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weight gain from Elmiron?

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  • weight gain from Elmiron?

    I have been on Elmiron for 2 months now at 200mg 2x a day. I have gained weight, 6 pounds but I am eating less and now that it is spring I have been able to get out and walk a liitle. Besides IC I also have severe arthritis in both knees and my back. I don't walk in winter because I am so afraid of falling. I use a cane when I walk outside the house.

    Anyway, my exercise has increasd a little and I am eating less but I have gained 6 pounds since being on the Elmiron.

    Has anyone else gained weight from being on Elmiron? Do you know if it can cause weight gain? I am already way over weight. The last thing I need is to add more weight for these poor knees to carry.

    So far I have not seen any improvement from the Elmiron either but thank God my hair is not falling out!

  • #2
    I lost 23 lbs in the last 2 years, and I was on Elmiron for 15 months out of that time. I don't think that it has any metabolic side effects, so I wouldn't worry. Elavil can make you gain weight, though...so can a liberal interpretation of the IC diet!
    30 year old Mother, Midwife, Birth Doula, Herbalist, and Massage Therapist with sudden onset of IC approx. 2/16/05 (after a PAP smear and routine gynecological exam). I tried a HUGE list of natural and alternative treatments (including Cystoprotek, Desert Harvest Aloe, Aloe gel, Glucosamine/Chondroitin, L-Argenine, Quercitin/Bromelain, Marshmallow Root...etc) for the first 9 months of having IC, without much relief, until I finally researched and started Elmiron.

    My experience:
    ~Previously took Elmiron 100mg three times a day
    (9/29/05-7/06)
    ~Experimented with dosage (1-2 Elmiron a day recapped into a plain gelcap) and did well with occasional mild flares. (7/06-9/09)
    ~Stopped all together at the 1 year mark (9/29/06) for 10 days. Still felt good, with low-level symptoms.
    ~Decided to go back on it (10/16/06) to see if another year on it will bring me into full (zero symptoms) remission. Currently taking 1-2 pills a day, recapped into a plain gelcap.
    ~ 6/08...Tried to go off Elmiron again, had huge flare at the 3 week mark, went back on 100mg once a day for maintenance.
    -I went off Elmiron for 2 months due to pregnancy and had a complete relapse of IC symptoms to pre-diagnosis levels of pain/frequency. I then went back on Elmiron at 10-12 weeks, but was unable to take it further due to severe morning sickness. The 2nd/3rd trimesters were MUCH better IC-wise, and postpartum is the best I have felt in years. I am no longer on Elmiron for now.
    -20 month postpartum remission from 4/17/09 to 12/10/10.
    -Out of remission after a pap smear on 12/10/10. Pap smears are obviously the main IC trigger for me. Currently trying to cope with loss of the remission.

    Also doing:
    ~Sugar-free/gluten free and strict IC diet (With an emphasis on organic, alkaline and whole foods)
    ~Prenatal DHA/Fish oil supplement
    ~Vitamin D supplement
    ~Culturelle probiotic

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    • #3
      Thanks

      Thanks! It probably isn't from the Elmiron. Guess I am justing eating more than i think I am. I will have to keep better track.

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