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HELP How long does instillation last

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  • #1

    HELP How long does instillation last

    Just had an instillation yesterday in Md's office URO GYN
    Is it ever a one time situation or doe I need a repeat?
    RN said some people come in every 2 weeks

    I have to have surgery to have uretheral prolapse mesh removed and am worried about this IC pain which I have had on and off since May 28th plus 3 UTIS

    What do I expect here? I was hoping it was a one shot instillation
    IC: elavil - dizziness sleeplessness
    elmiron caused headaches
    pyridium as needed
    IC 2011
    seing uro gyn
    urethal prolapse (2005) mesh removed 2011
    PT for back and for pelvic floor
    instillations
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  • #2
    A lot depends on what was used in the instillation, the severity of your IC, and your response to the instillation. I've known some IC patients who don't need instillations at all, some who only need instillations until their oral medicines kick in, some who only need them for flares, some who get instillations or a series of instillations occasionally, some who do them at home weekly or more often. It can vary by a lot as you can see.

    Twice daily instillations done at home have given me back a good quality of life, but my mom who also has IC has never needed one. So it really varies by the individual!

    Whatever you decide to do, I hope you find relief soon!
    Best,
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest
    "

    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!

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    • #3
      instillations

      Thank you

      I have a problem here because half the pain is from themesh issue
      The RN told me to call - I guess I call if the pain comes back in bladder
      It is only 2 days
      Thank you so much
      IC: elavil - dizziness sleeplessness
      elmiron caused headaches
      pyridium as needed
      IC 2011
      seing uro gyn
      urethal prolapse (2005) mesh removed 2011
      PT for back and for pelvic floor
      instillations

      Comment

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