Announcement

Collapse
No announcement yet.

Uro "doesn't believe" in Pain Meds for IC

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • #31
    No one will give me pain meds either I see so many people in so many of my different support groups getting pain meds and I feel cursed. I think it is a combo of I live in a state with strict prescription laws and I am only 27 and "look too good" for pain meds as they have tried to tell me.

    I literally was contemplating moving to Florida to get the help I need since they have more lax pain laws, but we can't b/c my husband's job and our families keep us here.

    Sometimes I want to cry, b/c I am NOT a drug addict. I am a woman who needs maybe one Vicodin every few days when a crippling pain shoots through me. I know this helps b/c when I was undiagnosed my primary gave me some, but once I got diagnosed he told me I could never come to his office for bladder stuff again and I was the specialist's problem now Granted to say I just got a new primary. It makes me sad to know a cheap medication exists that would help me and no one wants to give it to me.

    It is really frustrating and getting to me as I get shooting nerve pains in my bladder and vagina.

    My new uro does not prescribe, but he will send me to pain clinic. But the clinic he normally sends people to is not in the best neighborhood and the woman on the phone seemed nasty when I called.

    He said he can send my records someplace else, but I have to find it on my own and I am having a hell of a time finding a place.

    If anyone knows of a place anywhere in the Philly region that treats with pain meds, please PM me the name of the place. Thanks!!
    DX: IC, V, VV, PFD, Generalized Anxiety Disorder, PN (just chronic inflammation of the nerve, not an entrapment), Depression

    Current Treatments: Effexor XR, Gabapentin, Oral Valium, Methadone, Lidocaine, ice/heat packs, sometimes vaginal valium suppositories, Vicodin

    My Pelvic Pain Blog

    FB Fanpage for My Pelvic Pain Blog

    Comment


    • #32
      OH my gosh VCN my heart really goes out to you! Have you asked about Tramadol? Have you pushed them on this, bringing in IC lit to show them or asked for a specific quantity (1 bottle, no refills!) so they can't accuse you of trying to become an addict? I don't know about you, but if it were me, I'd be in that office with tears streaming down my face, saying, "Look, people lose their jobs from this disease, and they lose their marriages, and they become shut-ins. Do you think that might be because it causes extreme pain and loss of normal functioning?" Has your uro at least prescribed you a TCA like Elavil, or the type of drugs like Lyrica? Those can help with pain. Doesn't he understand about the pain cycle??? That if you're frequently in sharp pain, you're going to have a reaction (clenching muscles, etc) that will actually cause a continuation and exacerbation of the problem? Like I said, I am so sorry that you are in this situation and I really hope you can get the help you need.
      IC symptoms since Dec. 12 2010 after confirmed bladder infection "never went away." Recently also diagnosed with PCOS, piriformis syndrome, and pelvic floor dysfunction, sinus issues. I was in great health before fall 2010.
      Current medications: citalopram 40 mg, valium 2.5 mgs a night, lidocaine patch (for back pain), Prelief
      Therapies tried or continuing: stretches, walks, baths, internal massage, physical therapy, IC diet, IF unit, heating pad, mindfulness based stress reduction classes, cognitive therapy, books on IC and pelvic pain...

      Drugs Tried: the urinary analgesics, 4 kinds of muscle relaxants (including in suppository form), hydroxyzine, 3 kinds of TCA's, lyrica, cymbalta, 6 months elmiron, vesicare, antibiotics, prednisone (after sinus surgery), NSAIDS...
      Supplements: over 20 herbs and supplements, including regimens from TCM practitioner and a naturopathic MD
      Intravesical/Surgical: 3 instills of Uracyst, 2 “rescue instills” lidocaine, bicarb, elmiron; 1 self-instill of marcaine, a steroid, bicarb and heparin; 1 hydrodistention and capsaicin instill (made me worse, still recovering two months later...)
      Other: Acupuncture treatments, magnets (LOL), Anti-Candida Diet (2 months), Wheat free diet, water pH

      Comment


      • #33
        Originally posted by DaniMSC View Post
        OH my gosh VCN my heart really goes out to you! Have you asked about Tramadol? Have you pushed them on this, bringing in IC lit to show them or asked for a specific quantity (1 bottle, no refills!) so they can't accuse you of trying to become an addict? I don't know about you, but if it were me, I'd be in that office with tears streaming down my face, saying, "Look, people lose their jobs from this disease, and they lose their marriages, and they become shut-ins. Do you think that might be because it causes extreme pain and loss of normal functioning?" Has your uro at least prescribed you a TCA like Elavil, or the type of drugs like Lyrica? Those can help with pain. Doesn't he understand about the pain cycle??? That if you're frequently in sharp pain, you're going to have a reaction (clenching muscles, etc) that will actually cause a continuation and exacerbation of the problem? Like I said, I am so sorry that you are in this situation and I really hope you can get the help you need.
        Thanks.

        Someone did try me on Tramadol once but it did nothing. I think OTC pain killers do the same for me.

        I am not as pushy as I used to be, b/c back before diagnosis I was treated like a drug addict (without even asking for drugs) by a gyno and an ER. Saying I "had nothing wrong with me and was making up the pain for drugs and attention".

        I am just traumatized by that and scared to driver doctors away.

        Most of my doctors are in Philly and it is their policy not to give pain pills b/c they claim there are a lot of drug seeks that come in and they can't lose their license by weeding them out so everyone needs to go to pain management.

        My fiance just helped me find a pain management place in NJ...I am gonna call Monday and see how to go about getting an appt. there.
        DX: IC, V, VV, PFD, Generalized Anxiety Disorder, PN (just chronic inflammation of the nerve, not an entrapment), Depression

        Current Treatments: Effexor XR, Gabapentin, Oral Valium, Methadone, Lidocaine, ice/heat packs, sometimes vaginal valium suppositories, Vicodin

        My Pelvic Pain Blog

        FB Fanpage for My Pelvic Pain Blog

        Comment


        • #34
          Has anyone had issues with Tylenol 3's?
          Got a script two days ago, the only thing my doctor can write comfortably for pain that isn't OTC (and it's for an infection of my wisdom teeth :P) but I think it's irritating my bladder.
          There's caffeine in them unfortunately, apparently to help absorption and prevent abuse, but even a little bit of caffeine is a no-no. I read there are ways to isolate the codeine called a cold water extraction method, but I'd feel like a sketchbag doing that.

          What would you guys do in this situation? (not asking for medical advice, just personal experience/opinion)
          21 years old
          dx: severe OAB, mild/moderate IC, depression, PTSD, agoraphobia, chronic fatigue, IBS, peripheral neuropathy

          ♥ looking for a way or medication to help stop spasms ♥

          Comment


          • #35
            Argh it makes me so upset to hear that!! You poor thing, no wonder you are traumatized! I just can't believe doctors could tell someone they are making up their pain, not with the huge number of chronic pain conditions that exist in this world!
            IC symptoms since Dec. 12 2010 after confirmed bladder infection "never went away." Recently also diagnosed with PCOS, piriformis syndrome, and pelvic floor dysfunction, sinus issues. I was in great health before fall 2010.
            Current medications: citalopram 40 mg, valium 2.5 mgs a night, lidocaine patch (for back pain), Prelief
            Therapies tried or continuing: stretches, walks, baths, internal massage, physical therapy, IC diet, IF unit, heating pad, mindfulness based stress reduction classes, cognitive therapy, books on IC and pelvic pain...

            Drugs Tried: the urinary analgesics, 4 kinds of muscle relaxants (including in suppository form), hydroxyzine, 3 kinds of TCA's, lyrica, cymbalta, 6 months elmiron, vesicare, antibiotics, prednisone (after sinus surgery), NSAIDS...
            Supplements: over 20 herbs and supplements, including regimens from TCM practitioner and a naturopathic MD
            Intravesical/Surgical: 3 instills of Uracyst, 2 “rescue instills” lidocaine, bicarb, elmiron; 1 self-instill of marcaine, a steroid, bicarb and heparin; 1 hydrodistention and capsaicin instill (made me worse, still recovering two months later...)
            Other: Acupuncture treatments, magnets (LOL), Anti-Candida Diet (2 months), Wheat free diet, water pH

            Comment


            • #36
              Originally posted by Briza
              That was my main pain med and I got excellent relief from bladder pain with it.
              Briza, did you have any problems with the histamine releasing properties of codeine? I.e. did were you on anti-histamines while taking the Tylenols, and if you were, did it cover up the effect efficiently?

              Also, I'm not knocking the worth and gratitude for tylenol 3s, it's much better than being left with nothing, but since I'm taking Paxil, I don't think I'm absorbing it properly (enzyme inhibition in my liver) and getting less pain relief than I should be.
              21 years old
              dx: severe OAB, mild/moderate IC, depression, PTSD, agoraphobia, chronic fatigue, IBS, peripheral neuropathy

              ♥ looking for a way or medication to help stop spasms ♥

              Comment


              • #37
                New uro

                You deserve better. I know where you are coming from- get a new Urologist. Or go to a pain clinic- although they aren't always a sure thing. You can get through this.

                Comment


                • #38
                  Codeine releases histamine and is why some people start itching after taking it.
                  For those of us who have a proliferation of mast cells already in our bladder I could see where it could make everything worse by releasing histamine. My dr. advised me when I had been taking Vicodin a long time ago that I may have to take the Atarax or Benadryl along with the Vicodin.(but not together) My bladder pain actually got worse if I took vicodin alone without adding the antihistamine. Of course I realize that not everyone's bladder problems are related to an increase of mast cells but in my case it seems it was, or at least was effected by it.

                  Comment


                  • #39
                    Originally posted by earthlady View Post
                    Codeine releases histamine and is why some people start itching after taking it.
                    For those of us who have a proliferation of mast cells already in our bladder I could see where it could make everything worse by releasing histamine. My dr. advised me when I had been taking Vicodin a long time ago that I may have to take the Atarax or Benadryl along with the Vicodin.(but not together) My bladder pain actually got worse if I took vicodin alone without adding the antihistamine. Of course I realize that not everyone's bladder problems are related to an increase of mast cells but in my case it seems it was, or at least was effected by it.
                    Thanks for that, earthlady!
                    I'll try taking it together with an antihistamine and see what happens.
                    21 years old
                    dx: severe OAB, mild/moderate IC, depression, PTSD, agoraphobia, chronic fatigue, IBS, peripheral neuropathy

                    ♥ looking for a way or medication to help stop spasms ♥

                    Comment


                    • #40
                      The dr. though also warned me about taking it at exactly the same time as they both can cause drowsiness. You may want to check with your dr. to see if it is ok for you.

                      Comment

                      Working...
                      X