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  • #1

    Scared to start lyrica?

    I am suppose to start taking Lyrica today. I am so nervous about it though. I have read that it has made some people's IC worse and caused UTIs. That is enough to scare me out of taking it.

    Also read it causes some severe fluid retention in some. I hate meds. Also, I worry about it causing urine retention, since I already feel like I retain some urine as it is in the bladder. I have not heard of many people with IC that take lyrica. Is this not a drug that is normally used to treat IC? I know it is a nerve pain med like neurontin. How will this help IC?

    I am so nervous. My pharnacist said it can cause constipation also. That is the last thing I need. I always get this way when it comes to taking any new meds because I always tend to get alot of unwanted side effects from them.
    Jen
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    • #2
      Lyrica can be very effective in pain control. You are in extreme pain. You need pain relief. There are some with IC who are taking this medication. The good thing is that it can help --- and if you do have side effects, they will go away when you stop the medication.

      Some pain medications help with pain by interfering with the pain receptors in the nerve system, which can be very effective in keeping pain levels down.

      Donna
      Stay safe


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        • #3
          I am taking 150mg of Lyrica twice a day. It has really helped me out -- takes away a lot of the shooting, stabbing nerve pain, and it has been like a magic bullet for my fibromyalgia (yeah, it still flares up, but I don't have all day muscle pain like I used to)

          I have had no side effects from the medication. The first day I took it I was a bit tired, but that disappeared by the next day. Since then, all has been well.
          ****
          Jen

          *Diagnosed with severe IC in 2004
          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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            • #4
              I am glad the lyrica helps you. But does it help with the bladder pain itself? I am needing something to help me with this pain. I am going to try it tonight.
              Jen

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                • #5
                  Yes, that's what I meant about stabbing and shooting pains. I get those in my bladder sometimes. It also helps with burning.
                  ****
                  Jen

                  *Diagnosed with severe IC in 2004
                  *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                  *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                  *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                  **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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                    • #6
                      Lyrica

                      I take 150mg of Lyrica as well. Two times a day. It helps me for the everyday pain but not for large flares. Of all of the medications I have taken it has the least amount of side effects and is well tolerated. I've never gotten worse from Lyrica and have not gotten UTI's from it. I had no problems with constipation from it either. If you take a few pills and don't like it you can always tell your doctor that you are uncomfortable with taking it any further if the side effects are intolerable to you.

                      Good Luck to you!

                      Kara
                      Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                      "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                      I also have some journals of my journeys, past and some present at:
                      http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                      Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

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                        • #7
                          Hi ive been taking it for about 4 months, ive had no major side effects i take 3 a day and 2 three times a day if the pain is unbearable. It helps with bladder pain and spasm and i found it helps for the small pain the "bearable" pain but doesn't touch the i don't want to live another day lke this pain basically the 3 hour stabbing and spasm pain. i also had to take it about 10 days before the tiredness and bad co ordination settled down.Good luck i hope the tablet works for you!!!!!!!

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                            • #8
                              I was prescribed Lyrica for sciatica. That nerve was sending shooting pains down my leg. I started taking Lyrica and that pain disappeared and... my bladder and vulvular pain lessened also. I was happily surprised.
                              Keep track of your reactions and let your doc know what's happening.

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