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  • Mouth Ulcers

    Recently my uro told me to start taking all 3 Elmiron doses at night. It has helped a great deal.
    The bad side is that I have been getting mouth ulcers (boy do they hurt). I went back and read the side effects of Elmiron and it does say that some people got mouth ulcers. Does anyone else get them and if so, what do you do about them? The OTC medicine I bought hasn't cleared them up.

    ~~Heidi~~
    My issues:
    Adenomyosis -Diagnosed 2010
    Fibromyalgia - Diagnosed 2009
    IBS - Diagnosed 2007
    IC - Diagnosed 2003
    Endo - Diagnosed 1998
    Cystic Acne
    Migraines




    My meds:
    Elmiron orally 100 mg 2x per day
    Effexor 75mg 1x perday
    Welburtin 150 mg 1x per day
    Maxalt (as needed for migraines)
    birth control pills



  • #2
    gosh I didn't have that problem .. wonder if it is the capsul its self.. try empting them in water and chug it down. I think there is something called abrevia to help the sores.. good luck.
    'The will of God will never take you where the Grace of God will not protect you.'

    Comment


    • #3
      I haven't had them yet, but I am prone to them.

      I would switch toothpastes. If your toothpaste contains sodium lauryl sulfate, it will be highly irritating to your mucous membranes. If you switch, you should see some relief. Your mouth needs to heal.

      Hope you feel better soon.
      Sonja

      Dx: Idiopathic Dilated Cardiomyopathy/Congestive Heart Failure-1997, Vulvar Vestibulitis-2006, IC-Feb 2007, Atrophic Vaginitis 08, Heavy Long and Painful Periods leading to Partial Hysterectomy-2007, Rectal Fissure-2007, Pelvic Floor Dysfuntion-2008, Post-Menopausal-2010

      Meds: Coreg, Elmiron, Elestrin, Est/Test Topical Gel, Valium Suppositories, Lyrica, Dyrenium to counteract edema from Lyrica, Pain Meds.

      IC Diet: Very diet sensitive, esp. to spices.

      Comment


      • #4
        Hi Heidi. I am just curious: why did your Doctor tell you to take all three pills at night? Strange. I take one pill in the morning and one at night. I have had sores in my mouth, minor ones that cleared up fast. I'm very sorry you are suffering from that. I wish I could think of something to help you but I can't. Keep us posted. I care, Ziggy

        Comment


        • #5
          All of my pain is in the morning, so he said to try taking all 3 pills at night. And then the mouth ulcers came. Tonight the dentist gave me a Rx for some medicine. Without insurance the box of medicine was almost $2,100. It better clear up my mouth by the time I wake up. If I didn't have insurance, I would have gone without. The pharmacist said the over the counter medicine for canker sores is just a waste of money. That explains why I didn't get any relief from the one I bought last week. The new medicine tastes awful - but if it works I guess it will be worth it.

          ~~Heidi~~
          My issues:
          Adenomyosis -Diagnosed 2010
          Fibromyalgia - Diagnosed 2009
          IBS - Diagnosed 2007
          IC - Diagnosed 2003
          Endo - Diagnosed 1998
          Cystic Acne
          Migraines




          My meds:
          Elmiron orally 100 mg 2x per day
          Effexor 75mg 1x perday
          Welburtin 150 mg 1x per day
          Maxalt (as needed for migraines)
          birth control pills


          Comment


          • #6
            I forgot, I use Jason toothpaste - no fluoride, no sulfates and the don't test on animals

            ~~Heidi~~
            My issues:
            Adenomyosis -Diagnosed 2010
            Fibromyalgia - Diagnosed 2009
            IBS - Diagnosed 2007
            IC - Diagnosed 2003
            Endo - Diagnosed 1998
            Cystic Acne
            Migraines




            My meds:
            Elmiron orally 100 mg 2x per day
            Effexor 75mg 1x perday
            Welburtin 150 mg 1x per day
            Maxalt (as needed for migraines)
            birth control pills


            Comment


            • #7
              Hi, I had the same problem with mouth ulcers, it was drivin me crazy but on advice of my doctor i started taking a zinc tablet and hv"nt had an ulcer since cheers delie

              Comment


              • #8
                re

                i bit the side of my cheek by accident...and it turned into a canker sore that wouldnt go away

                i garaged w/ perioxide in the am
                and listerine in the pm

                (i quit the elmiron too..due to hair loss)

                mouth sore gone
                Quit ELMIRON due to hair loss
                Cystoprotek ROCKS!

                find me on FACEBOOK -
                search my email [email protected]

                Current Meds:
                AM Cystoprotek & ATARAX 50mg
                Dinner CYSTOPROTEK
                PM Elavil 25mg

                Comment


                • #9
                  nausea is back

                  I was having troubles with taking 3 at bedtime- very nauseaous. The pharmacist told me to take one pill 3 X day. The nausea is back. I take ginger gravol during the day and real gravol at night. Does this nausea ever go away? I feel so ill...
                  Interstitial Cystitis: Elmiron and Hydroxyzine
                  Depression/Anxiety: Remeron, Cipralex and Clonazepam

                  *tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
                  * 2 hydrodistentions :

                  * currently on "Nabilone" for pain management

                  Taken the following:
                  Gabapentin no relief but could tolerate it
                  Lyricano relief but could tolerate it
                  Cymbalta severe depression/anxiety etc.
                  Topamax severe nausea and weight loss
                  Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation

                  What helps IC: yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture

                  Other conditions...
                  Vulvadynia (amytriptaline cream - no longer using to to irritation)
                  Severe IBS
                  Chronic Sinus pain (nasal rinse as need)
                  Migraines
                  Lower back and sacroiliac joint disfunction

                  Allergies: Erythromycin, scents and detergents

                  Comment


                  • #10
                    Liquid Lidocaine

                    SOrry to hear about your mouth ulcers. My daughter and husband are very prone to them. I have them take l-lysine tablets every day and it really aids in the prevention of them.

                    My sister inadvertently found a great mouth ulcer pain reliever! Liquid lydocaine. Her dr prescribed it for her during a particularly painful throat infection. Our family tried it for the ulcers & got an Rx from our family physician. We just apply it with a Q-tip. It is fairly inexpensive. Works great for some of us and not so well for others.
                    Last edited by Cheryl1961; 06-30-2007, 06:32 PM.

                    Comment


                    • #11
                      Have you tried Rembrandt anti-canker sore toothpaste?

                      I'm not on elmiron, but I'm very prone to mouth ulcers/canker sores. I found the same information a previous poster said, that any toothpaste with sodium laurel sulfate is going to make things worse. I use Rembrandt anti-canker sore toothpaste and it has worked great for me. I recommend it to anyone who complains of canker sores and it works for them, too. I cannot always find it in stores, so I order it from drugstore.com. Good luck -- I know how miserable sores in the mouth can be!

                      Comment


                      • #12
                        My dentist wrote me an Rx for toothpaste. High flouride content & no SLS. Brand name is Prevident although i use the generic which costs less than $7 I think. Not for use by pregnant or nursing mothers. There are some others that can be prescribed by your dentist. My mouth is super sensitive to SLS. Most OTC toothpastes burn my tongue & mouth like a fire ablaze, but Prevident gives me none of this.

                        I found this link that gives you an idea of some SLS-free toothpaste available.I have never ordered from this site. I am including it for information purposes only. Good luck!

                        http://www.dentist.net/sls-free-toothpaste.asp

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