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  • he called in Atarax today!

    Best URO in the world, by the way
    Hes in Tampa FL...and soo cute, looks like M. Night Shyamalan

    Anyway, I quit elmiron due to hair loss 7 weeks ago
    hair still falling out..I quit Elavil about 1 week ago..and have been in a flare ever since. I havent slept since Thursday..I pee every hour.

    I emailed him today...SUNDAY!!...and he emailed me back..
    Called me in some Atarax to try.

    Wish me luck..and if any of you ladies are in the area...hes the best
    Quit ELMIRON due to hair loss
    Cystoprotek ROCKS!

    find me on FACEBOOK -
    search my email [email protected]

    Current Meds:
    AM Cystoprotek & ATARAX 50mg
    Dinner CYSTOPROTEK
    PM Elavil 25mg


  • #2
    atarax is great!

    Good luck with the atarax! How many mg at night?? 25 or 50?? Mine was just upped to 50 at night and BOY does it help!!:woohoo:

    I know you had hair loss with the Elmiron, but did you notice a difference in your symptoms while taking it? I also experienced hair loss, stopped the Elmiron and flared. I now take it religiously and have extensions.....

    Wishing you a few hours sleep tonight!

    Hugs,
    Beth from NJ
    IC diagnosis 1999
    Meds: Elmiron
    hydroxyzine hcl
    DMSO as needed
    valium as needed
    librax 3x day

    TENS therapy



    Thanks to all on the boards - YOU have helped more than I can say!



    A person's true wealth is the good he or she does in the world.

    Comment


    • #3
      Sounds like a great Uro, good luck with the meds hope they help you.
      Hugs Sandra
      "Never Give Up."

      To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

      My Photobucket Link:
      http://s237.photobucket.com/albums/f...ramack_photos/

      Comment


      • #4
        re

        you handeling this hair loss...way better than me.

        I too am thinning all over. I quit Elmiron 7 weeks ago
        and its still falling out.
        and i began the desertharvest.com aloe vera pills
        I have been fine the entire elmiron free 7weeks

        but the hair is still falling out
        I just quit Elavil this weekend. And, of course now I am flaring.
        Im sure the stress of the hair loss contributed to it majorly.

        Anyway, I just started Atarax yesterday

        http://www.ichelp.org/TreatmentAndSe...ydoxyzine.html


        are you still taking it?
        Quit ELMIRON due to hair loss
        Cystoprotek ROCKS!

        find me on FACEBOOK -
        search my email [email protected]

        Current Meds:
        AM Cystoprotek & ATARAX 50mg
        Dinner CYSTOPROTEK
        PM Elavil 25mg

        Comment


        • #5
          Sorry you are having Hair loss. But what you are describing is aleopeshia. May have spelled wrong. That is a medical condition not med related , More nerves related. As a stylist for 25 years the Nixon & stuff does not work. Sorry to tell you .But i've never seen a client get new growth by using a product, without medical help. Pm me if you need any aadvise on hair care or just a shoulder.
          Hugs Sandra
          "Never Give Up."

          To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

          My Photobucket Link:
          http://s237.photobucket.com/albums/f...ramack_photos/

          Comment


          • #6
            Bethrlk- I am waiting for my hair to grow back from chemotx, what kind of hair extensions do you get. I tried last week and the hair guy told me my hair which is 1 inch now isn't long enough. Thanks, Aileen

            Comment


            • #7
              Atarax is an antihistamine. If IC is an auto-immune as many people believe, then it may work by calming down the immune system just the way it calms down the overactive immune response of allergies. It also appears to help reduce nighttime urination, and it helps you sleep.

              I take 75 mg at night. It really turned the world around for me, I don't think I'd slept through the night in five years or more before I started taking it. Some people also take it in the daytime but it puts me to sleep.
              Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
              Wishing you happiness and good health, and all the best out of life.

              Peace, Carolyn
              ___________________________________________________

              Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


              On the Beach with IC

              Comment


              • #8
                Hi AkRose,

                The extensions are called Cinderella - I get them at a salon here in NJ called HairPort.....Ask your hairdresser if he/she can get them for you and weave them into the hair you already have - you can have A LOT of fun with colors/textures, etc...

                With the Elmiron, I lost hair all around my head - no bald spots, but my hair was extremely thin - and I usually have thick, long curly hair. But I figure it's better to lose some hair than be in constant pain/flares without the Elmiron.....

                If you PM me, I will try to get the manufacturing info about Cinderella from my hairdresser tomorrow!

                Hugs,
                Beth
                IC diagnosis 1999
                Meds: Elmiron
                hydroxyzine hcl
                DMSO as needed
                valium as needed
                librax 3x day

                TENS therapy



                Thanks to all on the boards - YOU have helped more than I can say!



                A person's true wealth is the good he or she does in the world.

                Comment


                • #9
                  Hey, I'm moving to Tampa in a few weeks. Do you think your doctor is good? I mean does he turn his nose up at using Ultram for symptoms or needing Atarax or instils, etc. I would love to find someone in Tampa that I like as much as my current doctor/PA!

                  Thank you!

                  BTW, I hope you like the Atarax. I think it helps me, but not as much as the Ultram does. I think with my horrendous allergies, Atarax has helped with that at least.
                  [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                  [

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