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New to Elmiron? Please read
I started Elmiron- 3 pills at night. It was horrible. I was so nauseaous by day 4 that I could not get out of bed. My pharmacist advised me to take one pill 3times a day. That really made a diffence. No nausea!! 
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Interstitial Cystitis: Elmiron and Hydroxyzine
Depression/Anxiety: Remeron, Cipralex and Clonazepam
*tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
* 2 hydrodistentions :
* currently on "Nabilone" for pain management
Taken the following:
Gabapentin
no relief but could tolerate it
Lyricano relief but could tolerate it
Cymbalta severe depression/anxiety etc.
Topamax severe nausea and weight loss
Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation
What helps IC:
yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture
Other conditions...
Vulvadynia (amytriptaline cream - no longer using to to irritation)
Severe IBS
Chronic Sinus pain (nasal rinse as need)
Migraines
Lower back and sacroiliac joint disfunction
Allergies: Erythromycin, scents and detergents -
I've been taking Elmiron for two weeks. I had nausea at first, but it did eventually calm down. That said, some suggest taking the powder out of the capsule and mixing it with a bit of water. That seems to help some.mom_in_ma -
any better?
how are you feeling now?
are you still taking the elmrion?
i wanted to mention that i quit my elmiron, due to hair loss
its been 3 weeks now
and only 1 small flare to speak of.
anyway
in place of the elmiron
i am taking
desertharvest.com aloe vera pills
check them outQuit ELMIRON due to hair loss
Cystoprotek ROCKS!
find me on FACEBOOK -
search my email [email protected]
Current Meds:
AM Cystoprotek & ATARAX 50mg
Dinner CYSTOPROTEK
PM Elavil 25mg
Comment
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I would think 3 at once would be hard to adjust to. I take 2 in the morning and 2 at night. The elmiron did affect me negatively at first too but I do believe that the symptoms do subside with a little time.~Laura
There can not be a crisis next week. My schedule is already full.
March 2006 IC tested positive
current treatments for IC:
Zoloft 100mg
Prelief
tramadol hcl 50mg (4-8 per day)
diphenhydramine (1 nightly)
elavil 25mg, Just started Nov 11
additional meds for pain if needed:
darvacet
loratab
percocet
tried Elmiron for over year and didn't see much of a change, gained weight
Also take Lisinolpril for high blood pressure
Other conditions:
IBS '93
depression '94
stomach ulcers '95
Mitral Valve Prolaspe Syndrome '01
Migraines since childhood
Chronic Fatique '03
It's not the number of years in your life that matter but rather the life in your years.Comment
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Elmiron
I still have slight nausea in the morning. I hope I don't loose my hair. How long were you taking it before you starting loosing hair?Interstitial Cystitis: Elmiron and Hydroxyzine
Depression/Anxiety: Remeron, Cipralex and Clonazepam
*tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
* 2 hydrodistentions :
* currently on "Nabilone" for pain management
Taken the following:
Gabapentin no relief but could tolerate it
Lyricano relief but could tolerate it
Cymbalta severe depression/anxiety etc.
Topamax severe nausea and weight loss
Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation
What helps IC: yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture
Other conditions...
Vulvadynia (amytriptaline cream - no longer using to to irritation)
Severe IBS
Chronic Sinus pain (nasal rinse as need)
Migraines
Lower back and sacroiliac joint disfunction
Allergies: Erythromycin, scents and detergentsComment
Comment