Elmiron has been helpful. I've been taking 1 capsule per day for the last 6 mos, but lately my frequency has increased and sometimes it's just drip, drip, drip! There is the pressure in the bladder like voiding isn't done, so I wait and wait, decide it's finished, leave the bathroom & then go back in there again! Water intake hasn't been as good as it was in the beginning, &, of course, I've eaten lots of different foods. 99.9% no burning, but just frequency. Driving me crazy. Oh, & not to mention that sometimes I have to run to the bathroom, or I'll wet my britches!!! Anyone else having the drip, drip, drip problem. Most of the time the flow is good, depending on water intake. Thanks for your input. Happy New year, may they find a cure. Kind of rhymes! S
Announcement
Collapse
No announcement yet.
Drip, Drip, Drip - Anyone else w/problem?
Collapse
X
-
Have you been checked for infection? That could be part of your problem. Also, it could be that you need to think about diet and keep a food diary for a time to see if you can identify an irritant.
Warm healing thoughts,
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
Yes, I drip, drip, drip, and I just had my 2nd cysto with hydro and urethral dilation. I have to push to get the urine started, ( I know, that is a big no-no...) but, it won't start otherwise. I follow-up from my cysto on 1-7 and will talk with my Uro. then. My stream is pitiful as is the amount. Take Care,
KandyAlways try to do the right thing; it will astonish some people and gratify the rest- Mark Twain
DX: IC-2003, Systemic Lupus w/secondary Sjogren's-2009, Total Hysterectomy with BSO-2005, IBS-forever it seems, Renal Tubular Acidosis, Vitamin D deficiency-2008, Vulvar Vestibulitis-2002, Pudendal Neuralgia-2008
I also try and manage depression/anxiety, Migraines, Too many kidney stones to count-starting in 1991 to the present
I had my 1st urethral surgery at age 4, have had urethral syndrome from then on.
Failed treatments: Elmiron both instilled and oral caused severe increase in liver enzymes
Elavil and Ditropan-severe bladder retention
Currently on pain mgmt, lidocaine gel topically also gives some relief after initial 2-4 min burning when applied.
Prior treatment included pelvic floor therapy and TENS unit, both of which I still do as needed.Comment
-
I too experience a great need to urinate and then can only drip drip drip and then feel like I need to void immediately. It is so annoying, especially at night. KristenComment
-
I'm another dripper, I have to fight the urge to push it on out. I hate when it does that but I guess that's just part of it. Really bites!!
SuccessComment
-
I don't really drip, but "have to" push at the end to empty completely. I know it's bad, but I worry that with some left in my bladder I will get an infection - which I am highly prone to.Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
*****************************
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian TracyComment
-
Oh boy, I am also a pusher! I have to to get it all out although even with pushing it never seems to be empty, or atleast thats how it feels? Why NO PUSHING? I havent been told that but I just got diagnosed yesterday and havent had a follow up appt yet. Not for two weeks. CURIOUS?
*so much to learn!*
ColeenSome day I'll get all of htis into check and learn how to live life with IC. Until then, learn, ask, search and pray. Take care, ColeenComment
-
When you push/strain to either urinate or have a bowel movement, you are putting extra stress on your pelvic floor muscles. Straining for a bowel movement can actually cause a rectocele.
One trick you might try to empty your bladder is to clasp your hands together and apply gentle pressure just above the pubic bone --- then lean over, still pressing gently. Another is to urinate, then stand up for a moment and sit down again.
Many ICers feel more discomfort immediately after urinating than they do before. So after you urinate and have tried the steps above, try NOT straining and just go out of the bathroom for a bit. I know it's difficult, but I also know my bladder feels better ten minutes after I urinate than it does immediately after.
Sending encouraging hugs,
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
-
Hi all
Donna-- I use that trick...the hands on pressure and the getting up, walk around and then sit back down..I do it sometimes 2-3 times....When I am at a public washroom I wonder if people are watching my feet--not that I care though..I had a burch sling done March 02 and my uro says that feeling of not being completely empty is very common. Add the IC and you got a real whammy!
Take care
~~Pam~~ screamGod brought me to it, He will bring me through it!!!
Diagnosed 2003
by cysto/hydro
Elmiron took almost a year- made me sick, caused diarrhea
Pyridium -Made me sick
Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
Tried DMSO instill- had 5 out of 6
Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
Cysto/hydro April 6th 2011-- on expansion only hold one cup
IBS/ IC
High blood pressure meds and Crestor
Metformin (prediabetic)
Sinequan (depression)Comment
-
But mine isn't just the feeling. When I strain I really do get more out.I'll try to get up and then sit back down. I have done the bending over and gentle pressure, but it doesn't seem to help...
Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
*****************************
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian TracyComment
-
Hello. Thank you for your responses! I've been doing better since increasing the fluid (well, actually water (& Cafix - a cup a day or not!)) Now I seem to have a little more burning, but I think it's 'cause of the onion that was in the potato salad & possibly the BBQ sauce on the chx.-friend's hm night before. They forgot to cook plain, so ya know when you're hungry.... Next day a restaurant I enjoy put onion in the coleslaw that day!(?) Don't know why they changed the recipe - usually I don't have a problem w/the rest., & it's chinese. YUM! (I do use Prelief.)
I've also done the hand pressure method ideaLately, I've found if I'm walking towards the bathrm, (gotta go go go - so let's start the flow! - but not until I'm in the proper place. I'm being silly; It must be the fudge. - yep chocolate seems to be ok, but need to eat less) placing my hand above the pubic area & pressing in & up helps the sudden urge to dissipate. What a wonderful discovery! (Except, it may look a little funny in public)
Thanks again! S
PS. Kat - I lived in Boca Raton, Fl for many years. Do you enjoy living there?Steph
Happy New Year - may they find a cure!!! (Have you stopped to smell the roses today?)Comment
-
A rectocele is when the rectum breaks through the vaginal wall and protrudes into the vagina. The bladder can also do the same and is called a cystocele.
And ..... urine is constantly entering the bladder through the kidneys so if you just sit on the toilet for a few minutes, there will be a tiny bit of urine there.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
-
YOUCH! eek
I really do have urine in the same sitting. I don't sit for long - I just strain at the end and I get more. A few seconds later if that long.Does it sound like a PFD kind of thing?
Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
*****************************
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian TracyComment
Comment