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  • Elmiron and Vision Problems

    Hi all,

    I was diagnosed with IC three months ago. Thankfully, I have been able to get the pain under control through diet alone which is a great blessing. Unfortunatly, I am still having issues with urgency (especially at night) and it is driving me crazy.
    Anyhow, I am very sensitive to medications and I have had bad experiences in the past with side effects. I am not on any meds now but my urologist has suggested that I try Elmiron.
    I am VERY concerned about the possible side effects of this drug and I was wondering if any of you have experienced vision problems on this drug. I have read multiple accounts online of Elmiron causing blurred vision, vision changes, and in some cases even causing mucus to build up over the surface of the eye.
    While I am interested in getting help with my urgency, I feel my vision is too precious to risk.
    Have any of you experienced visual side effects while on Elmiron?

  • #2
    I have not had any problems with Elmiron. I take 300 mg a day,and have been on it since end of April this year.

    Comment


    • #3
      I have no problems with the drug. I have been on it ever since 2005. I have not read the info that comes with the medication. When I get my refill I just throw it in the trash and not give it a second thought.

      DIAMIC65

      Comment


      • #4
        Keep doing your research. Check the manufacturer's website for most common side effects. When I began taking Elmiron I read as much as I could about it. I don't remember vision issues being high on the list of side-effects, and I am guessing that is very uncommon. The most common side-effects are gastro-intestinal, hair loss and the possibility of mild blood-thinning and/or bruising. It seems to be almost universal that any side-effects are reversible if you stop taking the medication, but I suppose there is always a small risk when taking any drug that has to be weighed against the possible benefits.

        I have had no side-effects from Elmiron and it has helped me greatly.

        Comment


        • #5
          I did have vison problems and massive headaches when I took it.
          'The will of God will never take you where the Grace of God will not protect you.'

          Comment


          • #6
            Re: Elmiron and Vision Problems

            Originally posted by gabby451 View Post
            Hi all,

            I was diagnosed with IC three months ago. Thankfully, I have been able to get the pain under control through diet alone which is a great blessing. Unfortunatly, I am still having issues with urgency (especially at night) and it is driving me crazy.
            Anyhow, I am very sensitive to medications and I have had bad experiences in the past with side effects. I am not on any meds now but my urologist has suggested that I try Elmiron.
            I am VERY concerned about the possible side effects of this drug and I was wondering if any of you have experienced vision problems on this drug. I have read multiple accounts online of Elmiron causing blurred vision, vision changes, and in some cases even causing mucus to build up over the surface of the eye.
            While I am interested in getting help with my urgency, I feel my vision is too precious to risk.
            Have any of you experienced visual side effects while on Elmiron?
            i have changed vision im scared and i hope it goes ihave beenoff for 5 days I pray it gets better ,,Will not take this drug,,,,also light headness andburning in eyes

            Comment


            • #7
              Originally posted by Sheila Eastin View Post
              Re: Elmiron and Vision Problems



              i have changed vision im scared and i hope it goes ihave beenoff for 5 days I pray it gets better ,,Will not take this drug,,,,also light headness andburning in eyes
              How is your vision? I wish I knew about vision issues before. I have damage from elmiron to my retinas. I have been off it for a year and hoping damage stops soon

              Comment


              • #8
                Originally posted by Sheila Eastin View Post
                Re: Elmiron and Vision Problems



                i have changed vision im scared and i hope it goes ihave beenoff for 5 days I pray it gets better ,,Will not take this drug,,,,also light headness andburning in eyes
                Do you have vision issues from elmiron? I do. How long have you been off elmiron? Has your vision stabilized or worsened after stopping elmiron?

                Comment


                • #9
                  Originally posted by HollyS View Post

                  Do you have vision issues from elmiron? I do. How long have you been off elmiron? Has your vision stabilized or worsened after stopping elmiron?
                  Holly, how are you doing --- did your vision stabilize?

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment


                  • #10
                    Has only been a couple months since damage was found. Supposed to have an OCT again in July. Hopefully they will not cancel it. Does not seem to be worse but I have issues with light sensitively, dry eye, and my vision is "off" as if my 2 eyes are not seeing the same. Hard to see on computer. I am suffering from a lot of anxiety and depression over it and having a hard time coping

                    Comment


                    • #11
                      Originally posted by HollyS View Post
                      Has only been a couple months since damage was found. Supposed to have an OCT again in July. Hopefully they will not cancel it. Does not seem to be worse but I have issues with light sensitively, dry eye, and my vision is "off" as if my 2 eyes are not seeing the same. Hard to see on computer. I am suffering from a lot of anxiety and depression over it and having a hard time coping
                      I sincerely hope we'll be past the virus crisis by July, but I suspect there will still be some regulations in place. If they should suggest postponing it, I suggest you let them know of your concern.

                      Sending gentle hugs,
                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment

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