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Went Off Elmiron

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  • Went Off Elmiron

    I just went off Elmiron after 10 months. It didn't help and it seems like 1/2 my hair fell out. I don't know what else to try.
    I take Urocit K, effexor, MS Contin, fiber, stool softeners, Cystoprotec. I've also tried the diet, vicotin, laxatives (because of the side effects of pain pills), Cysta Q, elmiron installs, a Caspasian install, Aloe, a hydro, physical therapy, an interferential stimulator, and probably more.
    I just started MSM. I don't know if there's anything to make me feel better. This is so frustrating and difficult. I hate the time before my pain killer kicks in, which is now.
    I have a busy weekend ahead. My friend is getting married and I'm in the wedding. I hate to say this, but I can't wait until it's over. I've been so busy ever weekend since May when I threw a baby shower for my other friend. I need some time to take it easy.

  • #2
    I'm sorry that it didn't work for you. And the hair loss is such an unfortunate side effect, especially if it doesn't work Is your main most bothersome symptom the pain? There are so many other pain meds to try. It does sound like you've tried just about everything else, huh? I'm sorry you haven't found anything that gives you adequate reilief yet. Hang in there