine mandalate
              estrogen cream
              effexor
              B&O suppositories

              Had bladder instills but this made the urethra spasms much worse.

              Had hernia repair with fundoplication dec, 2011

              Will be trying the anti inflammatory diet. Hope it works. I dont know where to start with this diet.

              Always looking for ideas on how to stop urethra spasms and urgency. Anyone in the Colorado Area? Always looking for support.

              Husband is my biggest supporter. I need the urgency to go away. What helps??

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