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Elmiron and Pain

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  • #16
    [QUOTE=
    FYI, I am not allergic to sulfa drugs.[/QUOTE]

    Thanks for that info I was thinking if Elmiron gave me pain that must mean I have a sulfa allergy.
    Daughter your faith has made you well,go in peace, and be healed of your disease.(Mark 5:34)

    Tried:
    Detrol:only took one pill and it made me sick
    Elmiron:caused horrible pain(took 1 week)
    CystaQ:caused alot of burning and pain(only took one pill)
    Wellbutrin:only on it for three days as it caused alot of bladder pain
    Elavil:Took one pill and it caused a flare that lasted almost two weeks. It was the longest flare I've ever had. Never again..ouch
    Prelief:made my bladder burn and feel tingly.

    Take:
    Uracyst:Started May 19 2011
    Enablex:take one pill daily with no issues
    Naproxen:for pain as needed
    Baking Soda with water:as needed and it's a God send. It brings down my pain within 20 mins.
    Venofer: Started April 2012 by IV for low Iron. I do not tolerate oral Iron so this is the route I had to take.Does not bother my bladder but did have other side effects. I take Benedryl with each treatment to avoid side effects.
    Supplements:Whey Protein powder daily
    Dessert Harvest Aloe It has been helping alot but I can only take it every two days as my "die off" reaction has been severe.

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    • #17
      i tried elmiron a few times and it caused terrible bladder pain. i am very diet sensitive. i have learned that if i try things in very amounts i can build up to them. i can't build up to everything but some things i can. i started with 1/4 cap of elmiron a day. it caused mild discomfort. after a few weeks the discomfort would pass. then i tried 1/2 cap. then 3/4 etc. it took about 2 months and i'm now up to 4 caps 2 times a day. i haven't noticed the elmiron helping yet but being able to take it is a huge hurdle. hope that helps!

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