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So depressed and overwhelmed right now

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  • #1

    So depressed and overwhelmed right now

    I can't seem to stop crying right now. I've been so depressed lately. I've had off and on flares since November when I lapsed on my Elmiron. I had been in remission for over a year and now here I am again at square one.

    I guess I'm sad because I feel like my marriage is suffering right now. I am newly married and blessed to have a loving and supportive husband. I just feel like our relationship suffers because I am not able to have intercouse that often. Actually as of today its been a looooong time since that has happened. I'm so angry that I have this stupid disease. Im 31 and should be enjoying life right now but instead I'm in constant pain.

    I think I need to go back on my celexa maybe that would help with the anxiety and depression but those drugs have sexual side effects. I can't win either way. I'm so thankful for this network. This and God have been my rock on days like today. Thankyou for listening.
    Michelle Rodriguez
    Diagnosed with IC in 2008 by cystoscopy and biopsy
    Pelvic floor disfunction, Recurrent yeast infections and bacterio vaginosis. Diagnosed with overactive bladder January 2012
    Currently taking:
    Elmiron 200mg twice a day
    Rapaflo 8mg
    Zyrtec, prelief
    Uribel as needed
    Vesicare as needed
    Have tried:
    Xanax, vesicare
    Sanctura (gave me insomnia)
    Celexa, wellbutrin
    Prestique
    Cystoprotek
    Aloe Vera pills
    D-mannose
    Bladder instills
    Tags: None
  • #2
    Yes I know IC really sucks. intercourse can be very difficult. have you tried elavil. some people with painfull intercourse say it works for them. I guess it kinda deadens the nerve pain. Also have you gone to the pain management clinic? they may be able to help you with painfull intercourse. Im not sure what to tell you about the flares. You might can have ur urologist do a rescue instillation for you. that might get rid of your flare. I hope you feel better
    Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

    I have moderate-severe IC

    Currently stopped taking all medications due to pregnancy

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    • #3
      awww michelle you look beautiful in your wedding dress/photo, you two make such a cute couple.i'm recently diagnosed with IC and i often worry about when i meet my future husband if this will be an issue for us.i'm hoping he either has a low sex drive or can settle for less than intercourse and be okay with it but i know men usually arent like that especially when it comes to sex and i dont want to have to "settle for less" either sometimes.
      i would like to find a man that has IC like me but i dunno if that will happen.i say dont be sad..if you two are truly in love like when you first met or got married..love conquers all and so does God.go to therapy together if you have to.even if you didnt have ic,all marriages hit a rough spot at some point. its how you make it through the rough times.the vows are in sickness and in health and for better or for worse right?
      Newly IC diagnosed as of February 2011.

      Medications I'm on that seem to work:
      Zoloft- one once a day
      Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

      Failed Meds:
      Elmiron-after 4 months,digestive side effects got to be too much
      tramadol-allergic
      DMSO treatments(5-6)
      probiotics

      THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
      AROMATHERAPY-candles,incense
      Village Naturals Aches and Pains Peppermint Bath Salts
      Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

      ACUPUNCTURE/HERBS
      Significant pain relief so far.

      MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
      ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

      Add me on facebook Angela Hasic

      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
      Lord, make me an instrument of your peace;
      where there is hatred, let me sow love;
      when there is injury, pardon;
      where there is doubt, faith;
      where there is despair, hope;
      where there is darkness, light;
      and where there is sadness, joy.
      Grant that I may not so much seek
      to be consoled as to console;
      to be understood, as to understand,
      to be loved as to love;
      for it is in giving that we receive,
      it is in pardoning that we are pardoned,
      and it is in dying [to ourselves] that we are born to eternal life.

      Comment

      • #4
        Michelle,

        My husband and I went thru this this year, we've been married 20 years. It was really hard, but you need to talk to him about this and get creative with other ways to be intimate. My husband said he just wanted to know that the faucet(sex) was not turned off for good, he was ok if it was just a trickle. PT has helped a lot also taking a muscle relaxer and using a heating pad after helps a lot.

        Suzanne

        Comment

        • #5
          If the celexa was helping, I think it would be a good idea to talk with your doctor about taking it again.

          Warm hugs,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.           [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment

          • #6
            Sorry you are having such a rough time. It's hard enough when you are a newlywed and getting used to living with someone else, sharing finances and household chores, and learning to compromise on everything and then to have to deal with IC and the sex issues on top of it, well, it can be overwhelming.

            I think it would be a good idea to talk to the Dr. who r/xed the Celexa. There maybe something new you could try that may not have major side effects for you. There are lots of antidepressants out there that work well for IC patients and some of them even help with IC symptoms in additon to the depression. It's definately worth having a conversation with your Dr.
            I am not a medical professional. I do not give medical advice. In all cases, I urge you to talk to your Dr. about your treatment options.

            D/Xed 2003 with IC. Also have the co-existing condtions of VV, Vulvadynia, Lupus, Fibro, GERD, CPP, Endo, & Adhesions, and Depression

            Meds: Estrogel (due to total Hyster)
            The meds r/xed by my Pain Dr. from the Pain Clinic are as follows: Morphine ER and IR, Baclofen, and Lyrica and Seroquel (used off-label as a sleeping pill, but it also helps with depression)

            (I listed my meds in case someone reading this has been told like so many ICers that Drs dont r/x pain meds for IC.) I want you to know that there ARE tons of us who are also dealing w/this disease and the pain and many of us ARE on pain meds.)


            John 3:16 For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have everlasting life.

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