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Elmiron and Endometriosis

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  • Elmiron and Endometriosis

    I am in my third month of using Elmiron for my IC, I have seen mild to no improvement, however after years of having my Endometriosis under control with hormone treatments I ended up in the hospital due to the severity of bleeding and pain. I am aware the Elmiron is a blood thinner but at the same time until now I have had no break through bleeding at all and have only been having 3 periods a year under the hormone treatments. Has anyone else had any problems with this? I know that having IC and Endometriosis together is not that uncommon so I was hoping for some insight from anyone who has both and has treated their IC with Elmiron.

  • #2
    I have endo and have been on Elmiron for 6 months, with no worsening of my endo. My gyno diagnosed my IC and prescribed my Elmiron, and saw no reason I shouldn't take it.
    Symtoms started July 2010.
    Severe pelvic floor pain only.

    2 time PT graduate!
    In medical remission since August 2011; able to eat and drink anything I want currently.

    IC meds:
    200 mg Elmiron in the morning
    100 mg Elmiron @ night
    Macrobid after intercourse

    03/11 07/11 01/12
    If at first you don't succeed: 07/26/2013!


    • #3
      Thank You for your reply. I spoke with my Doc and we are not going to change any treatments at this time, we are going to wait for another cycle. We may change hormones so that I get a monthly cycle instead of the 3 a year.


      • #4
        Endometriosis and IC

        Elmiron caused me severe pain and I have endo and adhesions. I had hysto but it came back. Maybe there is a link here.
        Diagnosis: Endometriosis, IC, PID, PCS, PFD, PN/PNE, VV, fibro, Pelvic Adhesions, DDD, Hysterectomy at a young age. Unable to take estrogen, causes pain—extremely bad pain.

        Thankful: For all the support and comfort I receive on this site.


        • #5
          I have been on Elimiron for 5 months and my endo has not worsenend. In fact seems a little better - hard to tell since both are really bad around my cycle which is which. But not worse.