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Weight Gain with Elmiron

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  • Weight Gain with Elmiron

    I have only been on Elmiron for a short while and seems like its working a little bit even though I continue to have flare-ups..I am trying other natural methods too..Its all driving me crazy!! I feel like I need Dr.House!! I spend hours upon hours trying to figure it all out...what did I do? what did I eat? is it stress? is it sex? is it because my pants are 2 tight!!!! OMG it SUCKS!! I have a very kind husband who listens and tries to help but I know he is sick of hearing about this awful IC!! Anyway..I am trying to lose weight and have read Elmiron can cause weight gain? does anybody know anything about this?? Another thing I was wondering about...when I have bad flares my stomach seems almost swollen...like I couldn't suck it in for anything!! Sorry for all the complaining..but so thankful there are people out there who understand..sending good thoughts to all my IC SISTERS!!:
    Last edited by dixiecupdog; 02-04-2011, 12:29 PM. Reason: spelling

  • #2
    1) My husband often comments we need House.
    2) TOTALLY sucks!!! Usually stress, for me. And tight pants. See #4.
    3) Promise your husband that as you feel better, he'll hear about it less. My husband can attest to this.
    4) I hadn't read that Elmiron could cause weight gain. I'm pretty sure my interpretation of the IC diet as, "Eat as much vanilla ice cream and as many peanut butter cookies as you can" is what's currently making me gain weight however.
    5) I hear the IC stomach is totally normal... I've been trying to pretend like MY growing stomach is caused my IC. And it is... see #4.

    Can you tell I'm frustrated with my diet and need for comfort food lately??
    Symtoms started July 2010.
    Severe pelvic floor pain only.

    2 time PT graduate!
    In medical remission since August 2011; able to eat and drink anything I want currently.

    IC meds:
    200 mg Elmiron in the morning
    100 mg Elmiron @ night
    Macrobid after intercourse

    03/11 07/11 01/12
    If at first you don't succeed: 07/26/2013!

    Comment


    • #3
      Elmiron in weight gain

      I have been on elmiron for a month now and I notice that I have more food cravings. Seriously, I have to stop myself from wanting to eat two dinners in one night. I only heard of like 2 other people having this problem on the ICN. So it is probaly rare. i hope I dont gain weight cause Im trying to loose some
      Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

      I have moderate-severe IC

      Currently stopped taking all medications due to pregnancy

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      • #4
        This is the first I have ever heard of Elmiron causing weight gain or cravings. I would think it is something else causing those side effect. Many people have talked about elmiron on here and I can't think of any talking about these problems. Do a search of posts and see what you find. Elmiron is similar to heparin and is a mild blood thinner, nothing that would cause cravings.

        Like meResque said, I took the vanilla ice cream tip too literally as well!

        Sandra
        Link to the patient information, everything from What is IC? to Disability
        http://www.ic-network.com/patientlinks.html

        American Urological Association Clinical Guideline
        Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
        http://www.auanet.org/content/guidel...ent_ic-bps.pdf

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        • #5
          Well, I did find out today I have another excuse other than the IC diet for my growing belly.
          Symtoms started July 2010.
          Severe pelvic floor pain only.

          2 time PT graduate!
          In medical remission since August 2011; able to eat and drink anything I want currently.

          IC meds:
          200 mg Elmiron in the morning
          100 mg Elmiron @ night
          Macrobid after intercourse

          03/11 07/11 01/12
          If at first you don't succeed: 07/26/2013!

          Comment


          • #6
            Weight

            Is congratualtions in order?

            I lost a lot of weight on Elmiron, and sticking to the ic diet. I didn't eat past eight o'clock because of taking the medication on an empty stomach. I'm not taking Elmiron any more, and I have noticed that I actually gained a pound or two. I started nibbling past eight o'clock, and I have been taking estrogen. Wow, estrogen makes you swell. I had to cut out the salt.

            We all react differently to medications and food. It's very challenging to figure out what causes us to flare. Was it the food, did I exercise to long, or was it the medication? I have had all those same questions and thoughts you mentioned in your post. I think it's the normal process one goes through when assimilating IC or any diagnosis. I just started a journal where I write down all the foods and medications I take daily, and what my pain level is and symptoms. Maybe after a month I can go back and find a pattern, that I couldn't see on a daily perceptive. I'm wishing you good news and pain free days ahead. Keep smiling!
            Diagnosis: Endometriosis, IC, PID, PCS, PFD, PN/PNE, VV, fibro, Pelvic Adhesions, DDD, Hysterectomy at a young age. Unable to take estrogen, causes pain—extremely bad pain.

            Thankful: For all the support and comfort I receive on this site.

            Comment


            • #7
              I kept a food journal too and it helped me so much.I have been on Elmiron for almost 2 years and have very few symptoms from foods.Elmiron did not cause me to gain weight but Imipramine did.

              Comment


              • #8
                Originally posted by meResque View Post
                Well, I did find out today I have another excuse other than the IC diet for my growing belly.
                hey congrats

                Comment


                • #9
                  Thanks for the congrats.
                  Symtoms started July 2010.
                  Severe pelvic floor pain only.

                  2 time PT graduate!
                  In medical remission since August 2011; able to eat and drink anything I want currently.

                  IC meds:
                  200 mg Elmiron in the morning
                  100 mg Elmiron @ night
                  Macrobid after intercourse

                  03/11 07/11 01/12
                  If at first you don't succeed: 07/26/2013!

                  Comment


                  • #10
                    Bob did as well gain weight while on Elmiron, but it's hard to say whether it was due to his inactivity because he felt like crap due to the IC pain and just could NOT move around, or the drug(s). Being off of it has not affected his efforts at weight loss, it was diet. (low carb plus the IC diet) You have to look at all your meds and their interactions. You have to understand that a lot of ICers become a lot less active, period, cause it just plain hurts. Therefore...it piles on. Good luck, our doc just recommended a gentle walk for now. Jill, wife of Bob

                    Comment


                    • #11
                      weight gain

                      What you say make alot of sense...There are days when my pain is soo bad..I have become less active with spending lots of time on the couch with my best friend the heating pad! I use to go to a spinning class which I loved but noway anymore...just thinking about that bike seat makes me hurt..its all so depressing and I feel some days just beat down by the whole thing...best of luck to you guys and wish you happy feeling good days!!!

                      Comment


                      • #12
                        Re: Weight Gain with Elmiron

                        Hi I'm new to this terrible disease since April and sound so much like you wondering what when wrong and looking for answers, the best Urologist and many remedies to heal if not cure which I wish for more .I tried medications but side effects are the worse and I never liked taking so much or noting at all.How do people live on so many medications? .Looking for a natural way that can do just about the same. My husband been beside me through this all and I feel so bad we can have the wonderful intimacy relationship we e as having before April .scare to try course of fares that everyone mentioned on the IC network 24 to 48 hours omg that sounds horrible .Is there any real.cure and all these urologist don't do nothing but treat with the same pills that we get side effects from or last for a few and have to live taking them forever .Pills add to more complications and as for Emirion it coates, meaning you're not really getting rib of the disease and it takes long time to work .This is a painful learning experience I don't want to live with Want to be back to the way I was PAIN FREE HELP !
                        Last edited by Soledais; 07-06-2015, 08:16 AM.

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                        • #13
                          Re: Weight Gain with Elmiron

                          This is a very old thread; but --- if elmiron helps, it's natural to want to eat more when we feel better. It's tough having something for which there isn't a cure, but most of us, with some diet changes and treatments, do feel good most of the time.

                          Hang in there. You will have better days.

                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                          [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

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                          • #14
                            Re: Weight Gain with Elmiron

                            Sole, sent you a private mail, so please look for it and get back. Hang in there, you are just getting started on your journey, don't be freaking out now!!! There are many, many things that help many, many people, will take some time, but please don't despair to the point you are even considering removal, that is the last and very final step. Relax, take a deep breath and calm down!!! You will find a lot of support, just please, breathe, in, out, relax!!! J

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