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  • #1

    Elmiron/headaches

    I know I seen this topic and can't find it, sorry this is a repeat.
    I have been getting horrible headaches and didn't know why. For personal reasons, I stopped my Elmiron (and hope I don't pay for it) I went from 4 to 3 to 2 to 1 a day and then stopped, a few days after I completely stopped the Elmiron my headache stopped. Has any one else experience this?
    Brat
    'The will of God will never take you where the Grace of God will not protect you.'
    Tags: None
  • #2
    Hmmm I've heard of a few people around here with that side effect. I had hair loss and g.i. issues with it. I dunno if I ever noticed headaches, I might have and just thought they were sinus. Good question.
    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

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    • #3
      I had to stop Elmiron due to severe headache. The good thing is that as soon as I stopped the Elmiron, the headache went away and hasn't returned.

      I had taken it for just under six months when I developed the headache.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

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      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        I also have headaches, usually it is not that bad where I am unable to function. However it has gotten that bad usually just a couple of tylenols will at least knock the edge off so I can think.

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        • #5
          HI! Weird, I have only been taking Elmiron for one week as of today and you know what I have had a terrible headache 3 times in the last week... Almos tto the point that I cant get up it hurts so bad. Although what works for me is Excedrin Migrane. I take two , lay down for 20 minutes and it usually subsides.. I swear by it. Hope that helps... I will continue on Elmiron and stock up on excedrin migrane..... would rather have a headache than all the other symptoms.. thanks Coleen
          Some day I'll get all of htis into check and learn how to live life with IC. Until then, learn, ask, search and pray. Take care, Coleen

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          • #6
            If you haven't tried it already, you might try dumping the elmiron capsule into water and chugging it down. The capsule itself has been a problem for lots of people.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.             [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment

            • #7
              Never thought of that... great idea! will try it and if I never get another "Elmiron Headache" again.. I thank you forever
              Some day I'll get all of htis into check and learn how to live life with IC. Until then, learn, ask, search and pray. Take care, Coleen

              Comment

              • #8
                Coleen,

                I am one of the ones who developed headaches when I began taking Elmiron. I reported that to my uro and he had his nurse check with the pharmaceutical rep. The rep said there have been several cases of headaches being caused by the capsules and told me to try dumping the capsule contents in water and drinking it (as Donna suggested). It worked like a charm for me. No more headaches. I always take my Elmiron that way now. Headaches are a side effect you should report to your uro, but do try taking it out of the capsule. You'll quickly discover whether or not it is the capsule causing the problem.

                Hope this works for you!
                Annie
                Annie

                IC
                Ulcerative Colitis and IBS
                Pelvic Floor Dysfunction
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