Tweet
Does Elmiron make anyone else tired? I have only been on it for 2 months, and I have no motivation and I could sleep 24/7. 
heather
heather
-
-
Pain/discomfort is one thing that can cause extreme fatigue.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
I do know many IC'ers, including me, claim to be tired more often. I have never read anything about Elmiron being the cause of it. Of course, I was told CFS a while back. Oh! I also deal with degenerative disc disease and have been known to take many naps. Yep! I can skip Elmiron and not get more energy all of a sudden. Oh! I don't have all the pain with IC, but all the neck, shoulder, and back pain don't give me any extra energy and/or motivation at all.Comment
-
I've been debating taking Elmiron. I have to say though, with all of the IC pain, I feel constantly fatigued anyway. Did you feel this way before the Elmiron?~Star B.
Conditions:
Interstitial Cystitis
Fibromyalgia
Chronic Fatigue
Endometriosis
Neurally Mediated SyncopyComment
-
I suffer from fatigue as well but I don't think it has anything to do with the elmiron. Pain, stress and suffering from a chronic disease can all cause fatigue and depression. Sometimes fatigue is a sign of depression and with IC it is easy to get depressed.Link to the patient information, everything from What is IC? to Disability
http://www.ic-network.com/patientlinks.html
American Urological Association Clinical Guideline
Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
http://www.auanet.org/content/guidel...ent_ic-bps.pdfComment
-
I don't feel fatigued from elmiron, been on it almost a month now. I did feel very fatigued on both nortriptyline and norflex, probably because I don't sleep well when I'm on them.Cindi
Gelnique for frequency/urgency - works great
Macrobid after sex
Prilosec, continuous birth control pills
synthroid .088mg, mucinex-d, restasis
Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil
Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.
IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
Great treatment flowchart on page 19 of the pdfComment
-
I have only been on Elmiron for three days but it is causing fatigue in me also. I just chalked it up to my body adjusting to it. I have no other side effects other than feeling kind of out of it or drugged. I am hoping this will go away as my body adjusts to it. I really want this drug to help me.Originally posted by hworkman View PostDoes Elmiron make anyone else tired? I have only been on it for 2 months, and I have no motivation and I could sleep 24/7.
heatherDaughter your faith has made you well,go in peace, and be healed of your disease.(Mark 5:34)
Tried:
Detrol:only took one pill and it made me sick
Elmiron:caused horrible pain(took 1 week)
CystaQ:caused alot of burning and pain(only took one pill)
Wellbutrin:only on it for three days as it caused alot of bladder pain
Elavil:Took one pill and it caused a flare that lasted almost two weeks. It was the longest flare I've ever had. Never again..ouch
Prelief:made my bladder burn and feel tingly.
Take:
Uracyst:Started May 19 2011
Enablex:take one pill daily with no issues
Naproxen:for pain as needed
Baking Soda with water:as needed and it's a God send. It brings down my pain within 20 mins.
Venofer: Started April 2012 by IV for low Iron. I do not tolerate oral Iron so this is the route I had to take.Does not bother my bladder but did have other side effects. I take Benedryl with each treatment to avoid side effects.
Supplements:Whey Protein powder daily
Dessert Harvest Aloe It has been helping alot but I can only take it every two days as my "die off" reaction has been severe.Comment
-
It's not the Elmiron. Your body is exhausted from the pain and suffering. Remember you may feel like this for months before the Elmiron has a chance to work. Give it some time before you give up.Your Friend,
Michelle
Diagnosed: 10/16/09
Elmiron, 100mg 2x per day
Imipramine, 10 mg per day
Diazepam 10 mg for sleep
Zyrtec
Zovia, birth control (ongoing-no periods)
Probiotics
Hydrocodone, 2 pills a day (at any time of day)Comment
-
In my case I believe it is the Elmiron. I have had IC for two years and not felt fatigue to this extent before. This exhaustion has only been for the last 3 days which was when I started the Elmiron.Daughter your faith has made you well,go in peace, and be healed of your disease.(Mark 5:34)
Tried:
Detrol:only took one pill and it made me sick
Elmiron:caused horrible pain(took 1 week)
CystaQ:caused alot of burning and pain(only took one pill)
Wellbutrin:only on it for three days as it caused alot of bladder pain
Elavil:Took one pill and it caused a flare that lasted almost two weeks. It was the longest flare I've ever had. Never again..ouch
Prelief:made my bladder burn and feel tingly.
Take:
Uracyst:Started May 19 2011
Enablex:take one pill daily with no issues
Naproxen:for pain as needed
Baking Soda with water:as needed and it's a God send. It brings down my pain within 20 mins.
Venofer: Started April 2012 by IV for low Iron. I do not tolerate oral Iron so this is the route I had to take.Does not bother my bladder but did have other side effects. I take Benedryl with each treatment to avoid side effects.
Supplements:Whey Protein powder daily
Dessert Harvest Aloe It has been helping alot but I can only take it every two days as my "die off" reaction has been severe.Comment
-
Some of that should go away in a few weeks as you take it. The first couple weeks it gave me a headache and I wouldn't say it made me fatigued but a couple hours after I took it I almost felt like I had low blood sugar. I even posted on it to see if it was just me but others mentioned it too. I got jittery, shakey etc. Now I make sure to eat some protein an hour after I take it. Both of those side effects are gone now. The only side effect I still have it a little light headedness after standing from a squatting postition.Cindi
Gelnique for frequency/urgency - works great
Macrobid after sex
Prilosec, continuous birth control pills
synthroid .088mg, mucinex-d, restasis
Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil
Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.
IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
Great treatment flowchart on page 19 of the pdfComment
Comment