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Help with Elmiron

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  • Help with Elmiron

    I was searching through old messages I'd posted under my old screen name and came across this. I thought it might help some of you out there. I found all this out in 2004 when I was taking elmiron .

    "If you call 1-888-ELMIRON or visit http://www.elmiron100.com and you can get this mini kit that has a pill divider to keep up with your meds, newsletters, a booklet on Elmiron which I apparently need to read a bit more carefully lol, and some great info.

    I found out that you can also qualify for reduced or free RX's of Elmiron but you must get your doctor to get the form and have the RN there fill it out according to the info you give them.

    As broke as I am I should qualify.

    I hope this helps the new people, and maybe some of the angels that have been here quite a long time.

    Hugs, Sandy

    oops! I forgot, the phamplets, etc, are called Turning Point, and they are great ."
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

  • #2
    Thanks Sandy, Very helpful indeed!
    IC diagnosed officially via cysto/urodynamics 1/26/07

    Grade II Endometriosis diagnosed via lap 12/11/07

    "Fall down seven times, Stand up eight."

    "Life is a tragedy for those who feel and a comedy for those who think."

    Current Treatments:
    Interstim Since 5/25/07!
    Birth Control

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    • #3
      Thanks Sandy! I also found the site, pparx.org, where you can receive discounts or help with all kinds of prescriptions if you qualify. I don't, oh well, but it looks pretty straightforward and I have seen it on the Montel show, so I think it's real legit.

      ~Claudia

      "A heart is not judged by how much you love; but by how much you are loved by others."
      ~ The Wizard of Oz

      "If I ever go looking for my heart's desire again, I won't look any further than my own
      back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


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      • #4
        Sandy:
        Thanks, I have a friend's Mom who's doctor thinks she has IC, She goes in for a hydro on March 5. I am printing any and all information (diet, medication) that I can find to give to her.

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