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Myrbetriq causing flare?

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  • #16
    Re: Myrbetriq causing flare?

    I have the same problem. Makes it so hard to take the meds that could help like amitriptyline or hydroxyzine as they all caused me retention and I already have trouble with starting a stream and retention. UGGGGG

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    • #17
      Re: Myrbetriq causing flare?

      Yes!!!! I have been on Myrbetriq for over a month, and I know have extreme urgency...I swear I feel like I’ll pee my pants, this weird urethral or vaginal tightening/spasm, and hesitancy! I do not feel better on it. I’m actually at my Urologist’s waiting room and I’m going to tell her this drug is not for me. This thread helped me to determine what is going on with me!!! Thank you, I was about to lose my mind...and my urine!

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      • #18
        Re: Myrbetriq causing flare?

        Hated it. Swear it made things worse. I quit it after 3 nights.

        Lori
        Middletown, MD

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        • #19
          Re: Myrbetriq causing flare?

          So, my urologist told me to only take Myrbetriq every other day to see if that helps.

          The upside—I’m urinating less—4-6 times a day.

          The downside—on non-Myrbetriq days, I’m fine, but for the days I take them—urgency and urethral/vaginal spasms are still present. HOWEVER, they are lessened in severity, to the point I can deal with it.

          I see my uro again in 6 weeks. As of now, I may stay in Myrbetriq.

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          • #20
            Thank you all, I am so glad I read this thread! I am in the middle of one of the worst flares I've had in years thinking that the Myrbetiq I just started 14 days ago just wasn't working as well as the Vesicare I was on. I had just decided to go back to Vesicare because for the first time since starting it before my IC diagnosis, I had urge incontinence so bad I thought I couldn't get out of the car without having an accident. I thought that in this flare, Myrbetiq just wasn't working as well, but I never considered Myrbetiq might be part of the problem! I had asked my new urogynocologist for an alternative to the Vesicare which was working for me because I was concerned about potential future problems with memory since my father died last year of Alzheimer's. I forgot to consider that the new med prescribed by my new doctor might not work or might make it worse. Now with this flare I'm reminding myself to go back to what I know works and take one day at a time (not worry about what might happen someday in the future). Also not to think a doctor can evaluate the pros and cons for me. True, this time I did have a long car ride, an unusual glass of red wine, and sex with my husband-- all contributors too -- but now I don't think I'll be so hard on myself. Thanks, again, for helping me get my head straight.

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            • #21
              Let us know if you get better without the myrgbetriq.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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              • #22
                Just realized I never got back on this thread to add to our information vault. I DID get better without the myrbetriq. I ended up with a UTI during that flare--not sure of the whole relationship and my new urogyno called in an antibiotic after three days. By the end of it all I was back on the Vesicare and feeling much better, but I have to admit since this whole flare, I haven't been feeling as good as I was before it all started. Also haven't been back to that urogyno because not only was it impossible to be in contact with them, but the lab they sent me to for the urinalysis cost me $400 after insurance! I have never had a test for a UTI cost me that much. I really don't feel I can trust this doctor, so I'm back without one. In fact, I'm kind of afraid my bad experience with a urologist years ago, and my complaint, has me "marked" in that community.

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                • #23
                  Originally posted by Chris Schultz View Post
                  Just realized I never got back on this thread to add to our information vault. I DID get better without the myrbetriq. I ended up with a UTI during that flare--not sure of the whole relationship and my new urogyno called in an antibiotic after three days. By the end of it all I was back on the Vesicare and feeling much better, but I have to admit since this whole flare, I haven't been feeling as good as I was before it all started. Also haven't been back to that urogyno because not only was it impossible to be in contact with them, but the lab they sent me to for the urinalysis cost me $400 after insurance! I have never had a test for a UTI cost me that much. I really don't feel I can trust this doctor, so I'm back without one. In fact, I'm kind of afraid my bad experience with a urologist years ago, and my complaint, has me "marked" in that community.
                  Have you checked to see if there's a specialist near you listed on this site? If you go to the home page, you'll find a link to find a doctor who has either been recommended by another IC patient or has expressed an interest in treating us.


                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment


                  • #24
                    I wish I read all these reviews first!! My doc put me on Myrbetric about 3 weeks ago and I have been horrible. I am actually worse that I was before. I told my doc and she says she would like me to stay on it. It seems almost everyone who has posted on here about Myrbetric has not had a positive experience. My doc said it takes time for it to kick in. Did anyone who has tried Myrbetric get worse first then get better? Please I am doing so bad right now it is hard to leave the house. I literally have to go before I leave the bathroom. I am just trying to figure out if I should just stop this medicine or keep plugging for it to maybe help as my doctor says.

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                    • #25
                      This is a very old thread --- since then I have taken Merbetric, but only as an "as needed" basis --- it seems to help with bladder spasms. I don't need it often and there's no way of knowing if a flare is going away on its own or if it's the Merbetric that is doing it. Have you tried keeping a diary to see if you can identify any problem areas?

                      Sending warm healing thoughts,
                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment


                      • #26
                        I do not keep a diary. I just know that I feel much worse. My doctor is convinced I should stay on it but she is not inside my body. I go so much, and that was before this medicine. So would you say the Merbetric helps or no? I read it takes up to 2 months for it to kick in. Is this your experience? At what point will I get better to the point of being where was I before I started this medicine and then seeing an improvement?

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