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  • New to Elmiron? Please read

    I started Elmiron- 3 pills at night. It was horrible. I was so nauseaous by day 4 that I could not get out of bed. My pharmacist advised me to take one pill 3times a day. That really made a diffence. No nausea!!
    Interstitial Cystitis: Elmiron and Hydroxyzine
    Depression/Anxiety: Remeron, Cipralex and Clonazepam

    *tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
    * 2 hydrodistentions :

    * currently on "Nabilone" for pain management

    Taken the following:
    Gabapentin no relief but could tolerate it
    Lyricano relief but could tolerate it
    Cymbalta severe depression/anxiety etc.
    Topamax severe nausea and weight loss
    Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation

    What helps IC: yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture

    Other conditions...
    Vulvadynia (amytriptaline cream - no longer using to to irritation)
    Severe IBS
    Chronic Sinus pain (nasal rinse as need)
    Migraines
    Lower back and sacroiliac joint disfunction

    Allergies: Erythromycin, scents and detergents

  • #2
    I've been taking Elmiron for two weeks. I had nausea at first, but it did eventually calm down. That said, some suggest taking the powder out of the capsule and mixing it with a bit of water. That seems to help some.
    mom_in_ma

    Comment


    • #3
      any better?

      how are you feeling now?
      are you still taking the elmrion?

      i wanted to mention that i quit my elmiron, due to hair loss
      its been 3 weeks now
      and only 1 small flare to speak of.

      anyway
      in place of the elmiron
      i am taking

      desertharvest.com aloe vera pills

      check them out
      Quit ELMIRON due to hair loss
      Cystoprotek ROCKS!

      find me on FACEBOOK -
      search my email [email protected]

      Current Meds:
      AM Cystoprotek & ATARAX 50mg
      Dinner CYSTOPROTEK
      PM Elavil 25mg

      Comment


      • #4
        Originally posted by bladder View Post
        I started Elmiron- 3 pills at night. It was horrible. I was so nauseaous by day 4 that I could not get out of bed. My pharmacist advised me to take one pill 3times a day. That really made a diffence. No nausea!!
        I would think 3 at once would be hard to adjust to. I take 2 in the morning and 2 at night. The elmiron did affect me negatively at first too but I do believe that the symptoms do subside with a little time.
        ~Laura

        There can not be a crisis next week. My schedule is already full.

        March 2006 IC tested positive

        current treatments for IC:
        Zoloft 100mg
        Prelief
        tramadol hcl 50mg (4-8 per day)
        diphenhydramine (1 nightly)
        elavil 25mg, Just started Nov 11

        additional meds for pain if needed:
        darvacet
        loratab
        percocet
        tried Elmiron for over year and didn't see much of a change, gained weight

        Also take Lisinolpril for high blood pressure

        Other conditions:
        IBS '93
        depression '94
        stomach ulcers '95
        Mitral Valve Prolaspe Syndrome '01
        Migraines since childhood
        Chronic Fatique '03


        It's not the number of years in your life that matter but rather the life in your years.

        Comment


        • #5
          Elmiron

          I still have slight nausea in the morning. I hope I don't loose my hair. How long were you taking it before you starting loosing hair?
          Interstitial Cystitis: Elmiron and Hydroxyzine
          Depression/Anxiety: Remeron, Cipralex and Clonazepam

          *tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
          * 2 hydrodistentions :

          * currently on "Nabilone" for pain management

          Taken the following:
          Gabapentin no relief but could tolerate it
          Lyricano relief but could tolerate it
          Cymbalta severe depression/anxiety etc.
          Topamax severe nausea and weight loss
          Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation

          What helps IC: yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture

          Other conditions...
          Vulvadynia (amytriptaline cream - no longer using to to irritation)
          Severe IBS
          Chronic Sinus pain (nasal rinse as need)
          Migraines
          Lower back and sacroiliac joint disfunction

          Allergies: Erythromycin, scents and detergents

          Comment

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