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huge flares on elmiron

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  • huge flares on elmiron

    I'm at my wits end as this elmiron after 7 months (I only take 2 pills a day of "elmiron" from australia after my insurance in March ran out for the USA elmiron:headbang) is not working AT ALL and I don't think it was a few months ago either except now I'm worse. Don't know what to do. I'm tired of doctors and getting tested for an infection which I don't think I have. They usually come back negative anyway. Just yuck!
    I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.