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  • Elmiron and Dizziness help?

    I was wondering if anyone knows why elmiron causes dizziness?

    Is it that is causes low blood pressure, is it dehydration?

    Does anyone know perhaps?
    Live Well
    Love Much
    Laugh Often!




    Diagnosed:
    Dec 2005
    Diagnosis:
    IC
    Cysto/Hydro:
    Dec 2005
    Other Conditions:
    Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
    Meds for IC:
    Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
    Alternative Treatments
    Physical therapy for 8 weeks, Acupuncture (just started).
    Other Meds:
    Skelaxin (as needed)
    Didn't work:
    Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
    Tried:
    Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

  • #2
    Sometimes i get dizzy yep!!! Ill be lying in bed and close my eyes but I can still feel the room spinning! Doesnt last long though. Sometimes I also get nauseated, but that also does not last long for me either. (knock on wood).. Last week I was so nauseated that my bf was convinced I must be pregnant... lol.. For some people it can take a little while before the side effects subside.
    28 yrs old,

    I have little to no problems now with my bladder, unless I am very stressed out, I forget to take Elmiron for a few days, or I eat or drink something that I know is a trigger...(i.e) like eating a tomato or drinking tea.... Took a long time to get here, but it IS possible to feel good again I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC.

    What Works: Tylenol 3's, Pyridium, Elmiron (Going on 4 years now!) HOT showers!!!

    Medications/ Vitamins: Elmiron-100mg 4x's daily Tylenol 3's/Advil (flaring) Vitamin D, WILD salmon oil 4x gels in the morning, Women's ONE a DAY multivitamin (the gummy kind doesn't make me flare) and PROBIOTICS!



    Me in my graduation gown!

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    • #3
      I started on Elmiron on April 27th and I have not felt dizzy since starting it at all! And I am actually a really dizzy sensitive person suffer motion sickness easily too! Crazy how these Med's effect us all so differently! Are you experiencing dizziness from it?

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      • #4
        I have tried it twice with a lot of dizziness... I know it works so well for a lot of people, I have quit taking it only after a little less than a week. I was considering trying it again.....

        I was more curious as to why it causes dizziness as I haven't ever read on here the why of it. :/
        Live Well
        Love Much
        Laugh Often!




        Diagnosed:
        Dec 2005
        Diagnosis:
        IC
        Cysto/Hydro:
        Dec 2005
        Other Conditions:
        Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
        Meds for IC:
        Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
        Alternative Treatments
        Physical therapy for 8 weeks, Acupuncture (just started).
        Other Meds:
        Skelaxin (as needed)
        Didn't work:
        Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
        Tried:
        Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

        Comment


        • #5
          I took Elmiron for several years and never experienced any dizziness. I didnt even realize that was a potential side effect. You can always phone your pharmacist and inquire...if anyone would know the "whys" s/he would.

          (\__/)
          (o.O )
          (> < ) This is Bunny. He's on his way to world domination.

          Comment


          • #6
            Thanks dg2901,

            Good Idea, I hand't thought of that lol!
            Live Well
            Love Much
            Laugh Often!




            Diagnosed:
            Dec 2005
            Diagnosis:
            IC
            Cysto/Hydro:
            Dec 2005
            Other Conditions:
            Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
            Meds for IC:
            Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
            Alternative Treatments
            Physical therapy for 8 weeks, Acupuncture (just started).
            Other Meds:
            Skelaxin (as needed)
            Didn't work:
            Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
            Tried:
            Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

            Comment


            • #7
              I just came back from seeing Doctor Lowell Parsons on Apr 27th he is the one who put me on Elmiron and from what I understand one of the people who helped create it. I could phone them on Monday maybe ask! I would be curious to know too why is causes Dizziness in some people and it does mention it in my warning prescription. I will keep you posted if I find anything out!

              Comment


              • #8
                Thank you Renate, that would we great!
                Live Well
                Love Much
                Laugh Often!




                Diagnosed:
                Dec 2005
                Diagnosis:
                IC
                Cysto/Hydro:
                Dec 2005
                Other Conditions:
                Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
                Meds for IC:
                Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
                Alternative Treatments
                Physical therapy for 8 weeks, Acupuncture (just started).
                Other Meds:
                Skelaxin (as needed)
                Didn't work:
                Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
                Tried:
                Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

                Comment

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