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  • Anyone on Singulair?

    HI! My Doctor wants to fully explore how I respond to antihistamines before we get into anti seizure drugs. For the next month he wants me to keep taking my Allegra and add Cimetidine and Singulair. The Cimetidine is a histamine blocker mainly used for stomach ulcers and GERD. THanksfully it is super cheap (Like $8 a month) Singulair is an asthma medication and it is pricy b/c no generic exists. Has anyone tried Singulair for IC? What about the combo of the three or similar meds? My insurance is fighting paying for my Singulair and I cannot afford the $150 this month. My Doctor's office is getting involved, but if it doesn't get approved is this a med the drug companies have a reduced plan for? It is very new to me, that's why I'm asking about it. I have only seen one person list it in their signature here on the ICN and I wasn't aware that it was an IC treatment option until my Doctor brought it up.
    I hope it helps, but am a little worried it will and I won't be able to pay for it every month. We are barely making ends meet and my husband may be losing his job in a few weeks. I am going to go look for the link with low cost meds and drug company programs right now.
    Thanks for you input!
    Last edited by RAS6; 04-28-2007, 05:13 AM. Reason: spelling :)
    Rachel
    DX's:
    IC; PFD; possible Fibromyalgia; IBS;

    Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

    I've Tried:
    three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
    Currently using:
    Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
    Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
    I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!


  • #2
    I'm on Singulair, but it's for my asthma, not IC. I was diagnosed with IC after I started taking it, so I don't know if it makes a difference or not with my IC symptoms. Sorry I can't be more helpful.
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      I'm on Singulair and Zyrtec, but I was put on them during an eight year remission from the IC, so I don't know if they help or not. (IF they do, I'd surely hate to see it without it!)
      Sorry I can't be more help.

      Comment


      • #4
        I take singular as needed. I was taking Zyrtec but I switched to singular b/c it doesn't cause dry eyes. I take singulair for seaseonal allergies. I take it ofetne but sometimes I skip b/c it is expensive.
        Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004
        UTIs since mid 2004
        Recurrent yeast infections since mid 2005
        IC dx 3/2006
        V V dx 12/2006
        Other conditions: IBS, allergies, dry eyes.


        Current IC medications:
        Elavil (since 12/06) 10 mg;
        Cysta Q (since 5/07)
        Rephresh acid jel every 3 days
        D-mannose, fish oil, Calcium Citrate, Multivitamins & garlic pills (sometimes)
        Probiotics Femdophilus or other brands
        Gy-Na-Tren for yeast infections (started using it as needed since 2010)
        Other Rx:Omeprazole 20mg; benadryl as needed, Restasis


        Past Meds and why I stopped them:
        Elmiron: March to September 2006: headaches
        Lyrica:2 weeks in 2006: headaches
        Cystoprotek: from Jan to April 2007: nausea

        Femcon Fe (2/07 to 10/07):caused spotting/bleeding
        BCP:Loestrin (since Ocotber 2007) to stop spotting for 2 months. V V worse. Stopped the pill in Nov 07.


        "Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it"

        Comment


        • #5
          I have heard of Singulair for IC from a pain clinic in NYC but they mixed it with pain meds, but don't know how much science is behind using it. Maybe a therory on the mast cells... We are basically an experiment with IC because they know more than before but so little. I have thought of myself as a lab rat many times, and it isn't a nice feeling.

          ads

          Comment


          • #6
            My Uro put me on Singulair and said something about mast cells. I've been feeling rather well. I am on the IC diet, Elmiron, and stopped smoking so I don't know if the Singular is making a big difference or not. I have insurance that pays without trouble. My heart ackes for you if it is costing more then you can afford. God know getting by day to day is hard enough. Maybe try a month of Singular and if you see no change tell the Doctor why you feel you need to omit it from your meds. Believe me, most Doctors really do understand the expenses. Ziggy

            Comment


            • #7
              I take 20mg of Singulair once a day. Here is a link that explains why Singulair is used as a IC treatment.
              http://algonot.com/pdf/Urology_IC.pdf

              Comment


              • #8
                I take Zyrtec and Nasonex plus I have an inhaler. They've REALLY helped my allergies and the Zyrtec has improved my IC a little.

                Kitty!

                Just diagnosed w/PFD - Oh Boy!

                What I have tried: Elmiron, Lyrica, ,Methadone, Vicodin, Norco, Cystoprotek, imipramine, xanax, hydroxizine, trazadone, a bunch of anti-spasmotics and more I'm sure I can't remember.

                What I'm presently on:
                Noritriptyline 25 mg
                OxyContin 20 mg AM - 10 mg afternoon - 20 mg PM
                Zanaflex 2 mg at bedtime
                Percocet PRN for breakthrough
                Zyrtec
                Nasonex (allergies)
                Jolessa (b.c.)
                Physical Therapy 2x weekly

                Be my buddy?

                http://www.facebook.com/home.php?#/p...88&ref=profile

                Comment


                • #9
                  Thanks for all the added info

                  Unfortunately I am not seeing any difference in symptoms on just the Cimetidine and the Allegra and my stupid insurance is still denying to pay for the Singulair. I had thought to buy it this one time and see if it works, but at $150 a month is would be a tease if I get relief b/c I can't pay that every month right now. I am in debt to so many hospitals as it is and trying to pay medical bills, other meds, co-pays, etc. So singulair is out unless I can find a program similar to the one Johnson and Johnson has for low income patients needing Elmiron. So far I haven't found one for Singuliar, and who knows if I would qualify b/c it is not being used for asthma (which is why the insurance company keeps denying it) My Doctor has gotten involved but it has been a month now and they are still denying to pay for it. So I am off to see him on thursday and explore new options, which will probably be Neurontin.
                  Thanks everyone!
                  Last edited by RAS6; 05-26-2007, 05:02 PM. Reason: spelling :)
                  Rachel
                  DX's:
                  IC; PFD; possible Fibromyalgia; IBS;

                  Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                  I've Tried:
                  three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                  Currently using:
                  Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                  Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                  I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

                  Comment


                  • #10
                    Rachel, ask your docots to get free samples of Sungulair. I got a month worht of free samples from my ENT. I asked b/c I didn't want to purchase a bottle of med if I would have a bad reaction to it. I take singulair for seasonal allergies ( I take it on and off) b/c my copay is $40 and it adds up to all other meds, so I just take it a few time a week.
                    When my docotr gave me the free samples 5 pills came im each packet and he gave me a bunch of them.
                    Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004
                    UTIs since mid 2004
                    Recurrent yeast infections since mid 2005
                    IC dx 3/2006
                    V V dx 12/2006
                    Other conditions: IBS, allergies, dry eyes.


                    Current IC medications:
                    Elavil (since 12/06) 10 mg;
                    Cysta Q (since 5/07)
                    Rephresh acid jel every 3 days
                    D-mannose, fish oil, Calcium Citrate, Multivitamins & garlic pills (sometimes)
                    Probiotics Femdophilus or other brands
                    Gy-Na-Tren for yeast infections (started using it as needed since 2010)
                    Other Rx:Omeprazole 20mg; benadryl as needed, Restasis


                    Past Meds and why I stopped them:
                    Elmiron: March to September 2006: headaches
                    Lyrica:2 weeks in 2006: headaches
                    Cystoprotek: from Jan to April 2007: nausea

                    Femcon Fe (2/07 to 10/07):caused spotting/bleeding
                    BCP:Loestrin (since Ocotber 2007) to stop spotting for 2 months. V V worse. Stopped the pill in Nov 07.


                    "Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it"

                    Comment


                    • #11
                      Originally posted by SMR218 View Post
                      Rachel, ask your docots to get free samples of Sungulair. I got a month worht of free samples from my ENT. I asked b/c I didn't want to purchase a bottle of med if I would have a bad reaction to it. I take singulair for seasonal allergies ( I take it on and off) b/c my copay is $40 and it adds up to all other meds, so I just take it a few time a week.
                      When my docotr gave me the free samples 5 pills came im each packet and he gave me a bunch of them.
                      You know what, I asked the Urologist, but for obvious reasons they didn't have any. Then it slipped my mind. THanks for the reminder. ALl I need is a months worth. Again though, if it helps It would be pretty upsetting if I can't continue taking it. My GP has tons of samples though. In fact I rarely have to pay for anti-biotics, ear drops, ect when I see her. They always have samples lying around. I could at least call her on Tuesday and see what she says.The worst she can say is "no". As far as GP's goes, she is wonderful, has known me and my family for 10 years, and she had more IC knoweldge than some of the Urologist's I saw.
                      Thanks for reminding me!
                      Rachel
                      DX's:
                      IC; PFD; possible Fibromyalgia; IBS;

                      Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                      I've Tried:
                      three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                      Currently using:
                      Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                      Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                      I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

                      Comment


                      • #12
                        update

                        I called my GP but she said she could only get me a weeks worth of singulair. So my IC Doc decided to nix that and we are moving on to something else. I had a rough day and posted about it under the pain managemnt thread. I just wanted to thank those who responded with info and ideas!
                        Rachel
                        DX's:
                        IC; PFD; possible Fibromyalgia; IBS;

                        Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                        I've Tried:
                        three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                        Currently using:
                        Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                        Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                        I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

                        Comment

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