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  • #1

    Kentera (oxybutynin transdermal patch)

    Hi all,

    My GP started me on Kentera on Monday. For the month before that I was taking 5mg of Oxybutynin orally 3x daily.

    Has anybody else had any experience of transdermal oxyb., how did you find it?

    Also - the patch only releases 3.9mg of oxyb daily, how can this compare to taking 15mg orally daily? I'm not sure how it's working for me so far, my frequency has been kinda meh for the past few days but I'm trying to stay positive and hope that it works for me. GP says if it doesn't I can go back to the oral tablets, or even try Myrbetriq as an alternative.

    As always, any advice really appreciated!
    Tags: None
  • #2
    Re: Kentera (oxybutynin transdermal patch)

    There can be an advantage to a patch instead of oral medications --- when we take oral meds, the actual dosage in the body can vary --- higher after taking a pill/capsule, then going down when it's close to time for another dose. The patch maintains a steady dose and can take less medication. It's kind of like my morphine pain pump --- it maintains at a low dose 24 hours a day. I think it's good that you're giving it a try.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      Donna,
      May I ask why you're on pain pump and for how long? I take round the clock pain meds and even have to set alarm to wake up twice a night. I pee every hour and have not even had 2 consecutive hours of sleep for 4plus yrs! ! Going insane! Myrebetriq makes me sick and retention and Oxybutinin also causes retention.
      Dr suggested Botox but he said well you may have ask use a catheter for awhile if it does too good a job. That's insane!
      Losing my mind and memory from no sleep at all !!
      Thanks!
      MadameOvary

      Comment

      • #4
        Originally posted by MadameOvary View Post
        Donna,
        May I ask why you're on pain pump and for how long? I take round the clock pain meds and even have to set alarm to wake up twice a night. I pee every hour and have not even had 2 consecutive hours of sleep for 4plus yrs! ! Going insane! Myrebetriq makes me sick and retention and Oxybutinin also causes retention.
        Dr suggested Botox but he said well you may have ask use a catheter for awhile if it does too good a job. That's insane!
        Losing my mind and memory from no sleep at all !!
        Thanks!
        MadameOvary
        I had back surgery to remove cancer tissue --- and there was some nerve damage resulting. My first pain pump was implanted 6 1/2 years ago and I just had it replaced last month because the battery was near down and they don't replace just batteries. It's located about 2 inches below my waist and 2 or 3 inches to the left of my navel. There's a tube that goes under the skin around to my back. In addition to the pump I do take pain medications, but not nearly as much as I needed before the pump.

        Have you tried smooth muscle antispasmodics like hyoscyamine? You might also want to consider trying botox --- not everyone needs to catheterize after botox. If you ask to be taught to self catheterize, then you would have a better idea of whether you could deal with that. I learned years ago and it's not hard after the first few times.


        Donna

        P.S. to the IC Network.
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.         [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment

        • #5
          Thanks Donna. I had lung cancer surgery 7yrs ago and an open thoracotomy and lobectomy. The resulting nerve damage from the rib-spreader has caused major chronic pain plus I have a bad case of Interstitial cystitis. I would literally jump off a bridge without pain meds.
          just wondering why not just keep taking oral pain meds in light of all the things that can go wrong like infection and battery dying before the can get it resolved possibly (replaced)
          Is it that much better pain coverage or just more convenient?
          Thanks!!!
          Madame Ovary 😉

          Comment

          • #6
            Before the pain pump I had a fentanyl patch and was taking oral medications along with it --- and I spent most of my time sleeping --- the pump gave me back my life. I no longer use fentanyl and have cut back on oral pain meds. For me it was well worth it.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.             [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment

            • #7
              Hi Donna,
              Forgive my ignorance, but the only pain pump I've ever had was in the hospital. So it pumps liquid meds into your system? I only thought you could get an electrical pain implant?
              I'm at 20mls liquid oxy every 6, but it's not enough and doc won't. The pain from both of these conditions is unbearable
              Madame Ovary

              Comment

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