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Elmiron-anyone seen improvements quickly?

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  • Elmiron-anyone seen improvements quickly?

    Just wondering if any of you have seen any improvements in less then 3 months.
    Cindi


    Gelnique for frequency/urgency - works great
    Macrobid after sex
    Prilosec, continuous birth control pills
    synthroid .088mg, mucinex-d, restasis

    Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

    Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

    IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
    AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
    AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
    Great treatment flowchart on page 19 of the pdf

  • #2
    Yes, it's help me a lot after 6 weeks.

    I also do better after 3 months.

    But to be honest, I see a huge difference after one year.

    I can cheat for a coffee (low acid) or small amount of chocolate now.

    I am almost pain free. Some time I have some burning or urgency but it's very rare now.

    Elmiron and Elavil almost save my life
    Sorry if my english is not perfect. My first language is french.

    Current treatments:
    -IC diet
    -Elmiron 300mg
    -Elavil 20mg at night
    -Ditropan 5mg if needed (mostly in menstrual flare)
    -Alesse Continuous use birth control pills
    -Pyridium if needed
    -Tradamol if needed
    -Tylenol codeine if needed

    I also take

    Avapro high blood pressure
    Maxalt migraine
    Benadryl for allergies

    It's take 2 years before I got my diagnostic. I am the lucky one that Elmiron help a lot. Frequency and Urgency make me crazy at first. And after 1.5 years, burning in my bladder coming.

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