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  • #1

    Itching

    Hi All,
    I wanted to ask if anyone has experienced itching with taking elmiron the oral route? My daughter was recently diagnosed even though I knew for years she had IC and she started itching intensly with her first elmiron pill. It is definately the Elmiron. Since she D/C's it she has stopped itching. I am afraid for her to do elmiron instills as I am afraid it will make her itch. It is very intense itching and even the palms of her hands itch! Atarax gives her very little relief.

    Has anyone had this side effect? I have never and have never heard of it.
    thanks for any input
    leeshel
    Tags: None
    • #2
      What does D/C mean?
      -Laura
      • 61 yrs old
      • Diagnosed Feb 2009, but had IC for years before that;
      • Also horribly progressive, debilitatingly painful, severe vascular rosacea and erythromelalgia.

      • Stuff that helps me--
      - the IC diet
      - CystoProtek (wonderful stuff, highly recommended)
      - Vagifem (vaginal estrogen)
      - Remeron (Mirtazapine)- 30 mg nightly for depression and IC nerve pain
      - Hydroxyzine- antihistamine for IC

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        • #3
          D/C is discontinue.

          It seems like I have seen someone here post about itching while on Elmiron. Sounds like maybe she is allergic to it? I'd talk to her doctor for sure - but I wonder if taking it out of the capsule might help? So many people seem to have reactions to that darned capsule!
          Kim

          Diagnosed August 2001

          Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

          Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

          I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

          *****************************

          “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

          “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

            Comment

            • #4
              I agree that a conversation with the doctor is a good idea. It does sound like it might be an allergic reaction.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.               [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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