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  • Mail order for Elmiron

    My insurance company recently required me to mail order Elmiron. We're in the midst of a cold snap in the northeast and the med froze, so I have tried to determine the effects of extreme temps on the RX. The pharmacists do not know - apparently the manufacturer has done no studies. Does anyone else use mail order - and if so, do you believe the medication is 100% effective for you. I am considering challenging the ins co so that I can again buy it at a local pharmacy.

  • #2
    Janeel,
    Welcome to the ICN. As far as temperature goes, I can't answer that one. Effectiveness... I don't think Elmiron by itself is the whole key in my treatment, I use Hydroxyzine with it as well as watching my diet.
    What I would say about mail order is that I save a ton of money by doing it mail order. I can order a 3 months supply for $30.00, and I think my pharmacy can only give me a 1 month supply and I am sure it would be a lot more expensive. On my recent order it would have been over $500.00 for that 3 months without my insurance. So I would really rethink not using the mail order method.

    Good Luck,
    Jolene
    Jolene

    "Life is what happens when you are making other plans" John Lennon

    IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

    Information for Patients can be found here.
    http://www.ic-network.com/patientlinks.html


    Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




    Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

    "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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    • #3
      I originally bought my Elmiron at a pharmacy and now do it mailorder and have for about a year. I have noticed NO difference in effectiveness at all. This was one of my big concerns, too. I realized that the pharmacy probably gets their stuff through the mail and then it sits on trucks and that helped me not worry so much. AND it is sooooooooooooo much cheaper for me this way.
      Kim

      Diagnosed August 2001

      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

      *****************************

      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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      • #4
        Question girls! We have coverage and I may be loosing that in the next cuople of months as my hubby may be changing jobs? where is it u are ordering the elemiron ? And will i need a new script from my Doc! Thanks in advance Luv sandra!

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        • #5
          I get mine through my husbands insurance, and I know you would have to have a RX and don't think you can order through them without insurance.

          Jolene
          Jolene

          "Life is what happens when you are making other plans" John Lennon

          IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

          Information for Patients can be found here.
          http://www.ic-network.com/patientlinks.html


          Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




          Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

          "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

          Comment


          • #6
            The pharmacist from the mail order finally spoke with the manufacturer, and there have been no studies on the effects of temp extremes. They concluded that repeated freezing (as with first class mail) was probably not good - that a single freezing (as with overnight UPS) was probably not harmful. They also said that heat COULD have a more negative impact - but again no one knows. I recommend that anyone else in this position pay the extra for overnight delivery and request that it be packed in protective styrofoam. Thanks to everyone for their comments.
            By the way, this was Aetna RX, and they were very helpful (and reshipped the med for me) I don't know if you need to be an Aetna insured to purchase from them.

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