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Hello all. I was diagnosed with IC on May 17th after hydrodistention. Have been on Elmiron for a week and started to notice blood in Urine. Its not always..only somtimes..
Anyone had similar experience or I should go back to my doc?
I would definitly call the dr. Sounds like you have a uti, I doubt the blood is caused from the Elmiron. Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:
I agree that you need to talk with your doctor. It sounds very much like you could have an infection.
Donna
Stay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool
Yes!! The same thing happened to me, and my doctor did not know that elmiron can cause this, I had to go through tests, colonoscopy, etc for nothing! because it was the elmiron!! You should still go to the doctor but you should know this, I was a little annoyed when they figured it out, hopefully it will be nothing serious!
I always have microscopic blood in urine, before Elmiron and now. It runs trace to plus 1. My Uro says a majorityof ICers run trace blood in their urine with no infections.
Sammi
Meds: Melatonin 3mg @ bedtime if needed. Estrogen 1.5 mg troche and 0.1 mg Estrace cream.
Diagnosis: IC, PFD (both in remission)
If I remember right elmiron has blood thinning characteristics.I remember discontinuing the elmiron right before my biopsy was done.I was told to get off of it before the biopsy.Also I believe I had to stop my Lipitor too because it also is an anticoagulant.Ic seems to cause the bladder to bleed by itself.You may need to check with your doctor about that.
54 year old male
Diagnosed with IC in 1994
Had symptoms since 1992
Three cystoscopies.One biopsy with hydrodistention.
This is what I have tried,Dmso cocktail,Elavil,Atarax,Hytrin,Detrol,Pyridium,Elmiron,Allegra,Augmenti n,Flomax,Ditrapan,Vesacare.
Sent urine samples about 10 years ago to the famous Dr Fugguzatto.Went through plenty of Dr's which took about 2 years for an IC diagnosis.I am considered having one of the worst IC conditions known to my doctors.
Thanks to reading the great info on this board I am presentally trying 3 more natural remedies.Msm,Glucosamine,and Quercetin
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