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  • Neurontin

    Is anyone taking neurontin...if so does it help with the pain and how long does it take?
    Diagnosed December 2010

    Philippians 4:13- I can do all things through Christ which strengtheneth me.

    John 3:16 -For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.

  • #2
    I have tried it but I don't think I took it long enough for it to work. I didn't feel good on it so I quit. I hope that it works for you.. I hear it works for a lot of people and they love it. I still have on my shelf and might give it another try again later.
    _____________________________________________

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    • #3
      Hello,

      I believe Neurontin does help me. I am on 2400 mg a day. The optimal dosage for an IC patient is 1800-2400mg per day. I started out on 900 mg (which is normal, to see if you can stand side effects). My only side effects are drowsiness, but it passes eventually. I have read through literature this is the correct dosage, and my gynecologist found the same information. I believe taking it throughout the day does help my pain. It was just increased on last Friday and I believe it helps.

      It generally helps right when I take the medicine. I am noticing it more now with the increase in dosage.

      Let me know if you have any other questions.

      Erin
      24 year old Ph.D student in Organic Chemistry

      Loves to listen to music, play with my animals (cat, fish, 2 hamsters), and live life to the fullest each and every day.

      My blog (just started):

      http://imaginenoworries.blogspot.com/

      Medications:
      Elavil 25mg (helped with nighttime urination-used to be 7 or more times a night, now just once)
      Cymbalta 60mg
      Gabapentin (Neurontin) (3200mg/day)
      Zyrtec 10mg
      Xanax 0.5mg up to 3 times a day(spasms, anxiety)
      Uribel
      Macrobid 100mg (only on days when doing an instill)
      Albuterol
      Yaz Birth Control (3 months on birth control, then period)
      Pelvic floor therapy
      Valium 5 mg (inserted vaginally)
      MScontin 30 mg (3 times a day)
      Percocet 10/325mg (every 6 hours)
      TENS Therapy, CVS machine, 30 minutes once or twice a day
      Sanctura XR 60 mg (to help control severe bladder spasms that are causing urinary retention episodes and enable normal bladder sensations)

      *** 1/4 of a teaspoon of baking soda in an 8 ounce glass of water up to 4 times a day*****

      Instill:

      Currently doing hyaluronic acid instillations (cystistat-6 instillations, once a week, already had 4...not sure if helping)

      Used to do these:

      Solu-Cortef (act-o-vial) 100 mg: 2 mL
      Marcaine (bupivicaine) 0.5 % 25 mL
      20,000 units Heparin
      3 mL sodium bicarbonate

      Diagnoses: Moderate IC, scoliosis, asthma, ovarian cysts, PFD, IBS, Fibromyalgia, vulvodynia, Fowler's syndrome (mild) 'Central Sensitivity Syndrome.'

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      • #4
        Neurontin

        Thanks so much for the responses. I just increased my dose today and was a little drowsy. The doctor said this would subside. I think it is helping a little....Appreciate you both.
        Diagnosed December 2010

        Philippians 4:13- I can do all things through Christ which strengtheneth me.

        John 3:16 -For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.

        Comment


        • #5
          Is it a pain med? I'm seeing a new Uro on Friday and I know she doesn't prescribe pain meds so I don't wanna ask if it is.
          symptoms when in a flare:

          I feel everything in my urethra but I know its really my bladder. Pressure, stinging, urgency,tingling feeling thats hard to describe.
          *I have a fibroid on my uterus near my bladder.

          Medication
          100mg Amitripyline ( I have seriously gained almost 50lbs on this drug but I feel it works)
          Flexoril 10mg (doesn't work)
          Hydrocodone 5/325 PRN
          Cetalopram 40mg *severe anxiety over flare

          Physical therapy hasnt really helped but I love her! I've learned so much! She states that my muscles around
          My urethra are very tight.

          currently seeing a Gyn in my town and a Uro in Seattle (4 hrs away)

          I have had lots of long term remissions. Currently been struggling with good & bad days since Jan 2012



          find me on Facebook! Brandy Schildknecht Covington

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