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Elmiron shortage

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  • mary124
    replied
    I haven't had a problem with the shortage here. I might have to wait a few days to get the full prescription, but usually the pharmacy has at least been able to get me 3-5 days worth; then they notify me that the rest is in stock.

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  • suzannes
    replied
    I was told by the Air Force pharmacy here in Anchorage that they would not have any until Aug 9. The local Wal Mart had 3 months for me.

    Suzanne

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  • fmcbride
    replied
    Elmiron

    Thankfully I was able to get another 30 day supply from CVS. My doctor just shook his head......about the shortage.

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  • wolfaleena
    replied
    anyone heard from the manufactuer yet? is the shortage still on. i know i don't need mine refilled for awhile but just checking in

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  • nottoc4
    replied
    My CVS pharmacy has recieved a shipment of Elmiron and will be able to fill my perscription. Last month they didn't hve any and had to send me across town to another CVS to get some.

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  • Auranc8
    replied
    I found 50 in fuquay-varina in nc. I thought I stepped back in time. The store was very quiet and sterile. Good home bred folks. The phone they had was a pink rotary phone! I am cutting back on my dosage and adding aloe Vera. I live in Cary, NC.

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  • Agape
    replied
    I was very fortunate today. After calling several CVS stores in my area, I was finally able to get a month's supply of Elmiron. None of the phamacist had any idea when they would get more in or what they problem actually was. I am also fortunate to live in a large area with lots of drugstores. My prescription is with CVS and there are many in the Atlanta area. Since I have a co-pay on my insurance, I had to get a full months supply or it wouldn't be covered. Elmiron is so expensive!!! I do wish they would come up with a generic version.

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  • slieberm
    replied
    Originally posted by giabella View Post
    I live near chapel hill. Did you call Kerr Drug in Hillsborough, NC? They had 60 pills last week. Call them asap.

    Gina
    Thanks for the tip, will do!

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  • giabella
    replied
    I live near chapel hill. Did you call Kerr Drug in Hillsborough, NC? They had 60 pills last week. Call them asap.

    Gina

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  • slieberm
    replied
    I figured I'd share my story as long as everyone else is having trouble...

    I live in the Raleigh, NC area and typically get my prescriptions from the NCSU pharmacy because, as a grad student, I can get medications with only a $20 copay there. They don't keep the medication in stock but only order it each month specially for me. At the end of May, they called to tell me that the medication was on backorder. I was lucky enough to get it at Walgreen's--although it cost me $200, which I couldn't really afford on a grad student's salary.

    My pharmacy had told me that their wholesaler was expecting more on July 15, but then I started reading everyone's stories (I've been snooping around here for a while but was always too shy to join...) and realized that was probably untrue. I started taking 2 pills a day instead of 3 in order to try and keep myself with medicine for as long as possible.

    I'm just about out--a total of 4 pills left. I asked my pharmacy yesterday if their wholesaler had been lucky enough to get any early (no) or if they were at least still expecting it by the 15th, and I was told that now they have NO IDEA.

    I called Walgreen's. None.

    I saw that a few people on here had had luck with their CVS stores, so I called about 15 stores in my area yesterday. Nobody had any Elmiron. Nobody even knew what it was and had to ask me stupid questions like could I spell it and was it a generic when I asked them about it. 15 stores. Nothing.

    I tried 2 Wal-Mart stores and a Sam's Club. Nothing.

    I called my doctor's office. He can't even see me to try to put me on different medication until the 20th. The 20th. By then, I will have been without my real dosage of medication for close to 2 months and without any medication at all for well over a week. I was doing extremely well on the medication; just knocking it back to 2 pills per day has already made me notice that things are starting to get, well, pretty awful again.

    I have even gone so far as to call a couple of stores in New Jersey, where my dad is willing to pick up the medicine and mail it to me overnight. Nobody has it.

    This is beyond unacceptable. Elmiron retails for a ridiculous amount of money as it is. It's the ONLY DRUG THE FDA WILL APPROVE, and yet there's not even anything in place to make sure that things like this don't happen to us?? I'm pretty disgusted by the whole thing, and I'm really not looking forward to the whole playing around with drugs game again. On the other hand, I'm pretty sure I'd rather not give these people any more of my--or my evil insurance company's--money.

    Thanks a lot, Ortho-McNeill-Janssen. THANKS A LOT.

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  • mvazquez
    replied
    Elmiron shortage - ordering from Canada

    Thank you to everyone who is posting updates and info about Elmiron shortage. This is truly disgraceful! Talking to the manufacturer is useless because they won't give specific information. This should not be allowed to happen! My pharmacist has no information about when the drug will be available, but she did tell me that the FDA is fed up with drug companies because they are doing this more and more and that they (the FDA) are making a mandate that the drug companies have to give the FDA 6 months advance notice if they are going to stop/slow down producing a drug. I am not sure when this will take affect.
    I ordered from NorthWest Pharmacy in Canada. Should have my shipment in 2-3 weeks. The drug is made by the same company, but in their Germany plant. You must pay out-of-pocket. It is costing me $199 with shipping for 100 pills. I am really hoping I will only have to do this once because that is a big expense for me and I had to put it on a credit card. I truly hope I am getting the "real thing". It is a gamble! This pharmacy is a real legitimate pharmacy in Vancouver Canada. If anyone else is going to order from Canada, PLEASE be careful. Do not order from any company that does not want a prescription and call and ask where they are located. Make sure they really are in Canada. This was my pharmacist's advice.
    Best of luck to everyone who is trying to deal with this crisis. It is so sad that there is no generic for Elmiron. We have enough to deal with and don't need this added stress!

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  • Charisse
    replied
    It's obvious none of us are getting the same info/answers through Medco or the manufacturer. I got 60 pills this morning from a small mom/pop pharmacy but they are being told by two of their wholesalers that they can't get anymore now until August 22. That was the first I'd heard of an actual date but the pharmacist said don't count on it. I called Ortho directly and the woman I spoke with told me they are doing the best they can to ship out small portions of the medication equally across the US and that smaller pharmacies would be more likely to get it. Wolferina.. unfortunately none of us know so I wouldn't trust what anyone here says as absolute truth because I don't think the company is being honest. But that doesn't mean we can't share our experiences here. The pharmacist I spoke to this morning spent 20 mins telling me how a lot of the drug companies are doing this now and not giving any explanation as to why they have stopped producing enough or what the reasoning was. He suggested I write a letter to my congressman. I just might do that. It's bad enough there are no substitutes for this medication and I'm tired of pharmacists telling me to switch to something else.. there is nothing else! But apparently there are shortages on common drugs like morphine and fentanyl as well. He said for a long time they couldn't get a popular thyroid medication in a certain strength and it was a huge hassle.

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  • giabella
    replied
    Thank you for posting that Wolfaleena. I feel it is so very negligent of both the manufacturer and the FDA in not providing facts to those relying or beginning elmiron as a treatment for ic. I understand that they are on hold but they need to better inform the public on the facts. It is quite dissappointing that us suffering from IC are not getting treated with more respect...elmiron is the only of it's form out there and for pharmacies to state to talk to your doctor about another drug to take in the meantime is laughable. These pharmacy reps also need to be more informed!

    Gina

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  • wolfaleena
    replied
    The manufacturer needs to put out a clear explanation to the patients who depend on this drug!!!
    Is it available or not... if not, when??? and why is it not available...

    I know somone on here said that they got their RX filled at MEDCO mail order. My RX was sent back to me from them about a month and a half ago from MEDCO... They claimed tha they did not have any...

    Now i am hearing that people have gotten theirs filled through MEDCO...

    I am completly Clueless as to what the situation is with the status of this drug.

    I think everyone will rest a bit easier when they know what is going on

    If anyone has any True Substantiaed evidence from the manufactuer of Elmiron Otho McNeil... that the drug is indeed back in production and on the shelves of pharmacies, could you please post only people who really know the truth about this please....

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  • fmcbride
    replied
    Elmiron

    I have been able to get my Elmiron RX for the past two months. My CVS had none last week so I went to Walgreen. They had none so I went to WalMart who had enough but had orders on backorder. One pharmacy suggested going to a mom/pop smaller pharmacy.

    During this time I called my uro and they said they had not heard to date from the rep on this problem.When a patient had called in desperate was the first they knew of the shortage. This doesn't bode well for the manufacture.
    I have an appointment soon to talk with my uro in case the July supply doesn't come through there are alternative meds.

    What is the treatment called GABA-IC? I had an email on it but had not noticed any discussion.

    Regarding the Canada Pharmacies: I ordered once and it was out of pocket for me. My insurance will not pay for anything from out of the US

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